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confusedks

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by confusedks

  1. confusedks
    I have another question. Has anyone tried the raw diet? I have heard of some people getting good results as far as detox with it. My only concern is I think I am really allergic (not intolerant) to tree nuts. I guess I could eat them and see what happens and make sure I have benadryl right next to me...lol! I feel like it would be a good way to clean...
  2. confusedks
    Kristina, Aw. I am so sorry that it was so frustrating for you! I understand the run around doctors give their patients. When you don't fit into their little square box that they were taught to treat in Med school, they don't know what to do. Rather than trying to figure it out, they just kinda ignore it. I am sorry. Kassandra
  3. confusedks
    Personally, I wouldn't risk it, unless there is something that you KNOW you can handle (which I don't think there is anything you can handle?). I would HATE to get really sick at a wedding. Kassandra
  4. confusedks
    Carla, I looked up hemolytic anemia and it seems like a good possibility. We will mention it to my hematologist when we see him on Monday. Donna, Me too! Kristina, That sounds like a good plan! I hope it all works and you get some answers. I can relate to the human iPod. When I was in the hospital they had me on SO many monitors...it...
  5. confusedks
    Uh oh! Okay. I will talk to my mom about this. I agree, but my Dr. was so good at convincing me that it was a good idea. I guess that is up there with telling people Lyme only needs 3 weeks of abx! Kassandra
  6. confusedks
    That actually brings up a good point. I have a question for anyone about vaccines actually. I am supposed to have another HPV shot, it was actually supposed to happen in October, but we didn't get around to it. Is that really a BAD thing? I worry about not using our technology to prevent something such as cervical cancer, but I do realize that there are risks...
  7. confusedks
    Last time it took them about 2 days to get the Iron. The Dr. ordered it on a MAJOR emergency basis as it was urgent. I was actually the first person who they ever gave Iron to because it is usually a hospital outpatient thing because people have had fatal reactions. The poor nurse who administered it was SO nervous the first time they gave it to me. LOL!...
  8. confusedks
    We will tell the Hematologist when we see him. I'm sure he will be outraged, as were we! My mom is going to write a letter to the Medical Board of America (or something like that...) telling them about the negligence on the part of the ER Dr. and she will CC it to the chief of staff at the Hospital. We will also not pay the bill she sends us because she...
  9. confusedks
    I will see if they can get me in before the end of the month. We also have an appt. with a GI for the 19th. Also, the Hematologist is on the 12th AND another LLMD/naturopath on the 27th. We are trying to figure out when we can see the LLMD. I am more interested in the LLMD we have the appt. with on the 16th than the Naturopath. But, through all of this, I...
  10. confusedks
    I want to second what the above poster said, MAKE SURE THEY KNOW YOU ARE GLUTEN FREE! I got so sick in the hospital because they gave me oral meds with gluten in them...then had to push anti-nausea meds through my IV! It was ridiculous! Also, do you have anyone who can bring you food? This is really important. No matter what the nutritionist said, I still...
  11. confusedks
    Paula, I am sorry to hear you are still struggling with this. Is he for or against medicine? I know when I was 14 I would rather be on a gluten free diet than take lithium! He may rather take a pill than be on a gluten-free diet since it would be easier for him short term. I can't remember...have you guys tried family therapy? (I don't mean to overstep...
  12. confusedks
    Donna, Hopefully the LLMD's office can do something. Now it is looking like we may not be able to go though. My hematologists office called back and the on-call Dr. said that I will need iron IV's...STAT! Since he is not my hematologist, he told me to go in on monday for an appt. with the hematologist. If I have to have iron IV's, we are going to...
  13. confusedks
    I hope they can figure it out too! The problem is that the LLMD's office manager doesn't pick up the phone and only returns phone calls at about 4.30 in the afternoon. We are also trying to get the insurance to cover more iron IV's. The on call hematologist is going to call us (since mine is out of town until Monday...of course!) and tell us whether...
  14. confusedks
    Rachel, Thank you! I think that is what it is. It's dairy, gluten AND soy free so I thought I was safe. I guess I was wrong! Kassandra
  15. confusedks
    I would suggest you go completely casein free. There are many substitutes that you can use instead of goat's milk or regular milk. I use hemp milk or a certain brand of rice milk (NOT Rice Dream!!!) that are both gluten-free. I am also soy free, so I can't use soy milk. The goat's milk thing is really a personal choice. I have no interest in trying it...
  16. confusedks
    I don't eat them because I worry about getting CC'd. People aren't very cautious about whether the soup containing gluten drops into the "safe" chili. It is a personal choice...how sensitive are you? I'd rather be safe than sorry. Kassandra
  17. confusedks
    Tom, Thank you for the offer! It's in Redwood city (I think...so many dr's I can't keep track anymore! ) Everyone, The Lyme DRAMA has escalated! We were using that Dr. who turns out to be a wellness director, and we used them to have Igenex send labs to them. Well, it turns out since he is not a Dr. and the Dr. in the office wasn't there on the...
  18. confusedks
    Andrea, Do you know if there is any way to have Igenex do the labs STAT? Kassandra
  19. confusedks
    In N Out is amazing! If you don't live on the west coast though, that won't do you any good. Also, some people buy little deep friers and make them at home...it's pretty easy. Kassandra
  20. confusedks
    I totally remember when I first went gluten-free it was so hard! But, if you post what you would serve her on a typical week...people will give you suggestions. I did this, and it was the most helpful way to get ideas. Good luck! Kassandra
  21. confusedks
    So, I have no idea if I said this or not, but... I officially have an appt. with an LLMD on Nov. 16!!! Wooohoo <happy dance>! I also have an appt. with a naturopath who specializes in Lyme and nutrition! YAY!!! That's for Nov. 27. I am very excited. My only concern is that the Igenex results won't be back before I go to the LLMD. Will that be...
  22. confusedks
    Thank you all for your replies. I am actually not looking for a religious school. I have found called Keystone, but I am just trying to make sure they are properly accredited through the proper accreditation boards. I don't want to spend the next 1.5 years schooling and then apply to college just find out that they won't transfer my HS credits. Kassandra
  23. confusedks
    Thank you! That sounds really good! Kassandra
  24. confusedks
    Julie, That onion idea sounds like it would make me cry (onions are so strong...my eyes water). And, I don't think I need ANY help sleeping! That is not my problem at all! Carla, HAVE FUNNN!!!!!!!!!!!!!!!!!!!!! Congrats for Chloe! I am very excited for her. Andrea, Thanks. I am just about to start! Everyone, So since I am no longer...
  25. confusedks
    Hello everyone, I think I spent the entire day on the phone yesterday. LOL! Carla, the second I got off the phone with you, my dad called from NZ. Then my friend called me and we were on the phone until almost 12!!!! I agree with Carla, phone conferences would be a disaster to our cell phone bills! LOL! They would be fun though. The Lyme brain...
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