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Helena

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Helena

  1. Helena
    I have celiac and allergies too (including life threatening nut allergies), so I understand the problem here. I wish I could have Bob's Red Mill--the last time I called, their manufacturing practices didn't sound safe to me (on account of possible tree nut cross contamination). Have you seen EnerG flours? You might check out their website---it sounds...
  2. Helena
    I had a gastroscopy done about 1 week and a half ago. The resident doctor (my doctor was instructing) took biopsies of my esophagus, stomach, and small intestine (the celiac test won't tell me much though because I wasn't able to eat enough gluten prior to the test and I've been gluten free for awhile). When I look at the list of 'complications' on the...
  3. Helena
    re: the egg allergy. it is possible you are not allergic. both the skin prick tests and the RAST (blood) tests have a high rate of false positives. And a high positive doesn't necessarily correlate with a strong reaction. (That's why the tests need to be interpreted by an allergist with reference to the patient's medical history.) If you don't react to...
  4. Helena
    I had this problem! I seriously was toting a mini Coleman cooler around. I have a lot of allergies on top of celiac, and I can't have raw fruits and veggies either . . . I cook everything from scratch, and everything needs to be cooked, so my food needs to be kept cold or hot! I'd recommend one of these: Open Original Shared Link I've only used mine...
  5. Helena
    Bit of a delayed response here, but that is great to hear loco_ladi. Back in the days when I had my own apartment, I did cook gluten free for friends. One of my friends who has been a great support through all of this really enjoyed our meals together when she was staying for the weekend---given my limited diet, I thought it was pretty funny that she...
  6. Helena
    Hey Stefanie-Anne and helpme, I used to live in Toronto . . . rent is expensive in the Toronto area! Stefi Anne -- That is a *lot* of health issues to deal with! If you haven't already made an appointment with your school's equivalent of "disability services," I'd highly recommend doing so. That way if anything flares up, you don't need to worry...
  7. Helena
    Yep, I agree that it can be awkward to ask others to be hypervigilant unless they are close family or friends. If there is going to be gluten, serving something requiring utensils makes sense. And I can relate to the whole idea of a home as a 'safe haven'. It is nice not to be able to relax and not to have to be super aware of things.
  8. Helena
    My parents believe that I have celiac . . .and they aren't at all embarrassed to tell people the know that I can't eat gluten because of celiac . . . they have an issue with inviting people over, serving gluteny things, and then asking them to contain the gluten. While it seems necessary to me to do so when the guests in question are close family and friends...
  9. Helena
    Thanks for all your responses. I certainly have a lot to consider here! It will be much easier to deal with this issue when I'm back out on my own again. To answer Ursa Major's question---I do nearly all of my own cooking, and my parents mostly eat a separate meal, although if they happen to be having something I can have, they share. And I often...
  10. Helena
    My household isn't gluten free, but we have anti cross contamination guidelines in place. . . except when there is company for dinner/dessert/tea/whatever. I'm wondering how those of you out there who do not have a gluten free home deal with guests-----do you not serve gluten-containing foods or do you ask them to avoid the gluten free counter and wash...
  11. Helena
    Great ideas in this thread! I have in the past cooked in advance . . . would work for trips that aren't too long. I had never heard of mini freezers . . . that is a great idea. I will file that one away for when I have a car with an outlet! One more suggestion for the OP---you've probably thought of this, but when I go visit relatives and have to use...
  12. Helena
    Mamaw, thanks for the warning. I certainly don't want to cause a fire. . . .the indoor grill probably isn't such a good idea. The cord is really thick . . . it uses a lot of power. The only other option I would have is to cook meat in the microwave . . .which I suppose could be done (I've just never done it before.) (I don't eat canned meat or luncheon...
  13. Helena
    I have major issues with travelling also (multiple food allergies + celiac.) Sometimes it is hard to find a place with a kitchenette. I've recently bought a few appliances to take with me on the road which will turn a place with a microwave and bar fridge into a kitchenette (may have to hide electric appliances from hotel staff, though)! I bought a Sanyo...
  14. Helena
    So the disability office will provide a note taker for the days that you have to miss, but the prof. won't let the notetaker in the room?? That really isn't fair. Seriously, in the universities I'm familiar with, the profs *have* to provide whatever accomodations the disability office deems necessary.
  15. Helena
    Wow--that sounds like a bad system. The instructor of the course doesn't have the expertise to know what accomodations are needed . . . that should be the job of the disability office! It's good, though, that you can retake that math class.
  16. Helena
    I didn't look through all the replies on this thread, so some of this may be repetitive, but I'm pretty sure that the disability office is supposed to set some guidelines for the profs----it shouldn't be totally up to the individual profs. I'd suggest scheduling an appointment with the office to see if there is some way you can make the office work better...
  17. Helena
    Hi, I am dermographic also---and have been so my whole life. My allergist tested for this by taking a tongue depressor and scratching my back with it. (I already knew what would happen LOL!) I don't have a severe case --- I just get hives if my skin is scratched . . . I don't have problems with pressure on my skin or anything. And the hives don't...
  18. Helena
    Hi annie-is-gluten-free! I haven't been online as much lately--have been busy . . . So my response is kind of late, but I do appreciate the input! Hmmm . . .passive aggressive. Well, yeah, I guess in relation to food issues and allergies I tend to deal with things kind of indirectly sometimes. . . Yes, dealing with the issues up front and all...
  19. Helena
    Hi chocolatelover, Thanks for that link---it is very useful to have "official" info. to pass on to friends and family. It is really important to avoid cross contamination---I don't think the recommendations on that page are controversial at all. I did get some of this info. from an "official" source---the dietician my GI doctor referred me to gave...
  20. Helena
    Nancy--thanks for the idea. Don't think my mom will go for it, though . . . she won't want me to stick anything on the new cupboards. I've been sticking a towel in a dish in my gluten free cupboard . . . and changing it frequently. Crumbs in the butter! Yikes. Blatant crumbs are definitely not good! I think you really put your finger...
  21. Helena
    I used to eat any type of rice, but now that I eat so much rice I've become picky. I really like Lundberg's (from California). I've become a bit of a food snob. Maybe that's not such a bad thing!
  22. Helena
    Noglugirl, Sorry to hear about your home situation. That sounds difficult. Would it help do you think to get a dr's note and give them some literature on celiac? I wouldn't exactly say that I'm stuck here against my will. I'm mooching after all. And I'm very grateful that my parents took me back . .. they were glad to have me back. Can't say the same...
  23. Helena
    Joanne, I agree---positive blood tests . .. or even simply a positive dietary response to the gluten-free diet are enough to claim the 'celiac' label. As for me--I never did go through with the biopsy, but I had a positive tTG test when on a nearly gluten-free diet and a more positive tTG + positive antigliadin test after a gluten challenge. My doctor...
  24. Helena
    Thanks for the suggestions, everyone. If I feel strongly about something, I might initially get eye-rolling on some things from some people, but my family will accomodate me. i.e. though she thought my request was "ridiculous" my sister said she would wipe her glasses on the hand towel in the kitchen instead (which I don't use). What bothers me is that...
  25. Helena
    I've been having some issues with gluten-eating family members lately. They try to be supportive, and I have my own gluten-free counter, etc. I'm kind of a pain to live with because in addition to celiac, I have several anaphylactic allergies + other allergies + I've been diagnosed with a latex allergy. I do my own cooking, use my own latex-free gloves...
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