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KarenLee

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by KarenLee

  1. KarenLee
    THANK YOU so much! That list is great!
  2. KarenLee
    I am traveling from Texas to Chesapeake, VA. This may be a long shot, but can anyone give me any direction/ideas for a good place to shop/restaurants to go to? Thank you! Karen
  3. KarenLee
    I am somewhat new to all this as well, but it sounds like a visit to a GI that has experience with Celiac and Gluten intolerance would be your next step. Your fatigue, and some other symptoms I had also. I am gluten intolerant and now those symptoms are gone since my going gluten free. I am sure someone will give better explanations/advice soon. Good luck...
  4. KarenLee
    Yes, I did. Sorry, I am on the computer more during the day than at night... Thanks again
  5. KarenLee
    I never really thought about getting a non plastic filter and that is worth looking into. We are on well water in Texas, hard water where we have to add salt to a water softener, blah blah blah. Yuck in my opinion, my husband doesn't mind it. SO I drink Ozarka bottled spring water, but do worry at times about the plastic. Nala is the dog and she is a...
  6. KarenLee
    Thanks, I was thinking the same of yours!...looks like they could be really good friends!! Is that Enterolab's Dr. Fine's DVD? looks worth buying...
  7. KarenLee
    YEs, this is true for me, as well. I have suffered from allergies since I was very young. Food, seasonal, animal, environmental, you name it. Now that I am older, and I pay more attention to what I expose myself to-putting it in my mouth or on my body. And I do notice that I am sensitive to MSG for sure. Household cleansers make my asthma flare up, too. That...
  8. KarenLee
    OK, I know someone can help. I can't belive I am still confused about this. EnteroLab told me that I am both genes gluten intolerant, do not have celiac genes. I have been gluten free since I found out(Oct.'06) and feel MUCH better. So, I told my sister to get tested(mother died colon cancer at age 49)so she (skeptically)went to Dr. in Dallas. test neg...
  9. KarenLee
    I found out through Enterolab that I am gluten intolerant and not celiac. I carry 2 of the G.I. genes. I have not gotten the biopsy because my Dr. said that I didn't need to if my blood test was neg. Plus, I do not have insurance... SO--- I am encouraging my sister to go to the Dr... She has an appt. tomorrow. She was wondering (and very skeptical) what...
  10. KarenLee
    THis is all such great information and advice, thanks so much. I don't think I could go gluten-free without this support. (Well, I could, but it would SO much more difficult, with much more tears!) I am planning on buying Dr. Green's and Braly's books today, I hope it is at one of the "regular" book stores... Thanks again
  11. KarenLee
    Thanks a lot. that helps me feel better. It just made me cry when my DH said that I don't even have the disease and how in the world could a speck of wheat hurt me? He was in big trouble. Of course the kids were listening in. this was all after buying a new toaster just for me. Anyway, thanks again! Karen
  12. KarenLee
    It took just under 2 weeks for me. I got the gluten and gene test..only took 3 days for the package to arrive. I wasn't expecting it for another week, then one night I checked my e-mail before bed, and there it was! It was a shock, even though I knew what the results were... Good luck...
  13. KarenLee
    I am sorry, I bet this was answered somewhere, but my family is being insensitive to my going gluten free. If Enterolab test were pos., and I have gluten sensitive genes, but my blood is neg., then do I have Celiac? The blood tested antibodies for Celiac-none were found. I am confused. Maybe my family will accept it all more if I did say I have Celiac. I...
  14. KarenLee
    What does this part of the results mean? HLA-DQB1 Molecular analysis, Allele 1 0301 HLA-DQB1 Molecular analysis, Allele 2 0603 Serologic equivalent: HLA-DQ 3,1 (Subtype 7,6) I read the description, but still not sure. It says that I "do not posess the main genes predisposing to celiac sprue (HLA-DQ2 or HLA-DQ8), HLA gene analysis...
  15. KarenLee
    A long time ago, an allergy Dr. told me that alcohol enhances the allergic reaction. For ex.-when I ate corn chips(allergic to corn) and a margarita, I would get asthma. I would also like to know the very best way to get tested for food allergies. I know just by my own "testing" what I am allergic to, but I need an "official diagnosis", I guess. I...
  16. KarenLee
    My GI Dr. said that if my Prometheus blood test comes back normal(I hope to get results back tomorrow), then there's no need for a biopsy, that we will assume that I don't have Celiac. If it comes back normal should I insist on a biopsy, too? I have read that so many people have neg. blood tests, but had pos. biopsy results. Oh, I also sent in the test to...
  17. KarenLee
    My mother had mental problems(In early 70's, Dr.'s first said schizophrenia, then years later, manic depressive). At age 49, she died of colon cancer that had spread to her liver! Hmmmm..I wonder if she had Celiac all along!!?
  18. KarenLee
    Above, I said, ""Americans need to be more aware."" Sorry, This has been bothering me. Of course, this should say, The whole world needs to be more aware!
  19. KarenLee

    ARCHIVED Recommend A Doctor In You State

    KarenLee replied to a topic in Doctors

    Austin, Texas Dr. Craig Lubin Open Original Shared Link
  20. KarenLee
    Here is an article that someone on this site/board posted, and I can't remember who it was, or what topic, even! I'm telling you, I have such a foggy brain like this all the time, sorry... but here is the article she posted: (I happened to have copy and pasted it in an e-mail that I just sent to my Dad who has a wife with dementia...) Celiac Disease...
  21. KarenLee

    ARCHIVED Brain Fog

    KarenLee replied to DrMom's topic in Related Issues & Disorders

    I heard that on the news, but only caught part of the story, thanks for sharing that. I noticed that you used Prometheus for your blood work, so did I. How long did it take for you to get the results? Thanks, Karen
  22. KarenLee
    I saw on a major news channel a quick 15 second clip about how people with Celiac disease have a greater risk of dementia. I was getting the kids ready for school and didn't hear the entire piece...BUT, Too bad it didn't go into exactly what Celiac disease is--symptoms, etc.! Americans need to be more aware. I think is greatly underdiagnosed. Karen
  23. KarenLee
    Hi, I'm sorry about your sleep problems, hope this helps. This is just my advice that I would give a friend...I posted it on another board(topic) as well. This is a link to a site that can help with sleep problems as well as focus issues. She is a clinical nutritionist here in Austin(where I live) but you can be tested through the mail !!...they send you...
  24. KarenLee
    I have had the same pain, I am not Celiac diagnosed, but am waiting on Enterolab test and blood test(from my GI Dr.) results to come in. I frequently wake up in the middle of the night with stomach pain, and can't get in a comfortable position. The pain is in the center of my stomach area. I also will wake up with stomach pain, in the morning. I used to...
  25. KarenLee
    Hi...I am new, but my symtoms are not. I am 43, with many symptoms listed on other posts. A very good friend was diagnosed a few years ago and thought my symptoms sounded similar...I am wondering if I should just order the test from Enterolab- if that seems to be the test to order as the last step(because of false negatives w/blood). I have no insurance and...
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