Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could My Symptoms Be Celiac?


sasharebekah

Recommended Posts

sasharebekah Newbie

I've struggled for about 2 years on/off with bladder and digestive issues (feelings like recurring UTI's but there's never any cultures in the urine tests). I've had multiple urine tests all coming back negative, at first it was thought to be interstitial cystitis, but then that was cleared. I took prescription Vesicare for a while for it but that didn't help. My bladder was tested to see if its emptying properly and it was cleared. I have possible bladder spasms. My kidneys were also tested and cleared. I've had a blood test recently (not for celiac) with low counts of most everything except high CRPs (attacking something in my body).

I've recently, 6 months ago, started having pretty bad, itchy, red and dry breakouts on my chin and the antibiotic and topical gel from the doctor hasn't helped any.... dermatitis?? I'm not sure. I've had problems digesting protein for about 3 months, I cannot have any protein at all (I'm vegetarian so my protein is soy, pea and rice based) or my stomach gets extremely bloated to the point of discomfort and I get gas and have digestive problems. I couldn't eat dairy but am taking a daily probiotic so its now alright. The past week or so I've been SO lethargic, no matter how much sleep I get, dizzy when I get up sometimes, moody, with a really really foggy head and exhausted muscles. I usually have tons of energy. I have been gluten-free for two days just as a little experiment and I'm feeling a little bit better. I usually eat organic rolled oats for breakfast every morning, but I haven't been doing that and have more energy in the morning, but oats aren't gluten free?

I feel like my skin, my bladder and my stomach issues all have to be related, and the thing I keep coming across is celiacs. Can anyone off the top of their head tell if this sounds like celiac? thank you :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kittty Contributor

It could be celiac, but it could be many other things too.

Vitamin B12 deficiency can cause bladder issues, and a lot of the other things you're describing.

You mentioned that you're vegetarian, but do you eat any animals products such as eggs or yogurt? Vitamin B12 can only be found in animal products or supplements (or processed foods with those supplements in them), so a deficiency is common among vegans and vegetarians.

Have you tried any supplements?

sasharebekah Newbie

I don't eat eggs or yogurt, I do take a supplement though and I can't imagine a B12 deficiency could affect me for so long, could it?

frieze Community Regular

I don't eat eggs or yogurt, I do take a supplement though and I can't imagine a B12 deficiency could affect me for so long, could it?

Yes it could. B12 def. can be deadly. get tested, then supplement with methylcobolamin, on an empty stomach, the under the tongue sort adds a tiny edge, unfortunately they are compounded to be pleasing to the taste buds, so watch out for the additives.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,207
    • Most Online (within 30 mins)
      7,748

    WAB19
    Newest Member
    WAB19
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.