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Could My Symptoms Be Celiac?


sasharebekah

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sasharebekah Newbie

I've struggled for about 2 years on/off with bladder and digestive issues (feelings like recurring UTI's but there's never any cultures in the urine tests). I've had multiple urine tests all coming back negative, at first it was thought to be interstitial cystitis, but then that was cleared. I took prescription Vesicare for a while for it but that didn't help. My bladder was tested to see if its emptying properly and it was cleared. I have possible bladder spasms. My kidneys were also tested and cleared. I've had a blood test recently (not for celiac) with low counts of most everything except high CRPs (attacking something in my body).

I've recently, 6 months ago, started having pretty bad, itchy, red and dry breakouts on my chin and the antibiotic and topical gel from the doctor hasn't helped any.... dermatitis?? I'm not sure. I've had problems digesting protein for about 3 months, I cannot have any protein at all (I'm vegetarian so my protein is soy, pea and rice based) or my stomach gets extremely bloated to the point of discomfort and I get gas and have digestive problems. I couldn't eat dairy but am taking a daily probiotic so its now alright. The past week or so I've been SO lethargic, no matter how much sleep I get, dizzy when I get up sometimes, moody, with a really really foggy head and exhausted muscles. I usually have tons of energy. I have been gluten-free for two days just as a little experiment and I'm feeling a little bit better. I usually eat organic rolled oats for breakfast every morning, but I haven't been doing that and have more energy in the morning, but oats aren't gluten free?

I feel like my skin, my bladder and my stomach issues all have to be related, and the thing I keep coming across is celiacs. Can anyone off the top of their head tell if this sounds like celiac? thank you :)


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kittty Contributor

It could be celiac, but it could be many other things too.

Vitamin B12 deficiency can cause bladder issues, and a lot of the other things you're describing.

You mentioned that you're vegetarian, but do you eat any animals products such as eggs or yogurt? Vitamin B12 can only be found in animal products or supplements (or processed foods with those supplements in them), so a deficiency is common among vegans and vegetarians.

Have you tried any supplements?

sasharebekah Newbie

I don't eat eggs or yogurt, I do take a supplement though and I can't imagine a B12 deficiency could affect me for so long, could it?

frieze Community Regular

I don't eat eggs or yogurt, I do take a supplement though and I can't imagine a B12 deficiency could affect me for so long, could it?

Yes it could. B12 def. can be deadly. get tested, then supplement with methylcobolamin, on an empty stomach, the under the tongue sort adds a tiny edge, unfortunately they are compounded to be pleasing to the taste buds, so watch out for the additives.

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      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
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