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Raquel2021

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Raquel2021

  1. Raquel2021
    I recently got sick with gluten free packaged coconut I put in a recipe. So you never know. Later read this manufacturer processes wheat in the same factory but that was not declared on the label.
  2. Raquel2021
    I tried taking Feramax and it would give me celiac like pain. Pain under my ribcage left side is one of my main symptoms. Burning like pain. My numbers seem to sit around 6, 5, or 9 and I cannot change it. I still have fatigue
  3. Raquel2021
    Just curious. What type of iron supplement do you take. My ferritin has always been 5 to 9 and not able to increase it even when taking supplements as well. This was also my only symptom for years but I was also very tired. Eventually I had full blown celiac disease. To answer your question. Yes those numbers mean you are doing a good job with the diet...
  4. Raquel2021
    Like others have mentioned there are other foods that mimic gluten so the body might "see" these foods as gluten and have the same reaction as if you were consuming gluten. That was the point of my explanation. Going gluten free only most of the time is not enough. I think there is a lot to be discovered about this unfortunate disease. I know that when...
  5. Raquel2021
    Hi I have not eaten lentils for 3 years now since I was diagnosed. I really miss them so I am wondering if anyone had any luck finding and being able to eat gluten free lentils. It seems they are at high risk on cc. I have tried eating split peas and get the celiac burning pain on the left side of my upper stomach . Thanks
  6. Raquel2021
    I am sorry to hear about your journey. In addition to celiac I have Hashimotos. I was also experiencing paresthesia on head/face and limbs. After months of experimenting with foods elimination I discovered iodine rich foods were the cause of my paresthesia. So I eliminated dairy, eggs, soy and iodized salt.I dont eat seaweed so that was not a problem. I...
  7. Raquel2021
    I know that. Is the iodine in the eggs that can make DH worse. There are some postings about iodine and DH getting worse on the DH forums. I was just referring to the DH part of her post. Her antibodies must be high for some other reason. There is also a percentage of celiacs that react to gluten free oats. I am one of them. Everybody is different.
  8. Raquel2021
    Just search foods high in iodine. Also seaweed is a no no. Kelp etc
  9. Raquel2021
    I completely undertand. It took me months to realize it was the eggs and dairy causing my paresthesia but eliminated them out of desperation. Lastly my endocrinologist told me Hashimotos patients do better with no iodized salt but I didn't listen as I know iodine is needed but as I said that was what made the difference. Basically I am on a low iodine diet...
  10. Raquel2021
    I am sorry to hear you are going through this. You are not alone. I was diagnosed with celiac 3 years ago and last year developed a rash that looked like DH after going to a restaurant and getting sick. I was also dealing with numbness/tingling on the right side of my face and limbs. It turns out it was iodine in my diet causing these issues. I run out of...
  11. Raquel2021
    I have the opposite problem. I have normal hemoglobin after 3 years on the gluten-free diet (I used to have low hemoglobin)and high iron supplements but still struggling with ferritin of 9 sometimes 5 (normal range is 15 to 275). Can someone help? I deal with a lot of fatigue. And I am.not able to raise my ferritin levels.
  12. Raquel2021
    I also think canned tomatoes should be ok. Just always read labels . In regards to beans it can be hard to find certified gluten free beans either canned or dried. I found the brand Click is good is certified gluten-free.
  13. Raquel2021
    Yes definitely. Gluten also makes me feel really sad. It is awful.
  14. Raquel2021
    Good. Vegetarian diets can work wonders for some individuals but for us celiacs I think we definitely need to consume meats as we are already very restricted. I think that following a paleo style diet or AIP is beneficial. I have been gluten-free for 3 years now and I am still experiencing some symptoms. Still recovering I guess.
  15. Raquel2021
    What about your iron levels? Very common for celiacs to have low iron. Do you consume meats/seafood? Not sure if you mentioned you are a vegetarian.
  16. Raquel2021
    I personally won't buy spices or any products with the might contain statement. I have read is not safe for celiacs. Try McCormick or some of the House Club spices. Always check ingredients and company's website for changes.
  17. Raquel2021
    Yes. I use olive oil for cooking. Also consume nuts and avocados
  18. Raquel2021
    Thank you. I truly appreciate it your responses as I think our journeys are similar. I jsut have a green smoothie every day. Kale, leafy green, a few raspberries and a banana. I keep it 70 perfect veggies and 30 percent fruit. I would eat toast gluten-free with tahini. Lunch and dinner cruciferous vegetables and some form of carb such as sweet potatoes...
  19. Raquel2021
    I have tried multiple brands of vitamins. The last vitamin D I tried was from New Roots. I can tolerate a small dose of their sublingual b12 (only brand I can tolerate after spending hundreds of dollars ) So I thought vitamin D would work. Symptoms I get are numbness/tingling on the right side of my face. Itchy right side of my face. Feel like I have a cold...
  20. Raquel2021
    Hi knitty kitty, Are you in a normal healthy weight now? I have tried talking B complex of all kinds and cannot tolerate them . I also tried taking a sublingual vitamin D last week and gave me crazy insomnia. I want to try taking thiamine but I am honestly scared. Every night I lose sleep is a nightmare for me. I felt great taking the vitamin D is...
  21. Raquel2021
    Hi Yvonne I have lost a lot of weight as well and unable to put it back on . What diet are you on?
  22. Raquel2021
    My story is similar to yours. I have celiac, also hashimotos. About a year and half ago starting having neurological symptoms, numbness and tingling on the right side of my face. Also on my limbs. Dr thought I had MS but neurologist says this is due to celiac. I also react to soy, dairy and lately realized eggs were a big cause of my neurological symptoms...
  23. Raquel2021
    Hi Wheatwacked I tried taking only 1000 IU (drops) and it made feel great but then I could not sleep at night. It also caused me some numbness and tingling on my face. I have a lot of issues with taking vitamins. I can only tolerate iron and B12 without losing sleep. So weird
  24. Raquel2021
    Yes. It is anti nausea medication and it kind of help with the severity of the inmune system attack. It might have a different name in other countries but there are plenty of this type of medication every where.
  25. Raquel2021
    I find taking gluten free gravol helps me with lowering the effects of the attack. Discovered gravol works by accident. Just regular gravol I dont take any of the fancy ones.
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