Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Insomnia With Itchy, Antsy Bottoms Of Feet?


Tidings

Recommended Posts

Tidings Explorer

Hi folks,

Have noticed several threads about Celiac/gluten intolerance and insomnia, and wanted to post something specific about Insomnia and FEET...

Have been plagued with insomnia ever since acquiring C.F.S. (over two decades ago), but lately the insomnia is coupled with the most annoying ITCHING and "ANTSY" (TINGLING) STUFF going on in the BOTTOMS OF MY FEET. I don't know if this is related to food intolerance(s) or maybe related to some problems with my SPINE (have degenerative disc areas in cervical (neck) spine and lumbar areas). Once this FOOT THING gets started, it can keep me awake all night. It is not like the intense ITCHING that goes on along the SHINS when I've been toxified with problem food substances. It is more like a nerve-related "tingling." Hard to describe.

Last "night" I finally fell asleep about 6:00 a.m. this morn, and only after taking some of the Hyland's "INSOMNIA" sublingual tablets! This can go on many nights a week, and then I might luck out and have one good night of fairly peaceful sleep (for me, good sleep is about 3-4-5 hours without having to get up multiple times).

Just wondering if others have this BOTTOM OF THE FEET thing and if so, have you figured out what's causing it or what might alleviate it?

Thanks in advance for any replies.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cassP Contributor

are you a celiac? or gluten intolerant? how long have you been gluten free? have you had your B12 levels checked??

alot of gluten intolerant people and celiacs get numbness/tingling in their hands &/or feet due to LOW levels of B12. my sis in law had a B12 level of 211 and she was dizzy and had the tingling in her hands and feet.

ALSO-> Restless Leg Syndrome has sometimes been an issue for Celiacs.

maybe you need to get your vit.B12 & vit.D levels checked- those are the most common vitamin deficiencies in Celiacs.

Tidings Explorer

Hi cassP,

Answered your questions via Messenger. And yes, last couple of blood tests did show Vitamin D deficiency and have been taking supplements. Don't think the tests done a few days ago addressed B12, so will have to get that tested.

I also heard that Quinine/tonic water can calm restless legs and am thinking maybe it'd calm restless FEET, too...

  • 3 weeks later...
Tidings Explorer

Quick followup on this thread:

As soon as I stopped the Lisinopril, the itchy/twitchy feet thing stopped, so I'm pretty sure that was the source of the restless FEET syndrome that caused so much insomnia. Am trying to do daily walking to address blood pressure, and maybe it will also help with the sleep problem... Time'll tell!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    2. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    3. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    4. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal

    5. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,349
    • Most Online (within 30 mins)
      7,748

    Lulu530
    Newest Member
    Lulu530
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.