GFhopeful

I can really relate to feeling off. I feel like I have only had hours of feeling "normal", not even days, since all this craziness started. I too had a crazy reflux episode that I can't believe was reflux and it was so crazy and painful and heart attack like. I have also had dizziness, nausea, severe headaches, all in "attacks" that keep me in bed or at...

i was tested for this by the GI doctor - it was a hydrogen breath test and it is an easy but several hours long procedure. you just have to drink a fructose mixture and then breathe into this device over a period of several hours. mine came back negative, along with everything else, so I'm in a state of waiting and still being gluten/dairy free until I...

just at my little regular neighborhood grocery store, they have some gluten-free foods that are pretty good. there are mi-del mini chocolate chip cookies that i really like for a treat and so you don't feel deprived. you really don't need to feel deprived to be gluten-free and when eating at home.

thansk for posting - i'll keep the gatorage or dehydration issue in mind. i have been having crazy headaches both before and after going gluten-free. i have been "un-diagnosed" with Celiac and Meniere's (inner ear problem that causes dizzy bouts) and doctor's now are saying that maybe all my symptoms have been coming from migraines and migraine variants...

sorry to hear that - that's silly. so you have to waste your time 1st and then they'll take you, huh? that's annoying. i did have to send slides and paperwork for them to take me but i thought that was because i was questioning the diagnosis and it would be a second opinion. i didn't know they wouldn't take you otherwise. i'll keep me ears open about...

I did get the gene tests after not getting all better after Gluten-free Casein-free. I do not have the genes for Celiac but the doctor said that I could still have issues with gluten and will have to try a challenge and see how I feel (once I feel better). I am still having symptoms too and have been really good about eating whole and natural gluten-free...

Dr. Murray really emphasized to me that I could have a gluten sensitivity, although I do not have the genes for Celiac. He encouraged me to feel better first and then try gluten and if I feel any raection to get right off of it as there are people out there that do not have Celiac gene but can not handle gluten in their diets. He also wanted me to call...

I know it's a bit of a drive but I would consider just driving down to Mayo Clinic. They have a Celiac expert in the GI department who can hook you up with all you will need if it is DH and make you feel confident in the diagnosis. I am on the north side (WHite Bear Lake) and it only took an hour and 15 minutes to drive down there. It's not as far as you...

As I understand, you can have the genes for Celiac but not have Celiac - it doesn't mean that you will eventually get it either. If the biopsy did not show damage to the villi and all blood tests (besides gene test) were negative, he does not have Celiac. I think that around 30% of the population has the gene markers (could be wrong but I know it's a much...

i'm just throwing another idea out there but i would think that doctor's would have recognized this - my daughter had a skin rash called mollescum contageum (don't know the spelling anymore) and it looked a bit like that. it was one her butt for almost a year and the doctor said it was just a virus and we couldn't do anything but leave it alone. they would...

I'm sure you know this but stress is a big factor in stuttering and stuttering is a thing that seems to come and go in people's lives. when your body is under stress (i.e. getting glutened) i think that it would be very likely that especially if you had a history of stuttering, it would emerge again. i will have to think about the idea that gluten may...

That feeling that something else must be wrong I think seems to be common from what I've read of others and what I've experienced. i'm thinking it's part of the denial process that we're in when diagnosed. I've had many symptoms that have come and gone over the past months and I am so careful with food (no eating out, whole house is gluten-free, etc) and...

me too... before diagnosis the dizziness was becoming worse and worse. i had tingling hands and feet, jerks that would wake me up at night, seeing stars, heart racing to name a few. i also had migraine headaches for several years. it was not until around 2-3 month before diagnosis that i had ANY GI symptoms at all. since going gluten-free, all of these...

i would say to get a second opinion from another GI too. i am waiting to get a second look at my endoscopy as i had negative bloodwork but positive biopsy too. brfore going gluten-free, i did have GI symptoms after months of not having GI symptoms but other symptoms (dizziness, headaches, bouts of illness). It seemed to escalate to GI symptoms and weight...