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Latest Celiac Disease News & Research:
Everything posted by kenlove
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ARCHIVED Tortillas?
kenlove replied to C-Girl's topic in Gluten-Free Foods, Products, Shopping & Medications
just tonight i tried a udis spinach tortilla what was pretty good. Also like to mission and reeses corn ones. -
ARCHIVED Green Drink Free Of Wheat Or Barley
kenlove replied to Jackie M 89's topic in Gluten-Free Foods, Products, Shopping & Medications
I agree, with luck eventually you can do it yourself or get a friend to help you do it. the difference is really worth it good luck! -
ARCHIVED Green Drink Free Of Wheat Or Barley
kenlove replied to Jackie M 89's topic in Gluten-Free Foods, Products, Shopping & Medications
I have trouble with any of the green drinks with wheat or barley. Many people say they are gluten free but i've been sick too many times to believe that. Its too easy for the protein molecules to transmutate to the grass. SO, what you might like the best is to forgo the powdered mix and take the time to make it yourself. get a vitamix or omega or juiceman... -
Been working on Kauai again and today went to Sweet Maries Restaurant in Lihue. Great gluten free menu. Marie Cassel is Celiac and only serves gluten-free foods and baked goods. She is well known for brownies and muffins which are sold all over the island. I had polenta in marinara sauce which was all home made and amazingly good. Ken
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ARCHIVED Figs Dusted With Flour To Prevent Sticking!
kenlove replied to BelleVie's topic in Gluten-Free Foods, Products, Shopping & Medications
i eat a package of dry figs a week form many difference sources and never had any problems. The white is nature sugars when the figs dry.I have heard on the past that wheat starch might be used but have talked to producers in Greece and Turkey who say no. I consider myself very sensitive ( will cross the street to avoid being near a bakery door being open... -
ARCHIVED Ramen
kenlove replied to lungy's topic in Gluten-Free Foods, Products, Shopping & Medications
there are a lot of other gluten free noodles popping up around Japan. Wheat allergies in children are growing at an alarming rate. The sorghum pasta is nice and ramen like fettuchini made from millet is great. ive had most of them and still like the juwari soba the best. -
ARCHIVED Ramen
kenlove replied to lungy's topic in Gluten-Free Foods, Products, Shopping & Medications
it is pretty easy to make yourself once you get a good miso made with rice and not barley. I've been desperate enough to use gluten-free spaghetti noodles with miso. once you get your own broth you gonna really enjoy it -
ARCHIVED Can Celiac Cause Heart Problems?
kenlove replied to kellysensei's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
My doc has been trying to figure this out for more than 7 years. My heart problems started after I got celiac in my 50s. They have tried to figure out why i have both atrial fibrulation and a flutter. ive had to have cardiac ablation which helped a lot but now its 3 years later and have some of the same problems. Just took back the monitor yesterday... -
ARCHIVED Ramen
kenlove replied to lungy's topic in Gluten-Free Foods, Products, Shopping & Medications
i've missed ramen for 9 years. sadly its one of the most dangerous things you can have as celiac as most ramen is made from pure wheat. What you need to find is juwari soba which is pure buckwheat noodles. I make miso ramen often but use the soba instead. after awhile you'll like its flavor better. That said, you have to make sure its juwari or 100... -
Old thread but new topic. New restaurant in Waikaloa Village, Pueo Osteria has a great selection of gluten-free on the menu and the staff is very aware of our needs. Chef Jim Babian the owner is always willing to work on special requests if there i enough warning.
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ARCHIVED Eating Gluten Free In Puerto Rico
kenlove replied to Shady Grove's topic in Traveling with Celiac Disease
i've stayed at friends and in resorts there. The best thing is to talk to the chef at the hotel your staying at. They did a great job for me at El San Juan and at the Wyndam. good luck -
nothing really surprises me anymore with these allergies. We've added so many chemicals and hormones to what we eat that its just a matter of time before we start dropping like flies. supposed to be down under in march sometime but will stick to the fruit while there. This 80 -10-10 diet by doug graham seems to give my gut the least stress.
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amazing-- they told me mine was from the animal protein molecules scraping the walls of my blood vessels throwing me into A-Fib. I think in almost 5 years since i went vegan I cheated maybe 5 times. Sunday I ate a drumstick form my wifes chicken -- went into a fib with a loud pop at 248 am and have problems ever since. See the cardiologist tomorrow...
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hard not heard about the tick -- guess Texas seems an appropriate place to find it ..
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ARCHIVED Is It The "g Word?"
kenlove replied to Starving Amy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
tokyo is a great place to work. had a place there for 30+ years. I used to have ramen everyday for lunch. back to the office and then pass out until 3. my partners laughed about it. Now I make the same recipe with juwari soba which you can get in grocery stores there. Juwari is the key. the food allergies are increasing greatly in Japan. especially wheat... -
thanks, i'll check the link, i cant eat any meats without getting heart problems. The stomach acts up but its my heart that goes out of whack when i have any form of animal protein. I was in a clinic for 6 weeks before they figured it out.
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i cant handle any meats, my wife made organic chicken the other day and i was up most of hte night from it. Felt like I had that alien growing inside me..gonna stick to fruit until i sort this out and can do a soy challenge
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ARCHIVED Is It The "g Word?"
kenlove replied to Starving Amy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
thanks, I trained as a chef in Japan and got spoiled. It was hard to give up udon -
my allergy to animal protein is pretty bad, just tasted my wifes chicken last night and was sick pretty much most of the night with heart trouble. the animal protein throws my heartbeat into a fib and/or a flutter
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Thanks much, I do have to do the soy challenge. So far the only reaction seems to be heavy sweating and urination. no soy and it seldom happens unless I have tomato after 4pm. Thanks much
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ARCHIVED Is It The "g Word?"
kenlove replied to Starving Amy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, with reference to the Japanese noodles, Udon is always wheat soba is usually buckwheat in japan but 99& of the time contains a percentage of wheat and not soba. If you can get juwari soba at some healthfood shops, thosse are ok. Ramen, saimen are all wheat good luck -
same here, I'm celiac and vegan so soy is a major part of what I can have. Will just have to try to work it out
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Has anyone read anything on the number of celiacs that develop soy allergies after the celiac? After 9 years celiac I seem to have problems everytime with soy products like tofu. thanks
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ARCHIVED Garbanzo Beans
kenlove replied to Brave Jane's topic in Gluten-Free Foods, Products, Shopping & Medications
same here - have had garbanzos from dozens of companies and other than salt and water i've never seen any other ingredients in the cans of plain beans. I am rather sensitive and never had any reaction from them. -
ARCHIVED Hospital Meds
kenlove replied to kenlove's topic in Gluten-Free Foods, Products, Shopping & Medications
sounds like the waiter at a thai place here. I tried to tell him no flour so we took the flower off the table. A few years ago at the hospital here I tried to exlpain a celiac vegan diet so the kitchen sent me a tuna on whole wheat.. they just dont get it to even bother to try sometimes.