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Murph

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Murph

  1. Murph
    Ya, that's not really SUFFER suffer. I think it's that there is data that 1 in 133 have the genes to *potentially* have celiac disease activated. And even among those w/ active celiac, the magnitude of the effect on their lives varies drastically. That being said - best of luck in finding a better Dr. They ARE out there! Being gluten-free is tough and...
  2. Murph
    It is an interesting question. I was 1st diagnosed as an infant in the 60s and unfortunately the prevailing wisdom at the time was that it goes away and gluten could be reintroduced into the diet at age 5. And I did seem fine. Bright (skipped a grade), somewhat athletic (could dunk @6'1") tho never strong (I blame celiac now). Celiac wasn't supposed to...
  3. Murph
    Re: Specific Carb Diet Absolutely. But the thread started w/ the notion that perhaps a celiac's problem wasn't with gluten at all. I think we do all know it IS the gluten/gliadin.
  4. Murph
    Oops never mind
  5. Murph
    Yipes those links, and the links from them, are some heavy reading tarnalberry!!
  6. Murph
    There are often other food allergies (often temporary) showing up after going gluten-free. I suggest keeping a food/symptom diary to help figure it out. Some people report reactions a day or 2 after ingesting something. Most of my headache, dizziness, weird fuzzy/prickly face etc symptoms came on either immed or at the 20 or 45min marks. A diary makes it...
  7. Murph
    Well bring a poncho, cuz some puking may be involved.
  8. Murph
    I don't think we'll be seeing any study like that. My thinking is that it'd be too cost-prohibitive to make the "pure" starch that pure. I'm sure I'd read somewhere that commercial wheat starch always includes some gluten. Tho for all I know, that study may have been done decades ago. There's no controversy about celiac disease and wheat gluten. Just a...
  9. Murph
    Just wanted to throw in that we don't ALL like the emaciated look. Or the oversized plastic boobs.
  10. Murph
    I've heard of 2 such efforts (AT1001 & a Stanford effort) but I don't believe either will work. celiac disease is not like lactose intolerance where the symptoms are temporary and relatively minor compared to celiac disease. I think it just doesn't work that way - it's not just a missing enzyme. I've had far too many of the symptoms on these 2 pages...
  11. Murph
    I'd be willing to bet u are unknowingly consuming barley. Even Kellog's Rice Krispies have barley. As "malt", it's included in many many food products. Unless specifically looked for, or eating incredibly healthful, w/ 0 convenience foods, barley can barely (hehe) be avoided.
  12. Murph
    Go Badgers! A great many "rice noodles" are only called that because the #1 ingred is rice, and they also contain wheat. Personally I won't eat a rice noodle unless I see the package and read the ingreds myself.
  13. Murph
    Just read the linked-to article and think much of it is ridiculous. At one point she seems to claim corn gluten is as bad for a celiac as wheat gluten. Like she doesn't comprehend that the word gluten is a general term. Fact is, it's a protein fraction of the gluten molecule which causes our problems. For wheat it's the well-known gliadin. In barley gluten...
  14. Murph
    Yup - Willem Dicke, our hero! Could u imagine dealing w/ this withOUT knowing that wheat/barley/rye glutens were the problem?
  15. Murph
    Diarrhea. You'll see D mentioned a zillion times on any celiac forum. And, hehe, if not abbreviated likely to be spelled wrong.
  16. Murph
    It's likely due to intestinal Candida. Others mentioned it as "small bowel overgrowth", but to me that's not as specific. I've researched this a lot and have come to believe that just about all long-term sufferers of celiac have Candida & leaky-gut (increased intestinal permeability). And sprouted grain is still grain. It's the wheatgrass that has...
  17. Murph
    Yikes u eat THAT?!! I've come to wonder if HFCS might be blamed in the future for the problems of many people. Read something about how our enzymes haven't evolved to digest it properly. After a very long time sticking strictly to the anti-candida diet, I can have ONE fruit from a can. Pineapple in its own juice. Just the 2 ingred. Charlie, Certainly...
  18. Murph

    ARCHIVED New Here!

    Murph replied to pink dreams's topic in Coping with Celiac Disease

    I don't get it - if u tested positive before, why do it again? Celiac doesn't go away like an infection or virus.
  19. Murph
    Ohhhhh boy 2 months is a long time when only 1 week does that! And there are many tales of endoscopies not *finding* the damage, tho later celiac is proven. That being said - I don't see why an endoscopy can't be performed now. The villi do NOT repair overnight. It's not like the antibodies in a blood test. If I were you, I too would worry about celiac...
  20. Murph
    Yikes $100!! There are no secrets to an Elimination Diet. Besides online, I'd hit the local library for info on fructose-free. Surely it's at least a part of some book.
  21. Murph
    I grew up in Mt. Prospect, IL, just a couple miles outside Chicago (Go Bears!) but spent most of my adult life in the bay area - San Jose & Fremont. Right now I'm in Phx, where the forecast is 107/108F today! Ugh. Was diagnosed w/ celiac when I was 2 or 3, in the 60s. Oh so unfortunate for me at the time the prevailing wisdom was that I'd "grow out...
  22. Murph
    AHA! Thx for clearing that up for me! I think it was Ricky Gervais I saw on Leno joking that the Brit way of saying herb was right cuz "u can't ignore the H!". Wish Jay had brought up heir. He also made fun of his own pronunciation of aluminum as aluminIum. Pretty weird to throw in an extra syllable, imo. Y'all don't mess w/ platinum that way do ya? I...
  23. Murph
    Yes all that can be caused by celiac. Since you've done all the testing, are u 100% gluten-free? It's pretty hard at first, with so many sneaky sources of it. One of the early mistakes I made was not changing toothpaste.
  24. Murph
    Aha! I'd heard of it, found it at a store, but then unsure of what I'd do w/ it, didn't buy it. Has anyone used Bragg's in a stir-fry in place of tamari/soy sauce? Successfully?
  25. Murph
    Arrgh this thing cut off most of my last post. Musta been because I snuck in the high-ACSII character for trademark right after Sidekick. (Only know the code cuz tm are my initials) Now I forgot everything I'd written except for saying I'm a guy.
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