Jmartes71
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Latest Celiac Disease News & Research:
Everything posted by Jmartes71
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I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that...
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Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week, in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with...
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I also noticed I get debilitating migraines when I smell gluten, wheat and its not taken seriously when it affects one in every way.Im still begging to properly be heard.I also noticed tolerance level is down the drain with age and life changes. I have been told by incompetent medical that im not celiac or that sensitive. Diagnosed in 1994 by gi biopsy gluten...
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Nope its just me because they can eat wheat and when we use same pans I found out last year thanks to you guys and the autoimmune website im learning,we are not to share though clean, same with sponge. I just wish doctors understood. I am with new gi and new pcp but im falling apart because blood work is fabulous.Im so ANGERY.I have reached out to my local...
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Curious if any other disregarded celiacs medically, not eating wheat and other foods im not to consume but yes its in the house because others have to eat. Currently dealing with eye issues, skin issues,blood and colon look fabulous because NOT consuming. Now im dealing with i may have ms or meningioma....Im also sibo positive, ibs which they think is the...
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- celiac disease
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Oh great.As Im battling for help with my relaxed celiac that is giving me health issues though not consuming.gluten-free since 1994.I had second brain scan this past Saturday. Also when I say I gave been diagnosed by biopsy in 1994 it still doesn't matter because it didn't come from that doctor.Im scared because my health is slowly becoming worse and its...
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- celiac disease
- defects
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I tried but considering not with press and I put self.I didn't get an invite on the cdc.Also I went in yesterday for mri head scan considering I get headache, migraine but I know the triggers smell of nasty poison ( wheat) i got a thing back because there's a finding but non specific. In my heart I know its because im still healing from being a bus driver...
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I saw Newsom is holding conference with cdc and news conference can join ect.I put my name and who im with self since not with media. I do want the celiac circus to stop with patients. I found on news watch
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Shingles - Could It Be Related to Gluten/ Celiac
Jmartes71 replied to Ginger38's topic in Related Issues & Disorders
Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023. -
Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac...
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Shingles - Could It Be Related to Gluten/ Celiac
Jmartes71 replied to Ginger38's topic in Related Issues & Disorders
Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing -
Doterra is a life saver and yes I feel like im waiting because Im getting yes you are celiac, no your not celiac. Im so FRUSTRATED, exhausted and tired of explaining to medical why I feel this way.Im stressed because my body isn't feeling well.Yes I am and no it's not just a food allergy as downplayed with doctors Ive seen.I even went to the " celiac specialist...
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I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in...
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Doterra literally has saved my life hands down.Nateral supplements that really are pure grade and does work organically with ones body. I had to stop all my nateral supplements to be a good puppet for medical so I can get the financial help that my body won't allow me to do more days than not these days, every day with menopause.....Not feeling well.Had to...
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I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
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Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted...
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Understanding the Role of Transglutaminase 2 in Celiac Disease
Jmartes71 commented on Scott Adams's article in Latest Research
I was listening until I saw Standford, I was diagnosed in 1994 before any foods eliminated from my diet and diagnosed celiac by Kaiser. I was medically gaslight and continuing and so I went to Standford this year so I can get the medical help and the documentation for disability since my body is literally falling apart but per pcp Im fine because blood looks...- 3 comments
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EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
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Fighting for a name
Jmartes71 replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thankyou so much for your words.Its a hard battle when a supposed well known hospital whose celiac " specialist " has down played me because my colon looks fine and put it in my medical and so pcp doesn't take seriously. In their eyes we all carry that gene.Im having alot of bad days trying to be positive because of it. -
Im so frustrated and still getting the run around trying to reprove my celiac disease which my past primary ignored for 25 years.I understand that theres a ray of medical that doctors are limited too but not listening and telling the patient ( me) that im not as sensitive as I think and NOT celiac!Correction Mr white coat its not what I think but for cause...
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Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do...
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Tea Bags and Gluten
Jmartes71 replied to Inkie's topic in Gluten-Free Foods, Products, Shopping & Medications
Wow Im a tea drinker and didn't know, perhaps this is why im having issues with my ghost disease.