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Could My Symptoms Be Celiac?

sasharebekah

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sasharebekah Newbie
sasharebekah
Posted

I've struggled for about 2 years on/off with bladder and digestive issues (feelings like recurring UTI's but there's never any cultures in the urine tests). I've had multiple urine tests all coming back negative, at first it was thought to be interstitial cystitis, but then that was cleared. I took prescription Vesicare for a while for it but that didn't help. My bladder was tested to see if its emptying properly and it was cleared. I have possible bladder spasms. My kidneys were also tested and cleared. I've had a blood test recently (not for celiac) with low counts of most everything except high CRPs (attacking something in my body).

I've recently, 6 months ago, started having pretty bad, itchy, red and dry breakouts on my chin and the antibiotic and topical gel from the doctor hasn't helped any.... dermatitis?? I'm not sure. I've had problems digesting protein for about 3 months, I cannot have any protein at all (I'm vegetarian so my protein is soy, pea and rice based) or my stomach gets extremely bloated to the point of discomfort and I get gas and have digestive problems. I couldn't eat dairy but am taking a daily probiotic so its now alright. The past week or so I've been SO lethargic, no matter how much sleep I get, dizzy when I get up sometimes, moody, with a really really foggy head and exhausted muscles. I usually have tons of energy. I have been gluten-free for two days just as a little experiment and I'm feeling a little bit better. I usually eat organic rolled oats for breakfast every morning, but I haven't been doing that and have more energy in the morning, but oats aren't gluten free?

I feel like my skin, my bladder and my stomach issues all have to be related, and the thing I keep coming across is celiacs. Can anyone off the top of their head tell if this sounds like celiac? thank you :)

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kittty Contributor
kittty
Posted

It could be celiac, but it could be many other things too.

Vitamin B12 deficiency can cause bladder issues, and a lot of the other things you're describing.

You mentioned that you're vegetarian, but do you eat any animals products such as eggs or yogurt? Vitamin B12 can only be found in animal products or supplements (or processed foods with those supplements in them), so a deficiency is common among vegans and vegetarians.

Have you tried any supplements?

sasharebekah Newbie
sasharebekah
Posted
  • Author

I don't eat eggs or yogurt, I do take a supplement though and I can't imagine a B12 deficiency could affect me for so long, could it?

frieze Community Regular
frieze
Posted

I don't eat eggs or yogurt, I do take a supplement though and I can't imagine a B12 deficiency could affect me for so long, could it?

Yes it could. B12 def. can be deadly. get tested, then supplement with methylcobolamin, on an empty stomach, the under the tongue sort adds a tiny edge, unfortunately they are compounded to be pleasing to the taste buds, so watch out for the additives.

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    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
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