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Flor

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Flor

  1. Flor
    I think the recommendation over at yahoo site is to take the calcium five to ten minutes before eating. I think just going LOD could produce oxalate dumping without taking calcium supplements. But I'm also thinking the calcium, whenever you take it, must bind some oxalates. I think it's just a question of what's optimal.
  2. Flor
    Hey you all! Did you guys know that Vit D interferes with Calcium's ability to bind oxalates?!? This from Susan Owens: "The calcium you give before meals won't do its job of binding oxalate properly if it contains vitamin D." The calicium I've been taking has Vit D. What about you guys? Another tidbit: that anti-yeast product SF722 that's...
  3. Flor
    The manufacturer info sheet on the Thorne SF722 says it's entirely "10-undecenoic acid" which is made from castor bean oil. Some folks on the yahoo group are taking it and say it's helped. I'm trying to find out if it's low oxalate -- I'm thinking castor beans are in the legume family and pretty much all high oxalate, but maybe I'm wrong or maybe the processing...
  4. Flor
    Nora, That's a pretty interesting site! Has anyone tried the supplement she says did the thing for her (on top of the diet)? Formula SF722 by Thorne Research? I wonder what's in it? She says Amazon sells it, so maybe they say -- I'll go look. I was about to try Three-Lac and a ton of people over on the yahoo site give it to their kids. But she says...
  5. Flor
    Judy, Let me know if you can't get on again this time -- you can also email the moderator, Susan Owens, because I know she wants us to be in the group. If that doesn't work, let me know and I'll email her. I really do find that site helpful. Susan is the only one I know doing systematic research on the LOD, related supplements, and side effects. She...
  6. Flor
    A lot of folks over at the yahoo group are taking "ThreeLac" for yeast -- does anyone here have experience with that? Rachel, have you tried grapefruit seed extract? Is caprylic acid the best thing you've found so far -- I mean, like you think it works? Any idea if it's high oxalate or no? Is there a thread on this board that deals just with yeast issues...
  7. Flor
    That's helpful about the grass-fed beef -- I wondered if it would avoid the fungus problem. What do you do naturally for yeast? I was wondering whether grapefruit seed extract was low or high oxalate. Any idea? Any of you do aloe vera juice?
  8. Flor
    Hi you all. Me again. I posted a note over at the trying low oxalate diet yahoo group just saying that I'd seen improvement in the last month on this diet and asking some questions about symptoms I was having (more on that below). Susan who moderates the site said she hoped the rest of us on this thread would post over there with all our experiences...
  9. Flor
    Oh cwap about the reeses peanut butter cups. They're SO SMALL! And I only had ONE when I really wanted ONE HUNDRED. Oh well. I'm tired of what's her name's (Jennie's?) macaroons. Have any of you found your sugar intake increase with LOD? A lot of the non-sweet food I used to eat (nuts, grains, spinach, etc) are off-limits now and the stuff that's replaced...
  10. Flor
    Hi you all! I'm about four weeks on the diet now and am starting to lose my resolve too. I had one mini reeses peanut butter cup, I went to the movies and ate popcorn. The popcorn actually seemed to help move things through. I had a week or so with no shin burning or other "dumping" symptoms, but yesterday and today the shin burning is back mildly and...
  11. Flor
    Hi you all. I was just having a moment of gratitude... Here I am three weeks into this LOD and I feel better than I have in two years. I am still cautious about making proclamations but this feels like real progress. I was ELATED about how I felt after I went gluten-free last year, but the benefits only lasted about three weeks, and then soy free (I...
  12. Flor
    Let's hear it for still being a work in progress! I think testing our "resilience" at any given point is a good idea and gives a real sense of how far down the healing road we have come. I haven't eaten anything high oxalate and hardly medium oxalate in two and a half weeks. But last night I put a little salsa into the buffalo meet I was making (nachos...
  13. Flor
    Just FYI you guys, I was googling around about biotin deficiency because I was curious what the causes and symptoms were, now that I'm taking the supplement. Here's a decent link, but there are longer articles out there as well in the med journals: Open Original Shared Link A couple of interesting things: 1. They don't know a lot about biotin...
  14. Flor
    Patti, Glad to hear you're feeling pretty well too! It sounds like maybe a little more resilient to the gluten trouble too! I ate Thai food out last night -- the first "out" food I've had since the LOD. It was just rice noodles and broccoli, but in the old days, just the different spices would have made me sick and given me D the next day. And I feel...
  15. Flor
    I just wanted to add, now two and a half weeks into the LOD that I really am feeling better! I don't want to make pronouncements too early, but this is the first time since I got sick over two years ago that I have felt this good. I continue to be VERY hopeful about all this! By the way, I seem to be tolerating the VSL3 just fine (now I'm wondering...
  16. Flor
    G'morning everyone! It's so great to be able to read about everyone else's experiences. It's not so easy doing this LOD alone, so it's really helpful to feel part of a larger group even if we're not all in one place! I'm going to post this calcium-magnesium question over at the yahoo group and see what Susan says about it. Here's an interesting exchange...
  17. Flor
    Judy, Do you not supplement magnesium at all? I'm wondering if it's giving me D as well but there's all this stuff out there about an imbalance between Mag and Cal creating absorption problems of its own.
  18. Flor
    I used to get the black flecks too. Not since going LOD though. I've read in books and had doctors ask about the "ground coffee" because they say that's indication of dried blood in the stool. I'm not sure whether these black flecks are the same. I had stool tests done with those black flecks and I assume (bad idea?) that if it had been blood, they...
  19. Flor
    My whole life, I used to catch EVERYTHING that went around and it would be worse and last longer generally. All that stopped after the terrible case of rotavirus I got two and a half years ago (which came in the midst of all the sleep deprivation after my son was born, mastitis, and three rounds of antibiotics). I date getting chronically sick from that...
  20. Flor
    I will keep trying on the quote thing -- I can't quite get it to work. On B6: I found this site a helpful overview about the importance of B6: Open Original Shared Link I went looking because I have been nauseated the last two days -- and that's never a GI symptom I have (I get all the other ones). It turns out that the new supplements I...
  21. Flor
    Sorry, how do you guys do that "quote" thing you do? Those were Rachel's words at the beginning of my last post.
  22. Flor
    Also....anyone know if uric acid has anything to do with oxalates?? Lab results from 2004 have abnormal results for uric acid....the blood levels were too low rather than too high. Guess I'm not at risk for gout but WTH?? What could it mean?? Rachel, This just posted on yahoo group -- seems might explain your labs, or at least...
  23. Flor
    Rinne! Oh my gosh what a road you've traveled! How did you get scarlet fever??? I thought people didn't get that anymore. Something new to worry about!!!
  24. Flor
    Rachel -- that's amazing news about biotin and candida. Double extra reason to try it out! Patti -- funny, I had right hip pain worse for about a year and now it's on the left too. I read somewhere it's worse at night in general because our melatonin levels naturally increase in the wee hours and melatonin increases inflammation (which is why I had to...
  25. Flor
    Please forgive the info overload -- I'm out scouring for new stuff. Below is an abstract from a 2005 Kidney International journal article...the probiotic they use in the study is made by the same folks (VSL) who make the VSL#3 that the "trying low oxalates" yahoo group recommends (and that just arrived on my doorstep and I'm going to start taking tomorrow...
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