mtdawber

Hi and welcome. I haven't found that I am more/less tired from taking dapsone and I was very concerned before I started it. Being a red head I fight my levels anyway but so far, so good. It's a personal decision for everyone - that's just what I've noticed. As with everything in life, everyone is different.

I went to the dermatologist again this week. He upped the Dapsone to 50 mg which I am tolerating with no problem and there are no new spots... I am seeing the ones I have slowly heal. Things are looking up. Good luck with your diagnosis. Let us know how it turns out.

I did decide to give the Dapsone a try. I have to do weekly blood tests for the first month. My hemaglobin is on the low side of normal so I'll have to watch that it doesn't drop any more than it has... I started on Friday so it's been 5 days. So far I have very few new blisters (any new ones are on my head). I am less itchy and my scabs are starting...

I'm the red head in my family... that's so funny... I've always been the one with iron deficiencies, bad skin and stomach problems... ha ha ha... no one else in my family shoes any signs of celiac! My dad was too (he passed several years ago) but he was always skinny as a rail - makes me wonder....

Happy Birthday and congrats. I'm a January girl myselft

Hi there, welcome to the board. I've been here about a month and I find this site a god send. Glad to have you here!

I have DH and I changed to sea salt (natural, unbleached type) that I got at the wholistic grocery store (also available at health food store and lots of other places). It's not perfectly white but tastes fantastic. I actually take my own salt if I know I am going to want to salt my meat etc.... On the corn chips, as I understand it (and I am new...

Ok, thanks for the feedback. I guess tomorrow, I'll get the prescription and take it from there.

OK Shirley, I'm going to hit linds with the snowball because they don't have snow there....LOL

I'm glad we know for sure. Thanks for checking.

I'll apologize up front if this has been posted before. I couldn't find anything that helped me on the DH part of the board. I go back to the Dermatologist on Wednesday and my DH is not any better. In fact, even though I've been researching like crazy, freakeshly cleaning my kitchen, using a different toaster and not eating anything unless...

I can so picture the OBIT... way too funny... what a warped sense of humour I have (and I guess you all do too)... I love it

When I heard the song I knew it but he was first popular in 1964 - that's 40 years ago. I was still a twinkle in my daddy's eye then.... And please not one get upset - I'm not trying to offend anyone by how long ago it was. I think it's great that we can share this stuff.

I have the biospy on the outside (skin) for DH confirmed and blood tests so I don't think in April I will go back to be gluteneous (is that a word?) in order for the biospy on the inside to come out they way a doctor wants. The thought of feeling that sick scares me. Jerry, you have strength to go for the diagnosis. I hope you are feeling better soon!

Ok, just as I posted, I got a reply from the LCBO (for those of us in Ontario) Dear Mrs. Dawber, Thank you for contacting the LCBO Infoline and we apologize for the delay in responding to your query. We carry one gluten-free beer at the LCBO called La Messangere (+682880). To find a store in your area with this product on hand, please click...