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confused

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Everything posted by confused

  1. confused
    There are many times they wont take enough biopsies to show the damage to the villi. How long did u have the test done, Can you maybe re-do the blood test and see what it comes out with. Or find a new dr that will diagnose you with blood work alone. I for one, only did the blood work which was very high, but i also have DH. so that was enough to diagnose...
  2. confused
    thank you, I would get some help, cause i know it will be far from easy, but i know he would only die in the nursing home. I was an activites director in the alzhemeirs ward for a over an yr. And i would see so many come in that were not bad off at all and by 6 months they would be gone. I just dont want him to die in a nursing home. Cause i know he will...
  3. confused
    Ok you all know about my bil being so sick. Well huby just talked to his sister, and she informs him that they want to know what to do when my bil gets out of the hospital. Then she preceded to tell him they will put him in a nursing home. never asked my hubby what he thought, just that is what they decided, and the reason they decided this was cause everyone...
  4. confused
    yayyy so when can i come up to get some free pizza lol Even tho i cant eat pizza with cheese lol paula
  5. confused
    thanks pt, i think i read that one this morning I guess i was just hoping i could find something that would tell me like accurate survival time. paula
  6. confused
    We are thinking he has had it for a very long time cause he has been in colorado since june. And we are kinda thinking he didnt get it in new mexico but in arizonia were he hasnt lived for almost 2 years. He tried to get out of bed yesterday and just collapsed, but he really hasnt ate in a month, so not sure if he is weak from that or from the disease...
  7. confused
    was hers the dissemented type were it affects all of the body. And did she get the pnemonia with it? Did she sleep like all the time and never want to eat? I am so hoping he does recover, but it seems like too many of his organs are really bad. I know the drs said if he can eat he will get better, but he wont eat and that is what scares me. Was your...
  8. confused
    i cant wait for mine to sink, after 6 months mine still floot lol paula
  9. confused
    he did have an feeding tube a few days ago, i dont think he still has one. What the dr wants it the most possible calories possible and that he needs to do it on his own. With an feeding tube its more like life supports and i guess he dont want that. But like i told hubby he needs to at least stay hudrateed and get something. I asked the drs across the...
  10. confused
    Ok i went to your profile trying to figure out how someone would get your info, and this is what i came up with, Does anyone that belong to this group, have you on your myspace account. I would guess that is how they would know exactly were you are located, even tho im not sure what is on your myspace since it is private, but has it always been private. This...
  11. confused
    he WAS doing better, did you see my other post about valley fever. He is doing very very very bad now. The drs say if he dont eat he will die, and he wont eat. He is a very stubborn man, his german comes out and we know germans are stubborn. My hubby went back to work today, but he is going to ask to take an leave of absense, we are almost out of vacation...
  12. confused
    I need any regular information on valley fever. I have looked it up, but wanted to know if anyone has known someone with this disease. I had never heard of it til last night. I guess that is what started my bil problem, and then it turned into fungal menigitsis, he finally got an new dr that is letting the family know the truth besides his old dr. And...
  13. confused
    I was making some rice krispies treats this weekend with cocoa pebbles and fruity pebbles. Well i decided to add peanut butter with the cocoa pebbles, and omg they are so good. So anyone looking for a good pms treat try these. what i did was melt the butter and peanut butter then added the marsmellows then the cocoa pebbles my husband was even in...
  14. confused
    donna i do think you posted they were gluten free, cause i know someone in here told me they were and i started to drink them after that lol. They are very good, i havent drank them in a few weeks but i think i need to start again lol paula
  15. confused
    They did find the rosary, some nurse put it on his iv tube and never told anyone, you know how it is you never see the same nurse more then once in the hospital in the big city. But he is now in his own room and out of ICU, and seems to be doing better, He is just very weak he started at 195 now is less then 140, and he is 6 feet 3 so you know that is...
  16. confused
    thanks gals i really appreciate it. I have been such an basket case threw all of this and now there is so much drama going on in the family and they are talking crap about me, his family has never liked me so its no surprise. But it still stresses me out with the stuff that they are saying. It is almost like they are trying to get my hubby to choice between...
  17. confused
    I just wanted to let you all know that we now know what is going on with my bil, and it is what we feared from the beginning. Everyone keep him and the whole family in your prayers cause it is going to be a very long road. paula
  18. confused
    mine is breakfast bowels what i do is make hasbrowns on the bottom, then add omlet eggs or scrambled eggs then i make bacon or sausage then i put green chili on top or i make scrambled eggs and put bell peppers, onions(well use to), and tomatoes and put that with hashbrowns with bacon or sausage with salsa or breakfast burritoes in brown rice tortillas...
  19. confused
    that sounds so good, i was thinking of getting enjoy life choco chips and doing that, but of ocurse they dont carry them here, and i think i heard they have soy, but not sure. will have to look that up. paula
  20. confused
    It probably means his villi were either flat or has some flattening to them. I would ask them if that is what she meant. If he has flattening of his villi, then he really wont need the celiac panel cause the egd is the golden standard of of diagnosis of celiac. You have came to the right place for questions. Feel free to ask anyone anything. paula
  21. confused
    finally got some answers, they did an biopsy for tb. he is very ill again and they are not sure what is all going on and dotn want to say til biopsy comes back. But at least tb does make sense to what is going on with him. So he is back in isolation. thanks for all your replies and everyone keep praying for him paula
  22. confused
    i was kinda thinking copd to, but not sure. Im just at lost right now, at first they said virnal menigitsis, then it turned to pnemonia, then they decided to do an scope cause he still has an fever, now they are saying this. I just dont see how any of these things go together, Plus with stomach problems 2 months ago. I know penomia and lungs looking like...
  23. confused
    What do you all think it means when you have an lung scope and all they tell you is your lungs look like hamburger and wont give you other info. I tried to do an search on google but im not coming up with anything. Any help would be appreciated paula
  24. confused
    I am even embarassed to ask this, but here goes. Should my poop be sinking by now. It is still floating after all these months gluten free. Or do i need to add vitamins to see an difference? paula
  25. confused
    Do you have any other problems with dairy. I cant eat recees cause in casein intolerant, but i sure miss them, they were my fav candy bar for years paula
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