Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Sulfite Allergy?


weeza

Recommended Posts

weeza Newbie

My Dr said I am now allergic to sulfites. I was just getting use to gluten-free living but after a few problems with different foods, wine, gluten free salad dressing, grapes etc. The thing is I didn't have most of the symptoms like headaches. I did have scratchy throat, but the main think is after having some things like red wine, I would throw up like I had food poisoning. I could not find this as a symptom. Is anyone out there with sulfite allergy and have you heard of this as one of the symptoms? I am just wondering if there is something else in these same foods that could be the cause.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa16 Collaborator

Hi weeza!

Yes I have the sulfite/ sulfate allergy too. I get a bright red, hot and raised rash on the face, neck and chest. If it is bad I can get swelling of the joints (mostly wrists and ankles) and lips/ tongue and throat (I bet your scratchy throat is the beginning of this.) It can also cause some nausea, which might explain the vomiting. In addition, it causes me photosensitivity in the extreme and "hot flashes." It can be a dangerous and severe allergy.

Here is what else to avoid:

balsamic vinegars and other vinegars made from grapes (wine grapes are treated with sulfites to prevent a kind of wilt or rot they get)

all wines and champaigns (first no beer-- now no wine!) and some liquers

dried fruits treated with sulfates/fites (apples, bananas, pineapple, raisins, apricots, etc.)

all foods processed with sulfites, including metabosulfites and biosulfites. This will appear in lots on condiments, snackfoods and lunchmeats. Even some candy and yogurt and cheese.

I must avoid egg yolks.

and, of course, no sulfa-type antibiotics. These are what got me first. The rest followed. Doctors swear they are not related, but I am not so sure. The reaction is too similar. There are also a number of medicines which contain a sulpher molecule (like diuretics, arthritis meds and certain blood pressure medicines.) I cannot tolerate these either.

You may also find you cannot tolerate topical sulfates/fites, such as SLS commonly found in shampoo. I know of brands that do not have it.

Also... please do not be surprised if you discover you cannot have nitrates/nitrites either. Or MSG. I have all of these and they seem to "flock" together.

Good luck!

Lisa

weeza Newbie
Hi weeza!

Yes I have the sulfite/ sulfate allergy too. I get a bright red, hot and raised rash on the face, neck and chest. If it is bad I can get swelling of the joints (mostly wrists and ankles) and lips/ tongue and throat (I bet your scratchy throat is the beginning of this.) It can also cause some nausea, which might explain the vomiting. In addition, it causes me photosensitivity in the extreme and "hot flashes." It can be a dangerous and severe allergy.

Here is what else to avoid:

balsamic vinegars and other vinegars made from grapes (wine grapes are treated with sulfites to prevent a kind of wilt or rot they get)

all wines and champaigns (first no beer-- now no wine!) and some liquers

dried fruits treated with sulfates/fites (apples, bananas, pineapple, raisins, apricots, etc.)

all foods processed with sulfites, including metabosulfites and biosulfites. This will appear in lots on condiments, snackfoods and lunchmeats. Even some candy and yogurt and cheese.

I must avoid egg yolks.

and, of course, no sulfa-type antibiotics. These are what got me first. The rest followed. Doctors swear they are not related, but I am not so sure. The reaction is too similar. There are also a number of medicines which contain a sulpher molecule (like diuretics, arthritis meds and certain blood pressure medicines.) I cannot tolerate these either.

You may also find you cannot tolerate topical sulfates/fites, such as SLS commonly found in shampoo. I know of brands that do not have it.

Also... please do not be surprised if you discover you cannot have nitrates/nitrites either. Or MSG. I have all of these and they seem to "flock" together.

Good luck!

Lisa

weeza Newbie

Oops, I am still learning how to reply. Lisa thanks for your advice. After I posted the original post I did find a couple sites that talk about vomiting. Your list is much more complete then most I could find. Just getting use to gluten free but now giving up balsamic vinegar, well life is just cruel :D .

debmidge Rising Star

With Sulfa allergy one more item to watch for: anti biotics and anti-inflamatory precriptions such as Celebrex or Daypro.

Lisa16 Collaborator

Yes-- celebrex (given to me for "arthritis") nearly killed me. The reaction to drugs is more severe than the reaction to foods containing sulfites. I suppose it has to do with the concentration.

The best way to check a medicine is to look it up online and find the chemical formula or molecular structure. Lots of times Wikipedia or the manufacturer will post it. It you see a sulfer molecule there (an S), especially one hanging out by itself on an end, then avoid it if you can. It is a serious allergy-- it can kill you.

What is really interesting to me is that a doctor will tell you that there are lots of sulfer atoms in our bodies and that they occur in many foods naturally (like egg yolks). I think they really don't understand how the food part of the allergy works very well. I think there are a lot of things they don't understand very well.

I am sorry weeza-- once you start eliminating processed foods llife gets even harder. But you can console yourself by thinking how much healthier you are eating.

If you have the nitrates allergy, then most lunch meats and tv dinners are off the list too. Not to mention a ton of other medicines, including laughing gas from the dentist. :lol:

Lisa

ive Rookie

Lisa, you said you do not eat egg yolks. Can you eat other food that contains natural sulphur, e.g. cabbage, cauliflower, onion, garlic, etc?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lorka150 Collaborator

I have a sulphite sensitivty; it makes me feel quite sick, like I am going to throw up, I get a rash. Perhaps it is an allergy, but I just stay away from everything that is processed.

I am also severely allergic to sulfa, the drug, but they are NOT related. They are not made from the same ingredients and are not in the same family. If you have a problem with both, then it is a coincidence.

Organic wineries use LESS sulphites in the process of their wines, which may be tolerable for you.

Lisa16 Collaborator

ive-- I avoid those foods too. I can't do cabbage or cauliflower, and limit onions and garlic. I do use onions and garlic in cooking, but I always regret it after. The symptoms with those foods are more gastrointentinal in nature (yolks too)-- they do not produce a rash like eating dried fruit does or using a vinegar made from grapes. I don't know why. I suspect that it has to do with concentrations.

Lorka--

right. Doctors say they are not related. However, the symptoms in my case are very similar for wines, vinegars and dried fruit especially-- rash and swelling. It makes me wonder.

I wonder if there isn't a kind of sensitivity to the actual sulfer molecule itself that they just don't understand. Maybe it has more to do with how the molecule is constructed (ie how available to S molecule is for absorbtion?)? I don't know, but I suspect it is something like this. Maybe it is a question of balance-- like the body can metabolize so much at a time and if you get more in your system than the body can handle, then it tips a scale of some kind and you get a reaction.

I have reacted to organic wines too :( But thanks for the suggestion.

Lisa16 Collaborator

I found this information from about allergies.com. I have pasted the relevant parts below. What is fascinating is the lists of foods, together with the parts per million data. I feel it confirms my theory about concentrations.

Quote:

Less is known about hives/swelling and anaphylaxis as a result of sulfites, although various cases have been described in which the consumption of sulfite-containing foods/beverages leads to severe allergic reactions. Some of these people even had positive skin tests to sulfites, suggesting the presence of allergic antibodies to the preservative.

Other people have experienced severe reactions from sulfite-containing medications, including intravenous drugs and inhaled medications. These reactions included flushing, hives and a drop in lung function as a result of the medications being given.

Sulfites do not appear to be a culprit in people suffering from repeated episodes of anaphylaxis of unknown cause, are not a risk for anaphylaxis in people with mastocytosis, and appear to present little to no risk for people without asthma and without atopy.

It

  • 1 month later...
fortunafelidae Newbie

I'm also allergic to both sulfites and sulfa medications. Just thought I'd throw that out there.

That, and avoiding instant potatoes of any kind is a great idea, for the original poster.

Lisa16 Collaborator

Interestingly enough, the web site I quoted from does in fact link the two allergies.

I would be very interested to know what percentage of people have both out of the antibiotic-sensitive population. I would guess it is on the high side.

chasbari Apprentice
I'm also allergic to both sulfites and sulfa medications. Just thought I'd throw that out there.

That, and avoiding instant potatoes of any kind is a great idea, for the original poster.

Lots of instant potato mixes have wheat flour in them as well. Go figure..

CS

  • 3 years later...
koz158 Apprentice

Funny story, I think that my wife has a sulfite allergy as well. Recently picked up the Apple Cin gluten-free Chex and she had 3 bad days until (we couldn't figure out why... nothing else in our routine had changed) so did a little comparison between the gluten-free chex and the only think that was different was the sulfites (for the apple I assume).

ida pachinsky Newbie

Just thought I'd thrown in my two cents.

Everyone seems to say that sulfa (medication) and sulfite allergies are two seperate animals.

I grew up in the 1950's and got a lot of sulfa. Later dx. with celiac and now a vicious sufite allergies complete with tongue swelling and open sores on my legs.

Anyway- spoke to my brother's daughter.

she cannot have sulfa - and only took it for a short time when she did. Far different from my expereince and she too can not have sufites. Sounds very genetic to me. And it sounds as if the docs are repeating what they heard in medical school. Repeating, not thinking. sulpher is sulpher, you can make it into any number of substances, but it is the same S with the same atomic weight. It only combines so many ways. Dhuh. Anyone take high school chemistry?

14 hours after eating something, or a combination of things, my legs ooze with open sores and I make a very quick trip to the loo. It wants out of my body.

My downfall was confectionary sugar, corn starch in home made chinese and puddings, and store bought frozen french fries. But the red wine diagnosed it.

I recently wrote another thread on abating sulfite eczema with vitamins. Still can't eat sufites.

There has to be some relationship between celiac and sulphur. Too many people are blogging on this issue to be random. I am sure it is a sub set of our population, a large sub set. Ida

  • 6 months later...
jeanniebell Newbie

I have reactions to sulfur dioxide, sulfites in wine & sulfa type medications. I get more or less the same reaction with the sulfur dioxide and sulfites - itchy, annoying little bumps/hives all over my torso. My reaction with sulfa medications however was on my face and way worse (maybe due to the concentration). I had red blotches all over my face that hung around for several weeks. I avoid all sulfur dioxide and sulfa medications but I still drink wine once in awhile because I can tolerate that. Some kinds don't bother me at all, others will leave me with annoying little hives for a few hours then go away. So, I tend to stick to the brands of wine that i know won't don't cause me any trouble. Organic/bio-dynamic ones are often best.

My niece is also allergic to sulfa type medications (she had the same rash on her face as I did) and my mother will turn beet red if she has a glass of wine.

jhol Enthusiast

this is a really interesting thread

i know im having problems with food but just cant figure out what it is . have been diagnosed neg for celiac. from the moment i had my first alcoholic drink, i knew i had a problem with it! obviously couldnt tell my parents- coz then they,d know id been drinking lol . so i just put it down to me just being odd . i have been covered head to toe in a red rash from drinking scrumpy jack cider. !! coz of this ive never been a big drinker- it made me feel breathless, and my face feel tight - i could feel myself gettin hotter and hotter,and get an annoying tickly cough.

a few years ago i had an allergic reaction to an antibiotic - amoxycillin dont know if this is connected to sulfites or not.

ive also got a rash on my face that im trying to figure out whats causing it. and sometimes feel that my tongue has got too big for my mouth.

i also had a problem with my eyes - that i thought was conjunctivitis, but it was suggested it was scleritis. because of this i looked into my makeup and stuff and thought it was my bubblebath ( i liked to lie under the water) and thought it was probably the sodium lauryl sulfate which ive tried to avoid ever since.

does any of what im saying make any sense im kinda just thinkin out loud - its just flicked a lightswitch on for me

any imput would help me make sense of this thanks....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,548
    • Most Online (within 30 mins)
      7,748

    Lunaluv
    Newest Member
    Lunaluv
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.