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Woolygimp

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Woolygimp

  1. Woolygimp
    I've started eating grain free because I have Sjogrens (an autoimmune condition) and celiac disease. After over two years on a gluten free diet I wasn't getting better... Eating grain/dairy free has really been a big improvement for me, I feel like I have a lot more energy, my Sjogrens has died down a lot, and I feel much less inflamed.
  2. Woolygimp
    I didn't have insurance at the time and was around 20 years old and remember thinking that they'd have to take me to court to get that money. I'd have paid something reasonable- and maybe $500 or so without much fuss, but not 8k. Not for a medication refill. The only bill I've torn up and refused to pay.
  3. Woolygimp
    Well I'm feeling great. I don't remember my thought clarity being this good, or having this amount of energy...ever. I went from barely being able to walk from one side of my house to another, struggling to lift my arms, swollen facial skin, asthma, and just generally extremely poor health and now I feel awesome, and the only thing I changed was my diet...
  4. Woolygimp
    They should be safe, unfortunately it's not just gluten that give most of us problems. I thought it was for me and wasted 2+ years doing a gluten-free diet by the book without improvement. Corn & Dairy were big offenders that I always thought were safe.
  5. Woolygimp
    If it makes you feel better, I was skinny my entire life. When Celiac disease "started" around when I was 17 I literally jumped up from a lean 140-145lbs to 190lbs in a month. Keep in mind that I had NEVER weighed over 150lbs before that point. So I gained massive amounts of weight, at least for my size, when I got "sick". Everyone around me thought...
  6. Woolygimp
    When I first started the diet, after a few days of eating nothing but beef... I had felt better than I ever had. I felt like I could run 10 miles, my awareness was through the roof, and for the time in seven years I felt amazing. I didn't have any muscle pains, exactly the opposite, and I don't ever recall having THAT much energy. It felt great. Then...
  7. Woolygimp
    If autoimmunity is caused by increased permeability, which I'm almost positive it is, then have you seen people with RA/Sjogren's/autoimmunity improve w/ this restrictive diet? Both me and my sister developed autoimmunity and massive allergic problems to food I've NEVER had problems with in succession to Celiac disease. Our intestines were wrecked and...
  8. Woolygimp
    I just don't understand why I'm the only person here that reacts this way to food? It's not like a generally feeling of malaise, it's literally being zombified after eating something that I react to. It may be a combination of anaphylaxis (cause of low blood pressure) mixed with my general fatigue to produce a double whammy effect? I don't know. ...
  9. Woolygimp
    I've been gluten free for over two years. All my gastroinestinal symptoms resolve immediately after going gluten free, and return (along with DH) everytime I'm glutened. I know when I'm glutened and these reactions that I have to these foods are definitely not the same reactions that I get when I'm glutened. A reaction to gluten can take 3-14 days to...
  10. Woolygimp
    It took me nearly 15 minutes to get off the floor to type this out. Everything I touch, eat, drink makes me sicker and sicker. I can go from feeling fine and energetic when I don't eat to literally crying in pain, unable to walk, collapsing on the floor because my muscles ache so much, everything feels massively inflammed, muscle weakness so bad that I...
  11. Woolygimp
    I was never officially diagnosed with Sjogren's. The symptoms seem to come and go; before my diagnosis my mouth/eyes and such were extremely dry, but as of now when I'm typing this my eyes feel fine, my mouth has plenty of saliva in it (not as much as other people), enough to where I could drool/spit if I felt so inclined. However, the worst is in the...
  12. Woolygimp
    I had very bad DH on my chest and back prior to diagnosis with celiac disease, but I've been on a gluten-free/CF diet for around a year and a half to two years now and the DH issues have not resolved themselves. It's nowhere as bad as it use to be prior to gluten-free and I notice things such as seafood, V8, and a couple others foods cause a flare up....
  13. Woolygimp
    Chatycady, how long were you on the SCD before you started noticing an improvement in dryness? And did you follow the SCD to the letter, or were there additional foods that you left out and additional foods that you included? For instance, I know for a fact that I can't have any milk based probiotics or even the home made yoghurt as I reacted to it.
  14. Woolygimp
    I have no problem eliminating grains, but on the SCD it asks you to eliminate all sugars which is much, much more difficult to do.
  15. Woolygimp
    I'll be resuming SCD diet. I've noticed that I feel terribly fatigued after eating any type of grains, especially rice. I also wanted to add that I started taking a medication called LDN (low-dose Naltrexone) and I feel MUCH better. There's a ton of literature out there but it has been shown to help people with all forms of autoimmune diseases by adjusting...
  16. Woolygimp
    It's an unfortunate fact that many people with Celiac also suffer from a laundry list of possible concurrent autoimmune diseases. I discovered my celiac disease too late, and i developed one or more of these autoimmune problems and they haven't fully responded to the gluten-free diet although other symptoms have. At this point, I've finally accepted the...
  17. Woolygimp
    I surprisingly came across some information regarding a therapy involving small doses of Naltrexone, normally used to combat drug addiction, and it's benefits on several autoimmune related conditions. There have been several case studies of people with varying autoimmune disorders showing great improvement on the therapy, and the results so far have been...
  18. Woolygimp
    About the whole dehydration thing, it's actually my worst symptom and I can guarantee you that it's worth with me than most of you. I'm currently on fludrocortisone because I can eat all the salt in the world and without the fludrocortisone, my body does not hold on to either liquids or salt. Without the fludrocortisone, I get horribly dry skin/mouth...
  19. Woolygimp
    Thanks for posting Jan. I don't know if the SCD is for me or not as my results have been tainted, twice, by the yogurt. So I'm giving it a third-go. It's just that all of my intestinal symptoms, stomach pains, diarrhea, etc. have all been pretty much eliminated on just a Gluten-free Casein-free diet and only really return if I get glutened or eat too...
  20. Woolygimp
    Just wanted to give everyone an update. I only have this negative reaction for a couple weeks following a glutening. Prior to making this post I was glutened twice by the Yogourmet Yogurt starter that is often used for the SCD legal yogurt and was feeling quite horrible. The protein in the meats only worsened things, and felt like they were killing me...
  21. Woolygimp
    After reading the last few pages of the thread, I've found that it has become incredibly derailed with posters advocating all means of what I would call whacky, alternative diets. I do not put much faith in Alkalinity diets, Candida, or any other "vague"/unproven diagnoses that are generally invented out people with no medical background, used to milk money...
  22. Woolygimp
    I don't know.
  23. Woolygimp
    I keep checking my blood sugar over and over to make sure it's not a problem. Fasting, it hovers around ~100, and I've never seen it below 80 ever, or over 180 even after a meal.
  24. Woolygimp
    As you can probably tell from my other post, I'm having problems with certain foods that I shouldn't be. The gluten-free diet has been very helpful, but there seem to be residual symptoms - especially severe fatigue. I was diagnosed Celiac, and I think it was the root catalyst but I think that it caused other problems. So I suffer from brain fog and...
  25. Woolygimp
    I've been gluten-free for about a year and a half and while I've shown drastic improvements, such as the remission of DH, I have unfortunately not recovered fully. One of the things I've noticed are secondary food intolerances to things such as nuts, fish, beef, and so forth. Eating a meal consisting of several foods such as fish would heavily sedate...
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