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Flor

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Flor

  1. Flor
    Oxalates, gout and bone pain! Hi you all, I was googling around to see what this shin burning pain might be about and came across some stuff about gout and "pseudogout." It seems to me that the oxalate dumping might be bringing on gout-like inflammation and also that prior to LOD, joint inflammation could very well be oxalate-related in the same way...
  2. Flor
    No doctor's supervision with the VSL3 -- just trying it out. Though I am working on getting a first appointment with a wholistic MD in Ashveville who has some experience with chronic gut problems. I just bought two small boxes of the stuff and will take it slow. Am also doing the LOD, calcium citrate, glutamine, biotin, zinc, fish oil, MSM and...
  3. Flor
    Hi Judy! It's very up and down doing this. I think this is another round of the discouragement that newly-diagnosed celiacs feel. Combo of hope and despair. Going to the health food store is aggravating because there is SO much I can't eat. I come home cranky with my small collection of acceptable foods. I have always gotten the "munchies" at night...
  4. Flor
    Wow, that's amazing to hear about the shin pain! I wasn't even going to mention it because it's such a weird symptom. It's not like anything I've ever felt. But I was starting to worry about it. SO you all put my mind at ease! Rachel! Thank you for the overview. My regular family dentist just told me I have a couple of old fillings that need replacing...
  5. Flor
    CarlaB, how are you finding the VSL#3 to be? I just ordered some -- it hasn't come yet. How long have you been taking it and anything good or bad to say about it?
  6. Flor
    Hi all, Weird symptom here: burning pain up and down my shin bones. Not achy but burning. Never had this before in my life. Any guesses? Anyone else have this? Oxalate dumping? I made low oxalate chicken soup with rice today -- a little bit of onion and garlic sauteed in olive oil, s$#&ake mushrooms, asperagus, and cabbage. Add a couple of cups organic...
  7. Flor
    Is anyone here taking MSM? I bought some a couple months ago for joint pain but never took it. I've read some amazing stories about it, though.
  8. Flor
    Rachel, Thank you so much for all your experience and information! What a resource! Because I've stepped into a lot of this communication midstream, could I bother you to give just a quick overview of where you are -- treatment and symptoms? I know Lyme and mercury have come up repeatedly -- are those your main diagnoses? Do you have a sense about...
  9. Flor
    Dear Miamia, I notice you listed co-enzyme Q10 in your list of what you're taking. Can you tell me what it was recommended for? I've been taking it off and on for the last couple of years for a totally wacky reason -- I had never heard of it before and then a doctor told me in a dream (!) that I should take it. This was the same doctor and the same...
  10. Flor
    G'morning all.... I was reminded reading over at low-oxalate-diet at yahoo about glutamine -- is anyone taking this? I know a lot of people with gut damage do take it and have reported help with it, including post-chemo patients. I took it for awhile and didn't notice any difference. Also, does anyone understand glutathione supplementation? Rachel ...
  11. Flor
    Judy, I'm so sorry. What a rotten day, huh? I seem to be alternating good days and bad days. Yesterday was good, today is bad. Woke up bloated with my stomach hurting, new joints hurt that have never hurt before. Diarrhea first thing (but that's normal for me). Went to the health food store and had to RUN to their restroom but once I got there, nothing...
  12. Flor
    Just a follow up on the biotin deficiency issue, from Susan Owens over at yahoo group trying low oxalates: "I'm glad you asked that question, for yes, I think anyone suspected of having oxalate issues should be taking biotin. I did a LONG investigation of biotin on abmd and sulfurstories a few years ago, and many tried it an the stories were fascinating...
  13. Flor
    Sorry, add-on post here -- I realized the same guy who did the research paper I mention above wrote a much shorter (2 page) recommendation for treatment of CFS based on glutathione issue. Please tell me if it's not kosher to post it here and I won't do it again. Since CFS and glutathione and methylation have come up several times and it seems so related...
  14. Flor
    CFS, glutathione, methylation and more parallels between "us" and folks with autism: I just came across this paper on the "sulfurstories" yahoo group (related to the trying-low-oxalate-diet group and also moderated by Susan Owens): Open Original Shared Link It's a 45 page research paper, so I won't paste it in here. I haven't read it all, but it...
  15. Flor
    Sorry, Susan has this comment about that article: Listmates, Gluconeogenesis is making new glucose out of other things, usually amino acids, but here, lactate. There is a lot of research looking at how biotin activity within carboxylases is hampered by oxalate and the thought is that the big part of this impairment is in pyruvate carboxylase....
  16. Flor
    Research on oxalates, biotin, and fatty acids: The below was posted by Susan Owens on the low oxalate group at Yahoo. It's in vitro research with chick liver cells, as far as I can tell. And what it shows is that oxalates inhibit liver's ability to synthesize fatty acids but INCREASE cholesterol formation AND that biotin deficiency makes this worse. I...
  17. Flor
    Anyone heard of PPC? I'm on a listserv for "sulphurstories" -- also run by Susan Owen who does the LOD yahoo group. This email just came in and I was curious to know if anyone knows about this stuff. Rachel, given you're on a very specialized protocol it probably doesn't make sense to list it all here. I was looking mostly for guidance about the basic...
  18. Flor
    Here's a question: What do you think about us all sharing the list of supplements we're taking? Maybe we would learn something from each other's regimens? I've had to look again at all my supplements -- the calcium I was taking was NOT citrate AND it had all these plant-based digestive enzymes AND "green foods" that are no doubt packed with oxalates...
  19. Flor
    G'morning you all! The discoveries are moving so fast here I can't keep up! That yeast produces oxalates is DISTURBING to say the least. I had no idea. I have all kinds of chronic skin yeast. Here's my quick update: Yesterday was a good day (the day before bad). Today is promising to be a bad day. I had kidney pain when I went to sleep last night...
  20. Flor
    Hey you all, My sense from looking at the oxalate and nightshade stuff is that most nightshades are on the oxalate list but that nightshades have additional toxins. I'm a botanist from way back and the family is Solanaceae -- the nightshade family. And EVERY SINGLE ONE of the plants in that family is poisonous. We have bred the nightshade foods to be edible...
  21. Flor
    Judy, The garden is one of my main sources of sanity. That and writing and knitting. I hope you get into the garden and that your fall day there is gorgeous. Down here in SC we're still having 90 degree days, but some signs that it's starting to lift. I'm Californian going back 6 generations so I like my temperatures to stay around 70 and no...
  22. Flor
    Being kind of new here, I have to ask: What are these bars we keep hearing about that one of you has invented? Is it something that would satisfy my sweet tooth? And...does Rachelville refer to the OMG post that is a universe unto itself that Rachel started (long may it reign!) or is it an actual place too (Rinne is chef of Rachelville)? And speaking...
  23. Flor
    Happygirl, Did your low everything diet last year help you? Are you feeling well now? And how much have you added back in to your diet since then?
  24. Flor
    Hey, me too -- my joint pain is left hip, base of left thumb, and a knuckle on my right hand. The finger joints got a lot better over the last few months, no idea why, and then started hurting again when I started on the low oxalate, more calcium thing last week. I think my skin is getting weird too -- maybe something grainy coming out of it and definitely...
  25. Flor
    Judy, so funny, I was just about to paste that reply from Susan over here when I saw you beat me to it. I'm glad, at least, that someone's working on it. But frustrating! I posted a follow-up question just to get the names of the folks working on it -- I'd like to talk to them! And to find out what probiotic they recommend on the low oxalate diet. I think...
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