Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sick To My Stomach


Guest gfinnebraska

Recommended Posts

Guest gfinnebraska

I have been 100% gluten free for a little over 30 days. I have not eaten anything even slightly questionable. So, my question is, is it "normal" to be sick to your stomach?? I eat something, and then my system "cleans out." I am very swollen & not losing weight... I just can't keep anything in! Will this end after a while? Will my system get cleaned out and stop? Any help would be appreciated ~ I am tired of spending so much time in the bathroom!!! :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

Completely normal.......you can go months or even a year without getting better and without making any mistakes and even that can be normal. A month surely isn't enough time for your body to heal. My dr. compared it to a train or some moving vehicle. Think of a car or train going at top speed -- that's like the celiac tearing up your body at topspeed. When you start the diet, you slam on the brakes, but it still takes awhile for the train to come to a complete stop. I've been 8 months and I'm not better. Endos have shown that I'm not injesting accidental gluten, no problem with any other organs, no other allergies.....it takes time....and one month, in most people, is not nearly enough.

Guest gfinnebraska

Thank you celiac3270... my brain kept telling me that, but I was starting to worry! I have just been SO sick, and was starting to think maybe something else was wrong. I guess I'll just prepare myself for a "season of healing" and try and be patient. :rolleyes: Again.... Thanks!

celiac3270 Collaborator

Sure :D .......I just went back to read your post again and I realized that I hadn't really noticed the first time what you said about cleaning out the system.....that's the same sort of impression I get about my system 8 1/2 months into the diet. I still get sick and, as a matter of fact, I'm sick right now. I went into school to take a test (I'm out often enough to begin with, so I try to tough it out when I can) and I came home around 1:00. Fortunately, the cramping isn't as debilitating as it used to be, so I can at least lie here with my knees to my chest and type :unsure:

I keep my meals down, but then again, I usually did that in the past. It's just, every few days I'd get severe cramping and vomiting. I had constant bloating and a lot of gas. I was really thin (5' and 70 pounds; when I got sick I would lose 2-5 pounds and then eventually climb back up to seventy and repeat the process) and my mom said she used to cry when she thought about how thin I looked when I came out of the shower or changed my clothes or something. She kept saying that she felt like she was poisoning me or something, which she, essentially and inadvertently was ;) . Anyway, I have had some improvements with the diet -- the bloating comes only when I'm sick, the gas is also when I'm sick but not usually, and I used to get occasional diarrhea which is now completely gone! The cramping isn't quite as bad, but still not something that you can just function normally with, and I don't vomit as much when I get sick. I'm now about 5'2 and 86 pounds, a new record for me :)....2 inches and 16-20 pounds in eight months :D. I feel like I know a lot about celiac and the diet by now, and if I could just shake the still persistent cramping/vomiting, I'd be fine....I still have quite a ways to go, though. What was my point again? Oh, yeah, I kept my meals down always, but I'd just puke every few days....now I puke every 1-3 weeks. Though I don't vomit as much anymore, a lot comes up really forcefully -- it actually hurts in my chest with the force of the vomit and a LOT comes up, but it's not projectile or anything.......sorry to ramble on about my story, I'm just bored and with not much else to do but read and I got off on a bit of a tangent. To simplify the whole thing, I'm still having this "cleaning out" thing with my system, too.....I just hope that you don't need to deal with it for 8+ months. Although I might add, it seems like forever to get better for the first 1-4 months and after that you just sort of accept it, pathetic as it is, and wait it out without counting the # of days gluten-free and asking why you're not better.

I eat something, and then my system "cleans out." I am very swollen & not losing weight... I just can't keep anything in! Will this end after a while? Will my system get cleaned out and stop? Any help would be appreciated ~ I am tired of spending so much time in the bathroom!!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,212
    • Most Online (within 30 mins)
      7,748

    Melissa McGowan
    Newest Member
    Melissa McGowan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.