
Rogol72
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Rogol72
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How often do you test antibiodies?
Rogol72 replied to yuluyouyue's topic in Coping with Celiac Disease
That's really impressive. Well done!! My TTG levels last year were at 3.1, though I'm not sure what my IGA levels are. Time to get it checked again. -
I believe I have this! Serology tests all negative
Rogol72 replied to Hb333's topic in Dermatitis Herpetiformis
I'm a long time DH'er, 10+ years. The first and really only clue was the sudden onset of a rash on my back that itched like crazy which my Dermatologist thought was Eczema. Steroid cream did not help at which point a skin biopsy for DH was taken and came back positive. A subsequent intestinal biopsy via endoscopy was negative for Coeliac Disease! A definitive... -
I believe I have this! Serology tests all negative
Rogol72 replied to Hb333's topic in Dermatitis Herpetiformis
The Canadian Coeliac Association have a very informative webinar on DH. It can be associated with Thyroid Disease or Type 1 Diabetes. https://www.youtube.com/watch?v=PAdmsNiyfOw -
I'm wondering if there is a genetic test that can identify how well a person metabolises vitamins and minerals? You could then tailor your supplementation to those needs to hit the sweet spot without over or under doing it and saving some money at the same time! For example, I can maintain a healthy Vitamin D level at the upper RDA with a relatively low dose...
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- allergies
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Confused and a little scared...
Rogol72 replied to lrmilas's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Speaking from experience, Flagyl is a really nasty antibiotic. It leaves a metallic taste in the mouth hours after taking it, wipes out the gut flora! I have found that being consistent with taking supplements is the only way to get well combined with a strict gluten-free diet and lots of patience ... at least in my case! Even trace amounts of gluten getting... -
Yes. If I get cross contaminated badly enough I get them. Like sudden sharp stabs out of nowhere, in the bottom right quadrant of my stomach. Also had them when I was consuming gluten-free breads and pastas.
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Lab Help?
Rogol72 replied to Andi-is-sleepy15's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A skin biopsy by a Dermatologist for DH would be definitive if that's possible before your gastro appointment while the rash is active. I was treated for Eczema with topical steroid cream which didn't help that much before a skin biopsy for DH came back positive. I had a subsequent negative SB biopsy for celiac disease. -
I thought it worth sharing this regarding the histamine and histadelia conversation ... https://www.natures-source.com/blogs/news/histadelia-a-primer-on-histamine-folate-and-methylation/ "Beware of excess folate in your diet, One thing to caution readers about concerns the role of folate - folic acid, in all of this chemistry. Nothing raises blood...
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You're welcome! Always curious and like to know cause and effect. I take 20mg Opemrazole on rare similar occasions when glutened only as a last resort though. Anything acidic like coffee, citrus fruits etc. will add to the irritation. I can't remember the last time I consciously added black pepper of any kind to food.
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Something to consider since it's so important to get the correct diagnosis either way. My DH was misdiagnosed as Eczema initially. The rash came and went and was treated with topical steroid cream. Then it came back with a vengeance and itched like crazy. So I had a skin biopsy which was positive for DH and Coeliac Disease. A subsequent endoscopy and small...
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Great result indeed! So is it safe to say that Niacin is a good remedy for Sinusitis in general?
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Helpful info for reference ... https://celiac.org/about-the-foundation/featured-news/2015/10/dermatitis-herpetiformis-and-iodine-exposure/
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This is really interesting. Which is the most effective form of Zinc for healing leaky gut in Coeliacs? Or is it just a matter of getting a good bioavailable form as in Zinc Picolinate? I've read that many functional practitioners recommend Zinc Carnosine for healing the damage caused by acid reflux in those who suffer from it.
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- bioavailability
- biome
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T1D, celiac, soy allergy, vegan…who’s with me?
Rogol72 replied to Tag's topic in Related Issues & Disorders
If you don't mind me asking, what's in your turmeric concoction that works so well for inflammation? I've tried a turmeric supplement before that has black pepper and it did not agree with me.- 11 replies
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I've read that Quercetin is good for addressing high histamine levels. I don't have any personal experience with it, but it may be another piece in the histamine equation.
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I came across this webinar by the Canadian Celiac Association on DH if anyone is interested ... https://www.youtube.com/watch?v=PAdmsNiyfOw
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I've had DH a long time, diagnosed by skin biopsy. I can attest to everything that's been said about DH and the dairy/iodine connection. In addition to flaring DH, dairy makes me really tired and knocks me out. It's the casein protein, and/or the Microbial Transglutaminase food additive they put into dairy and other foods. https://pubmed.ncbi.nlm.nih...
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I understand the caffeine in tea and coffee and other caffeinated beverages is thought to inhibit the production of DAO enzyme levels in the gut, and well as depleting B Vitamins. I also came across some research regarding deficiencies in Iron and Zinc (in addition to Magnesium) which can also reduce the DAO levels in the gut. I've taken a multipronged approach...
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The relationship between Vitamin D levels, Fish Oil and mood is interesting. Came across these which explain it very nicely .... https://www.integrativepsychiatry.net/vitamin-d-and-fish-oil-improve-cognition-and-mood-by-supporting-serotonin/ https://www.brain-effect.com/en/magazin/boost-serotonin-levels It's good to know how and why micronutrient...
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Histamine Intolerance after Gluten Challenge
Rogol72 replied to BushbabyLou's topic in Related Issues & Disorders
Update: Thought I'd share this in relation to histamine intolerance and mast cells ... https://link.springer.com/article/10.1007/s40629-021-00171-9 . I've concluded through experimentation and going back through previous blood test results ... that I have a subclinical iron deficiency, as supplementation with a low dose iron complex with vitamin C for the...- 37 replies
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- dao
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Histamine Intolerance after Gluten Challenge
Rogol72 replied to BushbabyLou's topic in Related Issues & Disorders
Very interesting. My thirst for knowledge has led me to learn all the essential nutrients and pathways for neurotransmitter production. Fascinating how the body's systems are interdependent on one another and essential nutrients. I've read that poor blood sugar regulation or insulin response will not allow tyrosine to do it's thing and produce dopamine and...- 37 replies
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- dao
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Histamine Intolerance after Gluten Challenge
Rogol72 replied to BushbabyLou's topic in Related Issues & Disorders
@knitty kitty ... Just curios. What are the additional benefits of Benfotiamine? Do you take choline?- 37 replies
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- dao
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Neurological Symptoms
Rogol72 replied to Ginger38's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
@Scott Adams, I'm curious. What Brand/Type of Choline do you take? Is the regular choline bitartrate or CDP Choline (Cognizin)? I believe the latter is the most effective. -
I've had issues with reflux having a HH. In my experience, any food or beverage item that will cause inflammation and/or bloating in the gut will cause reflux. Coeliacs are prone to developing IBS and SIBO which can cause reflux. I follow an AIP diet for the most part and take the supplements my body needs since fortified foods are off the menu. I've got...