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confusedks

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by confusedks

  1. confusedks
    Everyone, I think I need to take something because suddenly I am really constipated. That can't be a good thing when trying to rid my body of toxins. I will start taking something. Also, I am going to start taking charcoal because I think it's important to get the toxic stuff out of my body. I will also experiment with lemon water and the baths....
  2. confusedks
    Rachel, I don't know that I will ever get over the mean doctors I am seeing right now either! It is all an ego thing amongst all of them...they don't really care about the patient's health! Was the pumpkin pie gluten free? Either way, I am SO jealous! That is the ONLY thing I really care for around Thanksgiving time! I am so bummed to not have any...
  3. confusedks
    Carla, I am thinking about trying that humaworm too! Also, a funny story for you...my neighbor called me to ask for a corkscrew and I thought it was you. I got really confused and thought Carla wouldn't call me asking me for a corkscrew...lol! She sounded EXACTLY like you! LOL!!! My silly Lyme brain!!! Sherry, I have no idea what she is treating...
  4. confusedks
    Jin, Wow! Thanks for your long response to all my posts. A lot has been going on these days...that's for sure. Andrea, Me either!!! LOL! I have no idea! I think I am just going to bring a salad, cranberry sauce and some sort of dessert. Carla, Since I am now able to eat nuts, I made your fudge! YUMM!!! I did make a few alterations, but...
  5. confusedks
    Jin, I hope you get some answers at the dentist and I hope you start to feel better. Donna, YAY!!! You're the next for unlovely BM's! Everyone, We won't get the results from the Breath test until Monday. The Dr. said that this may be the reason I am so anemic... Although, she said that I don't have anemia because my hemoglobin is "better...
  6. confusedks
    For example, my soy intolerance, my allergist suggested I go soy free for a while because a lot of people who have a hard time breaking down dairy (which we had known since I was little) also have a hard time with soy. I went soy lite and after having cereal, I didn't have the same symptoms. I thought it was the corn in my cereal, but once I stopped the soy...
  7. confusedks
    So my mom used some clorox cleaning wipes in the downstairs bathroom, and it is close to the living room...and OMG! I think that stuff is severely toxic for me!! I have a headache, my eyes are burning and I feel yucky! Wow, that's crazy! Does anyone else react to cleaning stuff? Kassandra Carla, btw, I meant to say I am glad your herx is shorter...
  8. confusedks
    So I just found out that donnatal is not an abx! It is a sedative!!! I can't believe my pediatrician put me on that when I was 3 years old!!!!!! I am hoping it has some other use than what they used it for...lol!! Kassandra
  9. confusedks
    So the GI wants me to start the abx without getting the results! I don't get her at all...why order the tests if you're going to treat me anyway? I am going to wait until we get the results before I start the abx, because I don't want to take any abx that aren't necessary. We also found out exactly which abx I am allergic to. They are: amoxicilin,...
  10. confusedks
    Thanks to everyone with your suggestions. I will present it to her like "we need to rule out all possible illnesses, just like we have with the GI, etc." I think the only reason she is hesitant, is money. Well, actually that is the only reason. Lyme treatment will be expensive for us because our insurance doesn't cover too muhc. The abx they want me on for...
  11. confusedks
    Carla, I totally agree with you! The thing is my mom doesn't quite get that it's almost 100% Lyme related. She keeps saying, "what if it's not Lyme, then we will have gone to an LLMD for nothing!" I get what she's saying, but I am positive it's Lyme related stuff. Then I talked to a cousin of mine who is 30 years old and she had the nerve to tell me...
  12. confusedks
    I agree. She thinks I am going to go on the abx and feel better. For all we know, I was put on ones similar to these when I was a kid and I reacted. There are so many unkonwns it is crazy. The hydrogen breath test sounds grueling...you btreathe into a bag every 15 minutes for anywhere from 90 minutes to 3 hours!!!!! YUCK! They give you this sugary solution...
  13. confusedks
    More news...the Hematologist said that it can wait 2-3 weeks, but NO longer. So I am going tomorrow to get the hydrogen breath test for the SBBO. We are also in the process of finding out which abx I am allergic to. My pediatrician's office is getting my chart out of storage and we should get copies within the next day or two. The nurse at Cedars Sinai today...
  14. confusedks
    I agree with Patti, I think it sounds like dairy. You may want to try to get rid of all dairy sources and see if that helps. Good luck! Kassandra
  15. confusedks
    Carla, Thanks for the link. That is interesting...so you're saying that her stupid SBBO dx could be a co-infection of Lyme?! I am so frustrated with all of this. Also, could you give me a link to Dr. B's guidelines? I don't know if I have ever seen/read that. I am just in awe of everything...talk about disillusioned with the medical community...
  16. confusedks
    Andrea, I agree, this is all a bunch of BS!!!! Apparently the abx aren't absorbed through your blood... or some part of your body that causes the allergic reactions. I have no idea...I may go into anaphylactic shock...lol! Who the hell knows?! Carla, The abx is rfaximin. I have no idea what to think of all of this. Now my mom is holding onto the idea...
  17. confusedks
    So, the never ending doctor journey continues!! We went to the GI and she truly doesn't think I have celiac. She thinks I have a small bowel bacterial overgrowth and confirmed an IBS diagnosis!!!!!!!!! I asked her what causes IBS and she said "STRESS!" OMG, I could have killed her! She was very thorough, etc. but she's not looking at the whole body picture...
  18. confusedks
    Andrea, LOL! I know, water wouldn't be enough! When I went raw at first my stomach was doing better, but now it's the same as it was before raw, so it's clearly not related to what food I eat...it's any and all foods. Should try to get some sleep since I have to wake up at 6.45!!! Kassandra
  19. confusedks
    This is a recipe from a raw foods webiste for almond joys. They are AMAZING!!!! I thought I would never eat another almond joy... 1/2 c of raisins 1/2 c of shredded coconut 1 T cacao 1/3 c coconut oil (I would use a little bit less...they were a tad bit too oily) handful of almonds agave to taste 1. First blend the raisins in the Food Processor...
  20. confusedks
    I just wanted to tell everyone that 2 of my very unsupportive friends decided to go gluten free!! One called me about a month ago and asked what she could eat, etc. and then the other one said her mom did research and thinks she has a gluten intolerance! It is so funny because they were pretty mean to me about my "healthy" gluten free food for quite some...
  21. confusedks
    Stargate, I get it! It is actually really funny because 2 of my friends are now going gluten free because they are having possible Celiac related health problems! They were the most unsupportive about my Celiac dx, but in time they came around. I am not saying your friends will do this, but it was just really funny when they called me for advice on going...
  22. confusedks
    I can second the "pads make you have more discharge" theory! It is so true...I will have to see what happens when I don't wear a pantiliner daily... Also, it is interesting about gluten in pads! I never thought about that!!! I really don't like pads anyway so it isn't much of a problem, but that's interesting. Kassandra
  23. confusedks
    Carla, A BIG MAC??!!!! Oh my! Julie and Jin, Thanks for the well wishes!! Kassandra
  24. confusedks
    Hello everyone, I have been pretty tired...and haven't been doing too much. I went today to get containers for all of my raw stuff like nuts, seeds, etc. I just organized them and our pantry is really organized in the section I use, but a mess everywhere else. LOL!! Tomorrow is the appt. with the GI Dr. and we are also going to find out from the...
  25. confusedks
    Patti, How would I find her? Thanks...any comfort I can get the better! Kassandra
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