• Join our community!

    Do you have questions about celiac disease or the gluten-free diet?

  • Ads by Google:
     




    Get email alerts Subscribe to Celiac.com's FREE weekly eNewsletter

    Ads by Google:



       Get email alertsSubscribe to Celiac.com's FREE weekly eNewsletter

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to Celiac.com's FREE weekly eNewsletter   What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease?  Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet What if my doctor won't listen to me? An Open Letter to Skeptical Health Care Practitioners Gluten-Free recipes: Gluten-Free Recipes
0
notme!

Family Emergency Trip

Rate this topic

Recommended Posts

my best friend i've known since kindergarten had the most awesome husband she could ever have. we went all over together, experienced triumph and tragedy, grew up, had kids, grandkids, etc. he had a heart attack 2 weeks ago and died. my girl called and i had to get there fast. so, i packed the dumbest suitcase ever and my sister got me a plane ticket. i packed 2 peanut butter and jelly on udi's and i knew i could get "something else" and a beverage at the airports. and i did and it was ok. then i got up there (northern nj) my sis got me some boar's head lunchmeat, udi's, chex,, blah etc., (survival stuff lolz) and everybody was bringing food to the house, which is customary. so, when my husband got there, we went to a(n awesome restaurant in hackettstown nj) and ordered, like 4 dinners and other gluten free stuff "to go" - it kept me from freaking out about cooking/cc everything and i was able to concentrate on the situation without starving or having to shop/cook/THINK about food. lasted the whole trip and i didn't have to worry about what i was eating and help my bestie. i just wanted to share because it was a great fear for me. made a terrible time a little less stressful to order out. when i flew home the other day, i noticed a whole lot of people waiting at the airport gates who had packed their own food, fyi, and didn't feel a bit strange eating my ham and swiss sandwich. oh, and, hahaha (not funny just 'funny') i had my pb&j sandwiches approved by airport security, yet they wouldn't serve the peanuts, just crackers and pretzels, on the airplane. because a person on the flight had a peanut allergy........ i resisted anarchy....... :) lolz

i hope this evening finds you all well, making the best you can, and professing your love to those who mean so much to you. God bless you all :)

  • Upvote 1

Share this post


Link to post
Share on other sites
Ads by Google:
Ads by Google:


I am so sorry about your friend's husband. I also think this post is fantastic, you and your dh really handled it well, what a great guy!

Share this post


Link to post
Share on other sites

My condolences as well. That must have been very shocking for her, and for you as well. :(

Share this post


Link to post
Share on other sites

Sorry to hear of your loss.

It does sound fantastically freeing to know that you can just get up and go and survive just fine. Your friend must have appreciated you so much too.

I wish you well in the coming weeks.

Share this post


Link to post
Share on other sites

thank you - it was shocking and so heartbreaking. he was only 51. he and my husband were so close (and billy hates everybody lolz) when my poor girl called, all i said was "i'll be right there" and i got there so fast thank God. everyone was sort of hanging around waiting and when i got there, she was able to function. i even got her to eat. there were so many things to do in a short amount of time and i hope i helped to keep peace and do things gracefully. translated: i can piss off the family/whoever to have things done the way she wanted them done, and the way he would have wanted. because, sooner or later, i am going home :)

anyways, i always dreaded That Sort of phone call since i have been diagnosed it seems like even a vacation is a pain to plan to eat. but it can be done 'on the fly' - maybe gives me hope that my Spontaneous Good Days are not over yet. larry would like that.

so i will leave you with a larry story: (you might have heard me talk about him before - when he could not bear not to include me in the grilled meal (because he messed it up so bad!), i wrapped up some frozen udi's in tinfoil and put it on the grill so he could 'cook' for me lolz)

he was a contractor in the northeast, so in the winter work would slow. his grandparents had left the brothers a place in florida. he and my friend would go down in the late winter/early spring (once the kids were grown) for a few weeks until things warmed up/thawed out in nj. one year they returned home on a sunday night and overnight it turned frigid cold. monday morning he told melanie "pack back up" and they were headed south again for the rest of the month. just like that. i sure am going to miss that guy....

Share this post


Link to post
Share on other sites
Ads by Google:


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

0

  • Forum Statistics

    • Total Topics
      108,966
    • Total Posts
      943,697
  • Member Statistics

    • Total Members
      67,276
    • Most Online
      3,093

    Newest Member
    Beth N
    Joined
  • Popular Now

  • Topics

  • Posts

    • Me too. I still get transient lower back pain occasionally when my bladder or colon is full. It goes away immediately on voiding. Regardless of anything other diseases you may have, being wheat free gives you relief so even if not Celiac you are Non Celiac Wheat Sensitive. There are over 200 symptoms that are improved with GFD gluten free diet. Google it. It is an impressive list. In any case, while it is good to have a diagnosis, there is only one treatment, do not eat wheat and deal with the inevitable malnutrition damage.(think Biafra babies 1970.) Most will improve over time. Whatever doesn't improve should be investigated to be safe, but realize that recovery may take years. Wheat flour used should be limited to Paper Mache sculpture and library paste.  
    • Here is a partial list of what I no longer suffer from as a result of not eating wheat. Some like the sleep apnea and gerd and back pain and addiction to alcohol were almost immediate. The foot pain is improved to just numbness sometimes. My long term depression went away when I added vitamin D 10,000 iu a day for a year, but the improvement started almost immediately. Muscle tone and energy improved when I added iodine. one sheet sushi seaweed a day. My Fibromyalgia is controlled with 15 mg oral Prednisone a day. I remember as a kid waking up and having to pick the dried mucuos off the roof of my mouth. That is gone and for the first time in my life I am a nose breather. Drink lots of water to help with the mucous if it is thick. Some mornings mine is like rubber cement. I need to quit smoking now.  You can improve have faith, but healing takes time. Stay the course. A Romaine lettuce salad everyday helped the gut pain. Gerd shortness of breath sleep apnea back pain snoring prostrate hypertrophy contact lens protein buildup night vision improved cataracts reduced head hair growth foot pain sleeping no more than 2 hours at a stretch slow healing no energy. Pretty much bed ridden. 
    • Celiac Disease is damage to the nooks and crannies in our intestines leading to malnutrition, vitamin deficiencies with all the various symptoms that make it so hard to diagnose. Then you add years of the antacids, antibiotics, Tylenol, opioids, alcohol, etc., each with their own particular side effects and damage. Now you've got a toxic environment that kills off the beneficial bacteria increasing malnutrition. Theoretically you can eat anything except gluten. But wheat is so ubiquitous in our diet and economy there are unlimited opportunities for cross contamination. So read the label. Use common sense. If there isn't a label it doesn't have wheat so you can eat. Big Food likes to add wheat to everything because it is addictive and helps them ensure you can't eat just one. Why on earth else would Campbells Tomato Soup have wheat listed as an ingredient? Meantime your body is in distress from malnutrition so you need to be sure to replenish D3, and Iodine for starters and treat and support any other symptoms while you heal. Good nutrition without wheat is the only way to stop progression. And just like chewing paint chips made with lead is bad, so is food with wheat.   well said, doesn't need a label.
    • We use pure cherry juice with our snow cone machine. Makes for a nice dessert after dinner.
    • Hi Kurasz, How's it going?  Any change for the amazingly better?  Or slightly better?  
      If not, hang in there, and keep praying! :)
  • Upcoming Events