Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advice For Test Making...

azza

Recommended Posts

azza Apprentice
azza
Posted

Hi All,

I want some advice regarding the gluten-intolerence test... I asked some people and most said that the one that takes a blood sample is not accurate. On the other hand the one taking a sample from the villi is good but really painful... Has any one of you made the test?? Please advise me on which one to make..

Thanks In Advance,

Azza B)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lisa922 Apprentice
lisa922
Posted

Hi! Personally, I did not notice any pain from the biopsy, but I did it at the same time as an ERCP to clear my bile duct, so I did have pain from the ERCP. I had and endoscopic ultrasound a few weeks earlier, which is probably similar to what one would feel with just a biopsy, and I did not have pain with that...maybe just a little sore the next day and groggy from the sedation. I have just learned that there is genetic testing that can be done for Celiac. I'm not sure how you write this, but you would get an HLAeq2 and an HLAdq8 and if both are positive, than Celiac is in your genes, if one is + and one -, then you have a 30% chance you won't get it. I am going to post this info and see if anyone else has done the test. You may also want to check out Enterolab online. You can order different tests from them, although I have not done it. Good luck!

LISA

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. HectorConvector
      - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      323

      Terrible Neurological Symptoms

      Awful terrible burning pains recently. Got suicidal thoughts from this crap yet again. I'm going to try doing low carb again as meat and veg type food has in the past reduced it. This is doing my head in.
    2. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Second chance

      Thanks for giving us this update, we appreciate hearing back. I th🥰ink you are on a good path forward and will learn some new things to improve your health and keep healthy.
    3. julie falco
      - julie falco replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Schar's products contain wheat!

      thank you that is good to know that it is safe for celiac people
    4. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Second chance

      Current careteam is still up in the air about my celiac thanks to me googling "celiac specialist" what popped up was once known as a good name hospital back in the days. I went in for answers for my declining health, it was the autoimmune part that did me in, being a former bus driver.I read that in my medical records so easily downplayed, i refused the...
    5. Scott Adams
      - Scott Adams replied to cristiana's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      British Coeliacs: Marks and Spencer's have launched a Gluten Free Colin the Caterpillar Cake.

      Are you trying to make us in the USA jealous? 😉
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,606
    • Most Online (within 30 mins)
      7,748
    jackson53
    Newest Member
    jackson53
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • HectorConvector
      Terrible Neurological Symptoms

      By HectorConvector · Posted

      Awful terrible burning pains recently. Got suicidal thoughts from this crap yet again. I'm going to try doing low carb again as meat and veg type food has in the past reduced it. This is doing my head in. 
    • Mari
      Second chance

      By Mari · Posted

      Thanks for giving us this update, we appreciate hearing back. I th🥰ink you are on a good path forward and will learn some new things to improve your   health and keep healthy. 
    • julie falco
      Schar's products contain wheat!

      By julie falco · Posted

      thank you that is good to know that it is safe for celiac people
    • Jmartes71
      Second chance

      By Jmartes71 · Posted

      Current careteam is still up in the air about my celiac thanks to me googling "celiac specialist" what popped  up was once known as a good name hospital back in the days. I went in for answers for my declining health, it was the autoimmune part that did me in, being a former bus driver.I read that in my medical records so easily downplayed, i refused the gluten challenge! Why the hell would I eat Gluten when im Celiac coming to them for answers when my body is falling apart? Glutenfree since 1994. They did unnecessary colonoscopy KNOWING im glutenfree. A celiac specialist would know that would be pointless to do if not eating gluten and it was done!Im so angery with that hospital for not explaining celiac disease and withholding information, Downplaying my ailments , mental distress,  causing more health issues, ect. All this could have been avoided If medical records were sent, when asked, explained and done properly. Im so angery.I do have the celiac dietitian on here in June and linked her up to my current health care yesterday, fingers crossed hopefully with that, the understanding of celiac is explained it's not just a food allergy will be understood. 
    • Scott Adams
      British Coeliacs: Marks and Spencer's have launched a Gluten Free Colin the Caterpillar Cake.

      By Scott Adams · Posted

      Are you trying to make us in the USA jealous? 😉
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.