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Flor

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Flor

  1. Flor
    Ms. Curious! Okay I totally GET IT NOW! Thank you SO much, that last round of explanation did it. I really really appreciate your taking the time to walk me through it. I had also read about the other gene (06) potentially providing some protection against auto-immunity (thank you wikipedia!) so that's a really interesting theory that it might delay onset...
  2. Flor
    Oh my goodness MsCurious this is all fantastically helpful and you are so deep into it I can barely follow you! I will go read that wikipedia stuff. I really am interested in understanding it. In both your quoted excerpts here I don't understand what this means: "This isoform is partially encoded by the DQB1*02 genes in HLA-DQ2 positive individuals." I...
  3. Flor
    CassP and Zimmer, thank you for writing! CassP, I THINK I get what you're saying and the thing about only testing half of each allele sounds like what i read elsewhere, though I don't really understand why or what that's about. And if they give numbers like 0201 and 0202 (those are my niece's results), then what's the missing information? I just re...
  4. Flor
    Do you know which DQ2 genes are more strongly associated with celiac or where I might read more about that? I hadn't heard about that. The whole question of gauging when one is symptomatic is a bit mysterious to me. So here are two examples: 1. My son, seems like maybe his BMs get softer after lots of bread eating. Could be candida or unrelated or a...
  5. Flor
    Thank you for your responses. It's so helpful to have smart people to talk to who have been down this road! Our tests were done through Enterolab and I gather for some reason they only report one line of alleles or something? I confess I still don't understand this genetic stuff! I've read the basic stuff online and I remember 9th grade biology but this...
  6. Flor
    Hi all, I have celiac disease and have one celiac gene and one gluten sensitive gene (or allele I guess to use the better term). So I had my son tested (he's seven) and his results are identical to mine, right down to the specific string of numbers for both alleles. I have two questions: 1. Would you immediately get your son off gluten AS IF...
  7. Flor

    I'm no doctor, just searching for ways to get better like you are. I'm not sure why you are contacting me specifically?

  8. Flor

    I am looking for info on recovery from leaky gut/gluten intolerance... etc. I have read about taking probiotics but I get sick from them and even yogurt makes me sick. I seem to be getting more sensitive to foods and I know I need foods that are healing. Could you help me with that? etta694 Thank you for any help you can offer.

  9. Flor
    The lab recommended by one of the docs who "wrote the book" on adrenal fatigue and that also accepts direct orders by patients is ZRT lab: Open Original Shared Link The MD is Dr. Wilson and his book is: http://www.(Company Name Removed - They Spammed This Forum and are Banned)/Adrenal-Fatigue-Century-Stress-Syndrome/dp/1890572152/ref=sr_1_1?ie=UTF...
  10. Flor
    Whoooops so sorry, my brain not working. Labrix did the saliva test. There are three or four main labs now that do this saliva cortisol testing (it's four samples throughout one day), some of which require a doctor's order and some of which you can do directly with them. It costs about $140. I think even Medicare pays for it. You can also ask them to add...
  11. Flor
    Sorry, correction, that's Tyrosine I take, not taurine, though I think taurine shows up in some other supplements I take. But Tyrosine is specifically recommended for adrenal fatigue.
  12. Flor
    I had the saliva test done through Enterolab and my cortisol levels barely get up off the floor in the morning and then crash the rest of the day. And my symptoms indicate I'm estrogen dominant. So I am taking hydrocortisone in very small doses and bioidentical progesterone half the month, both topically so as to not go through the gut. Were the hormones...
  13. Flor
    Hi all, I would love to hear from others who have adrenal fatigue/exhaustion. Who else has done saliva cortisol testing and/or from symptoms lists thinks this is part of their issue? And has anyone done research on the possible links between Celiac and adrenal fatigue and/or links in terms of recovery? I am going to do some research and will post back...
  14. Flor
    Hi everyone. Thank goodness some of you seem to really understand this gene stuff. I am barely grasping. My Enterolab results came in today and I have HLA-DQB1 Molecular analysis, Allele 1 0201 HLA-DQB1 Molecular analysis, Allele 2 0603 Serologic equivalent: HLA-DQ 2,1 (Subtype 2,6) I understand this as having the DQ2 celiac...
  15. Flor
    Hi all, I haven't been here for a long time. But the canker sores post came up in my google search and now I'm back. From what I've read, canker sores are also a symptom seen in adrenal fatigue. Which raises the question for me here about who knows anything about the relationship between adrenal fatigue, celiac, and CFS/FM? I'm being tested for adrenal...
  16. Flor
    Dear friends, I spent a lot of time on these boards for a couple of years and got some very helpful information along the way. I wanted to offer back a quick report since I seem to have largely recovered from the leaky gut I had -- in case any of this is helpful. I developed chronic and severe gut problems (followed by joint and mental health problems...
  17. Flor
    I've just been prescribed 200mg nizoral (the antifungal) for four weeks to treat various chronic yeast infections, mostly on my skin -- but I'm fairly sure with all my gut problems, that I've got systemic candida issues. I have been on anti-candida diet for a long time. Also gluten-free, no corn, potatoes, or dairy either. Have also been through many...
  18. Flor

    ARCHIVED Advice Please?

    Flor posted a topic in Related Issues & Disorders

    Hi all, Has anyone here had to deal with taking antibiotics while recovering from gut damage due to celiac disease? I have an acute sinus and eye infection that I need treatment for...but I am terrified that taking the antibiotics will undo all the healing over the last three years and encourage candida growth that will cause new gut damage. Does...
  19. Flor
    Hi you all, I haven't been checking in here for awhile. I'm on month four of the anti-candida diet. Doing much better, though still some bad days. I wanted to check in with you all about Candex. I just started taking it yesterday. Anyone else taking it? Have we already talked about this website? Open Original Shared Link It's the most concise...
  20. Flor
    Hey you all. I'm dropping in for expert reaction from all you long-time wise warriors... This is a protocol for unblocking the methylation pathway that does not directly involve chelation but does involve detoxing through specific supplements. It's borrowed from Dr. Amy Yasko who is a leading practitioner of biomedical treatment for autistic kids and is...
  21. Flor
    Hi Paula, I take the peppermint oil in capsules. I read some studies a couple of years ago that it helps with IBS -- so on days that I feel sore or gassy I take a capsule and it seems to help. Although you have to put up with burping and breathing peppermint oil. It could be worse! Zinc, E, C, and biotin might help with those mouth sores. Also a two...
  22. Flor
    Hi you guys, I haven't been on here awhile. Lots going on in our lives, but I have been wanting to check back in and report on my progress and hear how you all are doing. One quick tidbit: I've been reading a useful yeast thread over on the Low Oxalate Diet yahoo group and there are a ton of studies showing that damaged guts don't produce adequate biotin...
  23. Flor
    Hey you all, Our neighborhood chain drugstore has activated charcoal. I've found it essential to keep things moving through me -- digestive enzymes, fiber, and activated charcoal to mop up the ick, as well as flax oil and fish oil. I feel sickest when things get stuck. My two years of joint pain is all but gone now, amazing. I think I've reached...
  24. Flor
    Thanks everyone for all the good info! A couple of questions: Is anyone else taking Threelac or VSL3 for probiotic? I'd like to look into the human probiotic you mention Moldlady -- is there a website? The YC website: that link takes you to a login page. If you aren't already a member, is it too late to join, then? Be well! Florence
  25. Flor
    What's YC? Do you know is the mold issue with corn only for the dried processed corn by-products or for fresh corn as well?
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