
Rogol72
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Rogol72
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It's a shame the Dermatologist did not follow the correct procedure for DH biopsy. My DH initially appeared to be Eczema, but when steroid cream didn't clear it up, my Dermatologist immediately took a biopsy and DH was confirmed and subsequently celiac disease. Dapsone, which has its drawbacks will clear DH outbreaks up very quickly. With DH, you need to...
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Lots of neurological symptoms
Rogol72 replied to Pdawg's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I can confirm the white spots on the brain, little dots. Apparently also common in migraine sufferers. Had an MRI several years ago for what was thought to be a blood clot in the cerebellum, turned out to be a cyst. Had a repeat MRI a year later, no changes thankfully. The neurologist said the white spots were from my UC, but it is probably from UC and celiac... -
Thanks @knitty kitty, much appreciated! Here's an interesting testimonial on the efficacy of Thiamine in helping to treat SIBO for anyone who's interested ... https://www.youtube.com/watch?v=3oyHbpsMejg . The other aspect of SIBO which I've ignored is the role the MMC plays in clearing out the tiny leftover debris in the small intestine in between meals...
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Travelling to Orlando Florida from Ireland
Rogol72 replied to IrishCoeliacDad's topic in Traveling with Celiac Disease
Hey @IrishCoeliacDad, Fellow countryman here. I've heard anecdotally that some chefs add pancake mix to scrambled eggs and omelets to make them more fluffy. That's one to watch out for if indeed it does happen. https://www.findmeglutenfree.com/us/fl/orlando I'm sure someone else will chime in with better advice. Safe journey and enjoy... -
At one point my level was at 175nmol/L and my GP told me to back of the D3 supplements. Anything above 125 on this side of the pond is considered at increased risk of toxicity. Maybe I should be shooting for 125 all the time.
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Yes ... 101 nmol/L from my last bloods in November. I absorb/metabolise Vitamin D supplements efficiently, a few weeks of 4000iu per day and I'll be in the 140+ range, the sweet spot for me is about 1000iu daily. Dr. Amen's mantras are key. Dr. Robert Pastore, another advocate of restoring vitamins and minerals (and fellow Coeliac) also highlights the...
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Sure. This is why I focused on minerals ... https://www.youtube.com/watch?v=y2z9YXo-gnE . It made sense to me. It was a combination of diet and supplements. I wasn't consciously trying to fix my gum issues, they just recovered as a result of getting super focused on my health. First, I fixed my Vitamin D deficiency, my numbers are consistently...
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I've managed to reverse receding gums, not 100% but by a noticeable amount so it can be done. My teeth and gums have never felt stronger or better. I can't specifically put my finger on any one thing that worked, but I loaded up and macro, trace and ultratrace minerals. A sufficient mineral supply in the body allows the vitamins to work properly.
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I also have good oral hygeine but used to suffer from bleeding and swollen gums. I doubled down on a super clean (no gluten-free foods or grains) gluten free diet and eating lots of carrots, brocolli and other green vegetables ... Vitamin C rich veggies! I also focused on supplementing with minerals and B Complex. On occasion but not consistently I would...
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Nausea and fatigue almost all day
Rogol72 replied to itarachiu's topic in Related Issues & Disorders
That's great news. Credit to your determination to resolve your issues. I used to have pain in the bottom right quadrant at the junction of the Ileocecal valve when my UC was flaring, doctors dismissed it any time I mentioned it. I've read that inflammation and dysfunction with this valve can also cause SIBO. -
Nausea and fatigue almost all day
Rogol72 replied to itarachiu's topic in Related Issues & Disorders
Histamine is horrible, in the brain, sinuses, lungs etc. I've got it under control now, but I think I'll add ginger back into my diet. -
Nausea and fatigue almost all day
Rogol72 replied to itarachiu's topic in Related Issues & Disorders
@itarachiu, My naturopath prescribed the following two products for balancing the gut bacteria and getting on top of SIBO and/or Candida. Something similar might help you. Oregano, Olive Leaf, Garlic and Caprylic Acid are all good natural antibiotics. https://www.nutriadvanced.ie/candex-sibo-45-capsules.html https://naturesplus.co.uk/products... -
Intravenous treatment
Rogol72 replied to RuthWill's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I agree with trents, it is important to get control of ulcerative colitis as a priority. Nutritional deficiencies should be corrected as soon as possible, as it will help both conditions especially Vitamin D and Zinc. The body needs an adequate supply of vitamins and minerals to heal. With the malabsorption of celiac disease and blood loss of UC, that... -
Nausea and fatigue almost all day
Rogol72 replied to itarachiu's topic in Related Issues & Disorders
How are you energy levels on zero carbs? -
Hey @MiriamW. I'm going to hold off on the Fulvic minerals for the time being but thanks for letting me know about Victoria Health. I'm using Virdian Trace Mineral Complex and their Organic Mineral Complex. Incidentally, I was looking into the ingredients in the Organic Mineral Complex (I emailed them about the iodine content) ... one of them is Horsetail...
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@Ginger38 ... I agree with @Scott Adams and @knitty kitty about the AIP diet. I follow the AIP diet most of the time because I have trouble with nuts, seeds, gluten-free oats, dairy and nightshades. Dairy is just as bad as gluten for some Coeliacs. Eggs don't seem to bother me at present though. It's not a forever diet, just until your body heals, and your...
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Dr. Dinezza (another coeliac ND)... she explains in a 4 part video series the mechanism of histamine intolerance as it relates to mast cells in a visual manner, which is what I like being an engineer.
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Beware Shelled Nuts
Rogol72 replied to Ramncats's topic in Gluten-Free Foods, Products, Shopping & Medications
I was on a webinar last year by the Dietitian with the Coeliac Society of Ireland. A question was raised in the Q&A at the end of the presentation about the safety of plain frozen veg. I recall her saying that in the past flour was used to prevent frozen veg from sticking together, probably many many years ago but that's not the case any more. -
We're on the same page ... I was referring to fulvic and humic acid to educate myself about them, but subsequently if you or anyone has tried these trace mineral products ... https://www.traceminerals.com/. I believe the trace minerals come from ancient salt deposits in Utah (which may be polluted?). I use himalayan salt in food also, but never felt...
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@MiriamW, Just wondering, have you heard of Fulvic and Humic minerals? I've come across them lately in an interview with the founder of Beam Minerals ... https://www.beamminerals.com/ I also discovered a Canadian company called Activation products, the founder Ian Clark has an interesting story ... https://shop.activationproducts.com/ I'm looking...
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Possible Symptoms of Celiac?
Rogol72 replied to Seethefacts's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Does getting iodine this way affect your DH in any way?