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sjust

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  • janelyb

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  • Gender
    Female
  • Location
    Sacramento Ca

sjust's Achievements

  1. My dr. is a G/I specialist but I have little faith in him. He flat out states that a child under the age of 8 months can't have celiac. We all know that is not true but try to get a dr. to change their mind. We have pretty much decided that we will get a second opinion and if they agree that scoping is the way to go then we will probably do that. I don't know what else to do at this point. It has been 4 months that we have been unable to figure out how to fix her issues.

  2. So the G/I has decided that he wants to scope my 6 month old to find out what is going on. She is having green mucusy bowel movements. He says he is looking for damaged villi but not for celiac cause she is to little for that. My question is, has anyone had a baby this young scoped? It sounds pretty invasive and I really don't want to go that route. I am not even sure what it will accomplish. He has only decided to do this because we asked for a referral to Stanford.

    Thanks

    Sarah

  3. I would love to know what your daughters issues are. We are in the same boat. Rebecca began having issues about 4 months ago and is now 6 months (today actually). She is exclusively breastfeed and I have removed

    Gluten

    Dairy

    Eggs (starting to add these back in when cooked in something like bread)

    Soy

    Nuts

    Citrus

    Beans

    Brocolli

    Corn (just took out even the small corn)

    Even with all these items removed her poop remains green and mucusy. I know that some of these foods are definately an issue. Dairy scalds her butt, Soy makes her spit up. We avoid nuts because my older son has allergies to them. Beans seemed to give her gas. She is a very small baby only gaining about 2-3 ounces a month on average (She is only 11lbs. 13oz.). We are trying to get into Stanford to see a G/I at the moment but are getting the run around. I know how frustrating it can be.

    Sarah

  4. Here's a link to a Gluten-free Casein-free hot dog bun recipe made by the same lady who made the famous bread recipe. You should be able to turn it into hamburger buns. Let us know how it turns out if you try it!

    Open Original Shared Link

    What is amaranth flour and is there a common substitute? I hate to buy another flour.

    Thanks

  5. I just got Robbie some rice cakes. I got the chocolate ones for a treat and he seems to love those. He is also into raisins and he likes the tortillas I make. Cheese is huge, yogurt, apple slices, grapes. We have not gone the specialty route at all cause it is so new. Oh, he likes Envirokids Gorilla Munch cereal as a snack and the Envirokidz Organic crispy rice bars are good too.

    Sarah

  6. Thank you both so much for the advice. I have seen a lactation consultant and she does not think it is a foremilk/hindmilk imbalance but I did think of that. She tested my breastmilk and at the beginning of a feeding it has more fat than most formulas on the market.

    I have stopped eating the chips so will see if that helps. I did notice that Rice Dreams said it contained gluten and I am using Pacific which states that it is gluten free. It is so hard as I do not have the reaction to the food to tell what could be causing it. I stopped buying bulk rice flour because I realized the risk of cc was incredibly high and that could be part of the problem. I am also taking the entire house gluten-free which is not making my husband very happy but I hope it will help.

    Thank you both again. : :)

  7. I saw that recipe for bread and thought it sounded good. Do you substitute the same amount of brown rice flour as it calls for gluten free flour and the same amount of sourgham as garfava flour? I would like to try to make it.

    Thank you for the advice. I will definately try to not replace old favorites with new ones. Luckily I found a tortilla recipe that he likes better than the gluten one. The other big hurdles will be not having chicken nuggets or bagels.

  8. I have decided to take my entire house gluten free. I worry that the cc to my daughter is too great and also question whether my 3 year old might be gluten intolerant. My concern is how do change a 3 year old who is use to breads, pasta's ect. over to a gluten free lifestyle? Also, snack ideas would be great. This is going to be hard for him I suspect but want to make the transition as easy as possible.

    Thank you

    Sarah

  9. Here is my tortilla recipe.

    1/4 cup tapioca flour

    1/4 cup potato flour

    1/4 cup white rice flour

    1/4 cup brown rice flour

    1/4 cup potato starch

    1 teaspoon salt

    1 1/2 teaspoons xantham gum

    1 teaspoon baking powder

    1 1/2 tablespoons oil

    1/2 cup water.

    Mix together, I usually need to add more water until it is moist but not sticky. Let sit for 10 minutes. Roll flat with rolling pin. Make sure they are not too thin. Mine are never round but they are suppose to be. Cook in skillet until desired color is achieved.

    Good luck. Hope this helps.

    Sarah

  10. I am struggling with the same type of issue. We went to the dr. yesterday and he said it was colic, and claimed that the green mucus poop is unrelated to it. I am not sure why he would assume that but he has. We are in the process of eliminating all gluten from my life so we will see if it gets better. I wish you the best of luck.

    Sarah

  11. I would love to go with you to the next meeting Janel. Do you know how you get into Stanford? I don't have the items that you mentioned but will definately get them. We have gone gluten free with all pasta's so I will just replace the colander and buy spoons for me. One thing I am wondering about is the waffle maker. It has been gluten free as long as I have but was used for gluten before that. Should I replace it?

    Thanks

  12. The chicken broth I am using is Swansons Natural Goodness. Cambells told me that the Natural goodness was gluten-free but not the others. As for the chips, they are Lay's not Ruffles, sorry. The ingredients are potatoes, sunflower oil and salt. Are they not safe? As for the flour I do buy my white rice flour in bulk, guess I will have to stop that but everything else is individual and from the Korean market.

    The G/I has not run any gluten bloodwork, or any bloodwork at all for the matter. I am pretty sure we see the same one or at least they are in the same office. I see Dr. McDonald. I found gluten-free hair products and am working on makeup. I dont really use the toaster so that is not an issue and the pans I have are new with no scratches so another part of this board told me they should be ok to keep using.

    I hope that I am right about what is causing this but I guess the only way to be sure is to eliminate everything gluten and go from there. Thank you again for the support.

    Sarah

  13. Thank you all for your support. I found that my shampoo and hairspray both contained wheat so they are out. I am looking very carefully at everything I eat. It is a pretty bland diet so not that hard. For breakfast I make pancakes that consist of brown rice flour, potato starch, tapioca flour, sugar, salt, rice milk and add some cinnamon and pumpkin pie spice to give them some flavor. I usually make a smoothie around 11 and it has peaches, pears, mango and pomagranate juice. For lunch I have rice made with chicken broth and seasoned with italian seasoning and chicken seasoned with either italian seasoning or a little salt, pepper, chili powder and cumin. I have ruffles potato chips for a snack and usually chicken seasoned the same way and either rice or potatos with the same seasoning for dinner. Sometimes I make tortillas with dinner and those are a rice flour mix too. That is pretty much my diet at this point. I hope that I am on the right track with the gluten. When the gluten first came out the green poop went away and when we challenged it, it came back so that is why my focus is on it, not other foods.

    Sarah

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