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Poop Question


Anteau25

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Anteau25 Apprentice

I've been gluten free for a little over three months. My symptoms for the most part went away quickly, but it took a little longer to have a normal bowel movement. After about 3-4 weeks I did, but now I only go every couple of days or just a little bit at a time. After I go, I don't feel relieved. I feel like there's some left in my intestines or something. After about 4 days, I suddenly have to go-- ALOT. Then the cycle begins again. I've been taking stool softeners a few times a week. It's getting worse, and I've had a stomach ache and bloating since Friday. I've only gone a little bit three times in almost a week. Last night I took two stool softeners. I went this morning, but not enough. My poop isn't hard, the stool softeners just seem to help me go. Does anyone else have this problem or know how to help? PLEASE let me know. Thanks.


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Guest Villanfam

I can't believe that we are talking about POOP :lol: . Well anyways, I have always had problems going to the bathroom before going gluten free. In high school I went like once very 5 days or so, but so did my sister so i thought it was normal. It wasn't until I met my husband that I found out that it wasn't LOL.

I have been gluten free for about 3 months now and am still only going like every 2 days or something and then sometimes a lot all of a sudden. I think the length of time for your intestines to heal varies from person to person depending on the amount of damage, age, how long they've had celiacs ect.

Also you have to really careful that you are not getting accidentally glutenated by food, soap, or contamination.

azmom3 Contributor

My son is only 2 and was going about every 4-5 days (for a year and a half) and/or in cycles like you mentioned, but he was very constipated...just wouldn't go for days and then all of a sudden have 3-5 very large BM's in one day, then the cycle would start agian. His GI dr. had us start him on miralax twice a day and it has done wonders. He's still not "normal" but much improved, probably going every 2 days and it varies between very runny to soft, with an occasional "normal" poop. (We get so darned excited when we see one of these....it's all our family talks about the rest of the day! :lol: ) I'm not sure if it works for adults, but I would highly recommend it based on our experiences.

Nantzie Collaborator

Poop is always a reasonable topic here. :)

Are you sure you've got all gluten out of your diet? It sounds like a food reaction to me. All the places gluten can hide take a while to find. Soy sauce and salad dressings are two places I never suspected at first. Also, guarding against cross contamination can't be emphasized enough. Same with personal care products such as haircare products, soaps, cosmetics, lotions, etc.

Many, if not most, people with gluten issues also have issues with dairy at first. The intestinal villi, which are damaged as part of the celiac disease process, also make the enzymes that digest dairy at the very tips of the villi. So until your body is healed many people have a dairy intolerance as well.

Since you're relatively recently diagnosed, you may also be having other food intolerances, which may or may not go away. I had almost as many problems with soy as I did with gluten for the first few months I was gluten-free.

The first thing I would do is to look for the hidden gluten.

Nancy

zansu Rookie

It's also possible that you're not getting enough fiber.

Anteau25 Apprentice

Hey thanks for the responses. I am getting enough fiber. At first I was thinking that maybe I wasn't drinking enough water with the amount of fiber I eat, so I started drinking more water. I've already checked my lotion, soap, makeup etc. I am so careful about cc that I feel like I have OCD lol. I didn't have a problem having a BM before being gluten free. It alternated between D and soft poop that broke apart like crumbs when I flushed. It seems that over the three months it's been getting worse. I don't know. Maybe my body is just adjusting.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
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    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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