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azmom3

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by azmom3

  1. azmom3
    My son was diagnosed with EE 2 months ago when he was 26 months old. He did not have elevated eosinophils in his blood and his esophagus looked good during the endoscopy, (other than GERD damage), but the pathologist found way too many eosinophils in his esophagus when reading the slides. If prevacid is NOT working, that is a big sign that it could...
  2. azmom3
    PM me and ask any questions you want. I'd be happy to help. I just don't check this site as regularly now. The best information I have found so far is at www.apfed.org. It's a website dedicated to eosinophilic disorders. Also, Cincinatti's Children's Hospital has an eosinophilic center there. They are the leading researchers on this. Our son is on...
  3. azmom3
    Please also read up on eosinophilic esophagitis or other eosinophilic disorders. My son's high IgG was what led them to take biopsies and diagnose him with this after over a year of problems.
  4. azmom3
    You're describing my oldest son when he was a baby. He projectile vomited after just about every feeding. We used bath towels instead of burp cloths and it would shoot out across the room. I breastfed exclusively for only 10 days, then started supplementing because he would scream non-stop, vomit what he ate, fussy all day, etc. We supplemented until about...
  5. azmom3
    A few things I forgot to mention. First of all, celiac is much more likely as it occurs in 1/133 people. EE is fairly rare (1/10,000); however some have called it a mini-epidemic as it's being diagnosed a lot more often over the past 10 years. Secondly, most doctors have never even heard of eosinophilic esophagitis and wouldn't even know to look for it...
  6. azmom3
    The diet should give you better answers than any test, but it may take a little time for some of the symptoms to improve. Also, you mentioned GERD...is he taking medication for this? If so, has it helped? If he is taking medication and it's not improving the symptoms and/or you don't get the results you're looking for with the gluten-free diet, please...
  7. azmom3
    The diet should give you better answers than any test, but it may take a little time for some of the symptoms to improve. Also, you mentioned GERD...is he taking medication for this? If so, has it helped? If he is taking medication and it's not improving the symptoms and/or you don't get the results you're looking for with the gluten-free diet, please...
  8. azmom3
    How did you find out you're IgG delayed allergic? And what exactly does that mean? That you react a couple days later instead of within hours? We had SPT and RAST for our older son and both came back positive but on the lower side. Our daughter just had RAST and was class 3 to wheat. Thanks for your help!
  9. azmom3
    You'd think I'd know this by now, but is it possible to have celiac disease and not be allergic to wheat? I understand celiac disease is an autoimmune disease, not an allergy and I realize you can be allergic to wheat and not have celiacs, but I'm curious if all celiacs are also allergic to wheat if tested by SPT or RAST or if their chances of being allergic...
  10. azmom3
    This is how I understand it, too. But from what I understand, a person may see that wheat is a trigger, but not all gluten, if that makes sense? They could find out eventually that all gluten triggers EOS as well, but I don't think it automatically means that....again, this is just the way that I understand it so far.
  11. azmom3
    Sorry I'm just getting back to you on this. I talked to my friend again about the double-jointed / miscarriage correlation. She said that double jointed people have thicker blood adn as the pregnancies moved along, the blood would get too thick which would result in losing the baby. They put her on a blood thinner and next pregancy (after I think 7 losses...
  12. azmom3
    Please look up the symptoms for eosinophilic esophagitis. It mimics GERD, but does not respond to medication. Other symptoms include failure to thrive, diahrrea, vomiting, etc. Most people diagnosed were originally seen for possible celiac and/or GERD.
  13. azmom3
    Thanks Ursula! What I don't understand though is that it's not just food allergy. It can be from environmental allergies as well. Plus, from what I understand, you can have non-allergy foods trigger your EE and allergic foods not trigger it. What we've been told is to start on the elemental formula only for a minimum of 6 weeks to give the esophagus...
  14. azmom3
    He's 10 1/2. What you said about low IgA is exactly how our dr's described it...said it would be closer to o.
  15. azmom3
    CAn you explain this to me or give me some links that explain the connection as I have been unable to find anything showing this. I'm not saying it's NOT connected either...I would just like something to have the confidence that it is and/or be able to bring to my doctors. Our allergist is phenomenal. We like him and trust him and I would feel very comfortable...
  16. azmom3
    I'm not sure what the first IgE is for...that's all it says....it is below the foods he was allergic to so not sure if it has to do with that or not. He showed very mild, class 1 and class 2 allergies to wheat, corn, soy, peanut, and almond. This is his second blood test for celiac in about 3 months. The first one was negative but his IgA was a little...
  17. azmom3
    The nurse told me our son's IgA was over 100. I picked up the report and it's actually the IgG that's over 100. Here are the numbers. What do you think? IgE 522 - reference range 0-85 Immunoglobulins quantitative IgG 1021 - reference range 821-1835 IgA 47 - reference range 64-246 IgM 54 - reference range 46-368 Gliadin Antibody Panel...
  18. azmom3
    Thank you! Any ideas what other conditions it could be? Do all auto-immune diseases cause you to have high IgA or just certain ones? I felt pretty sure it was celiac for the last several months, but I've been doing so much research that I'm driving myself (and everyone else) crazy diagnosing everyone with something! And we will try the gluten...
  19. azmom3
    My 10 year old just got his blood test results back and the nurse called and said his IgA was over 100 and it's supposed to be less than 11. She's new and didn't sound like she knew what she was talking about, couldn't answer any of my questions, etc. I haven't seen the tests yet to verify all the numbers. I can't remember which numbers mean what, but...
  20. azmom3
    Thank you! I pulled it up and it looks pretty good...I like the idea of the built-in ice. I'm curious to see what everyone else is using, too. Thanks again!
  21. azmom3
    I'm just wondering if we have to take our food with us everywhere, what's the best way to do this? Is there something better out there than the typical school lunch box and if you ever bring hot foods with you, what's the best thing for that? What about icepacks...are some better than others. We have always just bought cheap ones for school lunches and I...
  22. azmom3
    You might also want to read up on eosinophilic esophagitis. My 26 month old was just diagnosed with this after a year of problems. His symptoms were failure to thrive, (17 pounds at 1 year and 20 pounds 12 ounces at 2 years), constipation, asthma, chronic sinus infections, and hives (which got under pretty good control after being put on zyrtec). The doctor...
  23. azmom3
    With all your food and environmental allergies, I would definitely look into it if I were you. I'm telling anybody with lots of allergies to ask their dr about it. It can't hurt to ask, right? But it can certainly cause problems if you don't know you have it. The older you get, the more problems you can have....choking, etc. We had already removed things...
  24. azmom3
    My 2 year old had his endoscopy on Wednesday, looking for celiac and/or eosinophilic esophagitis. The dr. said it does not appear to be celiac (but I realize this doesn't mean he doesn't have it for sure, especially with his age), but that he DOES have eosinophilic esophagitis. We are doing the gluten free diet anyways, although our son will most likely...
  25. azmom3
    My little guy is now 26 months and is the size of a 1 year old. His IgG was the only high one on the celiac panel. Both our allergist and pediatric GI doctor, (who's very knowledgeable and came highly recommended for dealing with celiac), said that it could be celiac, but that it could also have something to do with allergies. We had lots of allergy testing...
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