Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease And Breastfeeding


taneil

Did you breastfeed your child?  

15 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

taneil Apprentice

I read a study that said that a baby that is breastfeed for more than 2 months has 2/3 less chance of developing Celiac Disease/Gluten Intolerance. I would like to find out what everyone's experience on this is.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mat4mel Apprentice

My 2 yr old dd with Celiac was breastfed until just recently, only because I am 27 weeks pregnant and it is uncomfortable. She never received any formula. We introduced solids around 6-7 months but she never ate MUCH until 1 1/2 or so (just preferred to nurse). I have two other kids, the first was mostly bottlefed b/c of my ignorance and my 2nd was breastfed until she was 2 1/2, but was supplemented with formula between 6 months and a year because I was pregnant and had a decreased milk supply. Anyway, the 2 yr old is the only one I am sure has celiac, which is funny b/c she is the one that had the MOST breastmilk! But I wonder how much worse she could have been if I didn't breastfeed her. I am definitely breastfeeding my next child, due in August, and am now gluten free and will stay gluten free atleast while I am breastfeeding (maybe longer, since we don't know where the celiac gene is coming from-- me and/or dh)

Mel

Connie R-E Apprentice

My first son was 100% breastfed and that was how we discovered celiac!

He had such bad colic, I had to find out what was wrong. I heard he would outgrow it, but no one could tell me why he was colicky...

So, thinking what was going in was coming out and why?, I omitted wheat and then gluten from my diet and he stopped being colicky-period! Also, his ear infections stopped. :)

Now, he is anaphylactic to wheat and has celiac reactions to gluten.

Our second is also breastfed and won't have gluten for a very long time as we don't keep it in the house!

Connie

kaylee Rookie

I am currently in the process of weaning my 19-month-old toddler with celiac. He, too, as in the previous post, was incredibly irritable almost from birth. And, unlike what kept being said, he did NOT grow out of it.

Looking back, two things stand out: first, the lack of help from the pediatrician was quite extraordinary, really. I went to her a number of times very distressed for not understanding my son's virtually constant bad mood and progressively worsening bouts of screaming after we introduced solids. Her systematic response was that he was teething and that babies cry. She clearly took me for a highly neurotic, fussing first-time mother (She finally agreed there was a problem when he reached about 15 months, and suggested acid reflux medication, which helped a bit with the screaming).

The other thing is, that unlike you, Connie, I did not think to eliminate gluten, but I did try eliminating just about everything else. How did I miss it?? That's like what we hear about craving what's worst for us in food allergies. I stopped dairy, soy, oranges, peanut butter, caffeine, and various other things and saw strictly zero change in his symptoms.

When it finally dawned on me that we should try eliminating wheat and we saw immediate spectacular change, it still took me a few days to realize I had to stop it too. Now that we've both been gluten free my son is almost constantly happy - a pure delight to be around. This changes dramatically with ingestion of the slightest trace of gluten now - including when I have it and it passes through the breastmilk. I made a real mistake last week and ate some (well, quite a bit, I'm afraid) dried pineapple rings. We paid for that for a good five days of nonstop whining. Dried fruit I think is often dusted with wheat. I just thought, and I will no longer "just think" this, that the amounts present would be so small that once metabolized through me they would be inoffensive. So much for that idea....

I don't know yet if I have celiac myself. I have a number of symptoms and related conditions, but I've been off gluten for several months now and can't be tested until I've stopped breastfeeding and gone back to eating gluten for the 6 weeks required. In the meantime, we all feel pretty good on this diet and I don't regret this prolonged breastfeeding experience at all. My son went through the wringer with what I now know was constant pain for months and the close contact has been a beautiful part of our relationship. If the breastfeeding while eating gluten was a bad thing - well, obviously I feel badly about that, but I didn"t realize, no one else realized including the doctor, and I guess I'm mainly just glad that we did figure out the problem quite early on, that we went through several months but not years of unexplained symptoms.

Wow, that feels good to say all that!

Best,

Kaylee

  • 4 weeks later...
mpeel Newbie

Samantha is still nursing at 4 years old. I am not completely gluten-free but she does not react to the gluten I ingest. However, I am not sure she is still getting milk. She was tentatively diagnosed a year ago.

Michelle

mom to Beth, 7 1/2 and Sam, 4

gf4life Enthusiast

I breastfed all three of my children between 17-19 months each. They did not seem to have any delayed growth or diarrhea problems during this time, but once they were on solids and getting gluten in their diets their growth suddenly dropped from the 95th percentile to the 5th percentile. My daughter had some projectile vomiting and until going gluten-free this last spring she had reflux problems. My middle boy had a severe bout of diarrhea that caused him to severely drop weight, and he has had skinny legs and thighs ever since, and is very short for his age. They all did seem to be a little gassy during their infancy, but they certainly couldn't have been described as colicky, since I've seen babies with colic who were much worse than mine were...

I know that the doctors never would have tested them, had I not insisted. I am so glad I did. Everyone is thriving now that we are all gluten-free!! :D

God bless,

Mariann

TrixieMom Rookie

My son is 14 months and has been diagnosed with celiac disease for a month. I breast feed until he was 12 months old - but he had symptoms from birth - with bm etc.(I ate gluten never thinking.) It was only at about 8 months that he started dropping in the weight chart - he is just below the 10% now - down from about 75%.

Trixie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
eternity Explorer

My son is 16 months old and still breastfeeding. He was diagnosed with celiac last week. He is gluten-free and I am eating a gluten-free diet also so that he can continue nursing.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,665
    • Most Online (within 30 mins)
      7,748

    Christa Cook
    Newest Member
    Christa Cook
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
    • Xravith
      Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to go back to how I was before — but at least I’ll be able to take the necessary tests properly. I think the diagnostic process will be long, but at least I’m happy that I finally decided to address this doubt I’ve had for years.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.