Aretaeus Cappadocia
-
Posts
16 -
Joined
-
Last visited
-
Days Won
2
Recent Profile Visitors
Aretaeus Cappadocia's Achievements
About Me
Dx'd with celiac early in 2025. I got tested because my adult child was suffering symptoms and was dx'd late in 2024.
I was surprised when I started "feeling better" 5 days after starting gluten-free diet. By late 2025, I lost over 30 pounds and I'm enjoying health improvements in several things that I had previously chalked up to getting older (vitamin levels, blood glucose, thyroid, etc). My IgA levels went from 140 down to 2, where "normal" range is under 14.9.
Like many celiacs, I struggle to maintain a healthy and safe diet - gluten free, nutritionally balanced, high fiber, low salt, etc. I've embraced cooking gluten-free foods from scratch. I keep a spreadsheet to track my ingredients and a google drive to track my recipes (>200). I rarely eat in restaurants, and then only dedicated gluten free ones. I don't eat oats any more.
My food sources: Azure Standard, Costco, Vitacost, Penzey's, Rani, iShopIndian, iherb, Weee!, Safeway, farmers markets
My linked IG account currently is for following people who wrote a gluten-free recipe that I tried and liked. Eventually I will add photos of food along with recipes.
-
I was dx'd with celiac last year and started a strict gluten free diet 10 months ago. Since then I've enjoyed a noticeable improvement in my health. One improvement has been that my essential tremor has almost completely resolved. I've had essential tremor for 50 years but in the last few years it had been getting worse - I could not hold a full cup...
-
I had what I thought was a helpful interaction with Penzeys today. However, the result is a little different than other Penzeys posts on this website. In a previous interaction last year, Penzeys told my spouse on the phone that everything they sold was gluten safe, except for fenugreek and mixes containing fenugreek. Today I called them again because...
-
Traditional brown rice vinegars are made by fermenting brown rice and water with koji (Kōji 麹). The gluten risk comes from the method of preparing the koji: rice, wheat or barley may be used. Regardless of the starting grain, "koji" typically will be listed as an ingredient, and that term alone does not indicate gluten status. I called Eden Foods re...
-
Scott Adams reacted to a comment:
Italy Tests Nationwide Screening to Catch Hidden Celiac Disease in Children
-
A broad screening program like this also has the potential to provide insight into the reasons why ~10% of people with HLA DQ2/DQ8 develop Celiac while the majority do not.
- 1 comment
-
- 1
-
-
- celiac disease
- children
- (and 8 more)
-
knitty kitty reacted to a post in a topic:
Help understand results
-
Help understand results
Aretaeus Cappadocia replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
"I'm wondering if she just hadn't eaten enough to test positive?" --> Because your daughter is "IGA deficient", the (gliadin IGA) test she was given could not work properly and the result of that particular test was meaningless. The amount of gluten she did/didn't eat would not matter for that part, whether or not she actually has celiac disease.... -
Help understand results
Aretaeus Cappadocia replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
tldr: "we tested your daughter with one test and that result does not suggest Celiac. However, the test we used should not be used as the initial screening test for celiac (like it appears they did) because it misses a lot of cases ("low specificity"). No further testing is scheduled or pending" We eat "gluten" and our bodies digest part of it into ... -
Scott Adams reacted to a post in a topic:
Finding gluten free ingredients
-
Scott Adams reacted to a post in a topic:
Finding gluten free ingredients
-
I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality...
-
fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
-
Scott Adams reacted to a post in a topic:
Gluten free nuts
-
Gluten free nuts
Aretaeus Cappadocia replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
I wanted to respond to your post as much for other people who read this later on (I'm not trying to contradict your experience or decisions) > Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs, are labeled "gluten free" in the Calif Costcos I've been in. If they are selling non-gluten-free in your store, I suggest talking to customer service to... -
Scott Adams reacted to a post in a topic:
Gluten free nuts
-
Gluten free nuts
Aretaeus Cappadocia replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
Azure Standard (https://www.azurestandard.com/) is one of my gluten-free vendors. I've purchased nuts, "grains", flours, and many other products there. If you are not familiar with Azure, you have to set up an account (no cost) and get your purchases either via shipping (expensive) or "drop" (free if you buy a reasonable minimum). Search their website... -
Scott Adams reacted to a post in a topic:
Dedicated gluten-free Restaurants in East Bay (near San Francisco):
-
I strongly recommend 2 dedicated gluten free (gluten-free) restaurants in my area (East Bay of San Francisco Bay Area) (2025) -- Life is Sweet Bakery and Café in Danville. I've been a few times with friends and tried multiple entrees and salads. All very good and worth having again. I've also tried a number of their bakery goods. All extremely good ...
- 1 reply
-
- 1
-
-
Oldturdle reacted to a comment:
New Study Reveals High Risk of Digestive Cancers in Patients with Celiac Disease
-
Scott Adams reacted to a post in a topic:
is Kirkland Imported French Brie gluten free?
-
Agree with everything your wrote. Just to clarify my earlier comment, I was specifically focusing on cross-contamination risk, as opposed to identified, obfuscated, or occult ingredients. I've noticed that Costco does like many other manufacturers and errs on the side of caution by putting the major allergen exposure label on products that are actually...
-
Scott Adams reacted to a post in a topic:
is Kirkland Imported French Brie gluten free?
-
As a more generalized response to your question, I've been contacting Costco customer service for several Kirkland products because they are either unlabeled or contain the generic warning label about being packaged in a facility that handles all major food allergens. Each time I ask, my question is assigned to a specific person who researches it and...
-
Aretaeus Cappadocia reacted to an article:
The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free
-
RobinGroenevelt and Scott Adams, Thank you for your comments but I think your responses don't address my question. I am curious about the extent of diet compliance in the large meta study and whether they did subgroup analysis by diet. This retrospective study found evidence of increased risk of cancer and other co-morbidities in their Celiac cohort...
-
Aretaeus Cappadocia reacted to a post in a topic:
Increasing symptoms after going gluten free
-
I read your summary here, as well as the article that you linked. I don't see any reference to the diet of the exposed or control groups. Did the subjects adhere to gluten-free diet after their celiac disease diagnosis? Were there subgroups that adhered and ones that didn't? For this study, did diet impact the odds ratio for the various conditions that were...