Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Metabolism?


PadmeMaster

Recommended Posts

PadmeMaster Apprentice

I'm *not* a big eater. I'll snack (a lot) but I have a tendency to do things like one week on one week off jsut because of money issues. Lately, though, I've been eating 2-3 meals a day.. By 10pm I'm absolutely staving, so go to bed to avoid eating a late night snack. Then, Saturday, my body went haywire. I typically will have a spell of unending hunger for one day once a month (and normally I attempt to satisfy that hunger, too). But it's not been one day and it's not the right time of month. So... Also, I've had a headache since about this time yesterday. It went away with caffeine (extreme; I had a Monster Energy drink) but is now returning. It feel like a miniature migraine (as strange as that may sound).

So I'm confused and not sure what to do.. Last time I had this kind of hunger, I was 14 and could eat 4 servings of whatever without gaining weight. Now I'm 18, have gained a ton (over 50 pounds since I was 14, though initially because of medicine) of weight, and am already limited to foods with a higher fat (or fruit/veggies. Brothers need higher fat and almost every processed food I pick up has higher fat).

To give an example on how crazy it is: This morning I ate approx 2.5 cups of farmer's pie (meat, a lot of peas, and mashed potatoes made extra fatty). It was about 30 minutes later that I felt hungry, and less than an hour when my stomach growled. For lunch, I have as many cherries as I wanted (my stomach gave signs of being done, so I stopped) and then less than a minute after putting up the cherries, my stomach demanded food, so I poured myself a bowl of pretzels (I'm getting 4 bowls out of my "family" sized bag of Glutino pretzels.. I don't share, either). I ate those and one gummy worm (Left over from last night.). I probably finished eating around 2 o'clock. My stomach is talking to me rudely (growling pretty loud and some minor pains) as if I haven't eaten since yesterday! I'm about to go bulk up our homemade chili and will probably eat two huge helpings of that, too. Oh, and calorie addition on there, I had that monster energy, too (at 7am). Yesterday was just as bad (I ate two huge servings of the farmer's pie for dinner at 7:00, and was still hungry before I went to bed at 9:30).

Part of my concern is feeding into this, even with mostly healthy foods (unlike today :P ) and gaining a lot of weight. I'm CURRENTLY 40-50 pounds overweight, and am wearing my mom's pants that she can't fit into anymore because everything I have is too small. So I can't gain enough more to knock me into 18s! But this constant hunger is bugging me..

Also: I have been CC'd in the last week, and am currently feeling the repercussions of having milk in the last few days (*cough* yesterday), but I've never had extreme hunger from the one before (and the other is new).

TIA!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



organicmama Contributor

How long have you been gluten-free and CF?

PadmeMaster Apprentice

I've been gluten free for a year (as of sometime this month). Cf is casein? I've not managed cf yet. Goal is to not touch it again. I'm having a little trouble but will get on track. I'll go to whole foods sometime this week, which will help.

Marilyn R Community Regular

I had ravenous hunger for a few months after going gluten-free. Instead of empty snacks like pretzels, you might like to try whole nuts for a snack. The really satisfy the hunger and quiet the beast. (Your stomach.) I'm underweight but really sensitive, so the gluten-free Foods at the grocery didn't work for me.

Another wierd thing that I discovered is that I crave meat from the bone. There is something strangely satisfying about eating bone marrow or any meat on the bone. Or you can boil meat bones with veggies to make your own stock to cook rice in, or make soups.

I suspect that it has something to do with a need for calcium, which I couldn't absorb previously. Have you had your vitamin levels checked lately? That might be worthwhile.

PadmeMaster Apprentice

No, I haven't had my vitamin levels checked, although mom was reading something the other day and commented about our D intake.. So I might get it checked because I just read something that said too much D was dangerous.. lol

Thanks :)

eatmeat4good Enthusiast

When I looked at gummy worms for my son, they had gluten in them. Read that package.

Try filling up on protein not the potatoes. Protein is more satisfying and you can eat as much as you like or need without gaining weight. Cooked vegetables, fruit and veggies...if you stick mainly to that and minimize rice and potatoes (and pretzels) you won't gain so fast. Carbs have a way of making you want more. I try to keep it at around 30 g carbs a day and I feel way better. But if I eat a bunch of carbs...for sure the next day I am hungry as a bear...not for good food...but for carbs or sugar. Feed your body when it's hungry but not on carbs.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

    2. - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

    3. - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

    4. - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Seeking advice on potential gluten challenge

    5. - Wheatwacked replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,152
    • Most Online (within 30 mins)
      7,748

    SinnamonToasty
    Newest Member
    SinnamonToasty
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
    • trents
      @Mark Conway, here is an article outlining the various tests that can be used to diagnose celiac disease. By far, the most popular one ordered by physicians is the tTG-IGA. But almost all of these tests are known by different names so the terminology will vary from place to place and lab to lab. The article gives common variant names for each test.  In addition to IGA tests there are IGG tests which are particularly useful in the case of IGA deficiency.  
    • JudyLou
      Thank you so much @knitty kitty! My feet aren’t dry or ashy and I don’t have a rash that gets scaly. It’s like very itchy/burning vesicles that are symmetrical - on both arms, both legs, etc. They actually feel better in direct sunlight as long as it isn’t really hot or I’m not exercising outside, but gets worse if I sweat (especially if the area is covered up). It’s not usually on the outside of my elbows and knees which seems more typical of dermatitis herpetiformis (unless it spreads there). It tends to first hit the inside of those areas. Interestingly, twice the rash broke out soon after eating an unhealthy meal and having an alcoholic drink (I only drink a few times a year, no more alcohol content than a glass of wine).  So I wonder if there is a connection. I’m halfway considering doing a gluten challenge for a few months to see what happens, knowing I can stop if I have any symptoms, and asking for a full celiac disease panel at the end. I really appreciate your thoughts! 
    • knitty kitty
      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      This doctor is obviously under educated about Celiac Disease. Deficiencies that can cause oral thrush (Candidiasis) mouth ulcers: Thiamine B1 B12 Folate Zinc Vitamin C B2 B6 Iron Malabsorption Syndrome is often co-morbid with Celiac Disease causing multiple deficiencies of the essential vitamins and minerals.  Low or deficient  Vitamin D is almost always found in undiagnosed Celiac Disease. "Over 900 genes have been reported as regulated by vitamin D"  Possible Role of Vitamin D in Celiac Disease Onset  "The overall prevalence rate of vitamin D deficiency was 41.6%, with the highest rate seen in blacks (82.1%), followed by Hispanics (69.2%)."    Prevalence and correlates of vitamin D deficiency in US adults
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.