Susan-in-NC

I wish I was so lucky, just had a 28 year marriage end because he thought my being gluten free was too big of a problem. Would not brush and floss for me would not change eating habits and started going "out" with others because the could be spontanious. So, yes you can be glutened by a kiss. And, finding someone who understands that isn't easy. ...

Waiting and wondering myself about response to your question. I scored low on both tests -- way below, under teens in available iron and was told total lack of stored iron - caused heart mummur. My Doc (who assured me the one thing I did not have prior to biopsy was Celiac) just told me to take iron 3X's daily with vit C to assist w/ absorbsion. Still...

I also have had severe back pains-- put it down to age and arthritis. but it does seem to get stronger when I have been marginally glutened -- trace amounts rather than a full blown I know I ate wheat sort of thing. Generally when I get lunch at work and have a problem, cafe mgr's hubby is CS and she tries to keep an sharp eye out. I speak with her she...

There was a question early in this thread regarding the turkey meat and being OK, because it doesn't touch the stuffing inside the bird. I for one will not be stuffing anymore, or do two birds and using seperate basters on them. I mentioned basting very purposefully! I believe that the basting we do to acheive the lovely golden brown skin on our birds...

Hey there! I also get toe cramps, most often in the large toe. PAINFUL! I have gotten foot cramps (in the arch) for years not so much in other large muscles. Then the summer before last summer the toe cramps started in earnest, so strong I could not stand or walk on the foot involved. Dr. gave me no reason or advice. Just massage and it will pass. ...

I second what Dandylionmom said, we don't want our kids to have ANY sort of problem, esp one we may have passed on! And, as many have said -- give her time to see you getting better, that should make all the difference in the world to her. It is a tough thing to tell family sometimes. I had both my kids tested. The daughter I thought was scott free...

I love Mrs. May's stuff! I have found them at BJ's Club. They are sweet, but where I work there are "celebrations" where people bring in doughnuts, cakes and other goodies. Instead of missing those treats, I get out my snacks. It helps me cope! Susan

Chipoltes opened recently near where I live. I was so excited, because my favorite pre Celiac mexican resturant isn't a "safe" place to eat now. So, my husband and were going to give Chipoltes a try. As I said I was very excited, went in and happily was telling him about how I had heard such great things and how safe it was for me to eat here. THEN I...

Since I work with health benefits for a very large company, I thought they would be more willing to "work" with me. I will check the HIPAA laws tomorrow and post what I research. I know with the ADA it is on a need to know basis. Also, with disability it is on a need to know basis for reaching reasonable accomodations. HR would know, and have to keep...

Yes, I have been told Celiac is covered by ADA -- please see title of original post. The question is how does this work? Symptoms are so general, different from person to person. And, so many Drs just don't seem to fully understand how this effects each person differently. For instance, I get fatigue, brain fog and the big D if glutened. I have a heart...

I am so right with all of you. In my husband's family, I have been the one to "care take" the group. One SIL has several med problems and generally uses them as a crutch to get out of family dealings (have seen her out when "sick at home and not able to help with _____) BIL's wife has MS and this truly has interfered with her activities, but he uses it...

I recently was assigned to a new manager. She "strongly" suggested that I contact the Co. HR dept. and report my CS as a disability. So, I did. They however were not very encouraging. "If this unduly interfers with your job discription and basic accomodations are not able to be made" type of thing. I was only Dx last June, and since going gluten-free...

In my family, three siblings can't be bothered. One is waiting for better health insurance coverage before she gets tested, has requested that the son in the military get tested, niece is waiting for better coverage. I believe that with the recent changes in ins. laws, that if covered by ins, and testing positive, they cannot be disallowed for coverage...

Families are like that. Sometimes they understand other times you wonder where in this world they came from! I have a SIL that for years we have been making adjustments for, deseriably, she has MS and sometime just is tired and weak. Therefore not up to the large gathering. In fact, prior to Dx I often had her brother and father to our house for family...