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ShayBraMom

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ShayBraMom

  1. ShayBraMom
    to me it sounds very much celiac! Usually after the Gluten-challenge and a positive or inclusive Biopsy it's automativcally diangose Celiac! Some here have said that Insurances often can and or will refuse you or give you a pretty high quote if they know you got a Celiac in the family. So, I'm not so sure if it is betteror worse to actually have it in writing...
  2. ShayBraMom
    No, not how you think *lol*! I finally contacted a Supportgroup, sadly the closest one is over an hour of drive from here. They invited us for their annual POTLUCK BBQ coming up and well go! It'll be so nice to be able to give Brandy anything she wants since everything will be glutenfree!!!! They also put me in contact with another Lady who is Celiac as well...
  3. ShayBraMom
    My daughter is sick right now, just a very mild Earinfection- still her fever spikes over 105. Naturally I treated her with Motrin, little did I know that only the newer packages are glutenfree- gluten and caseinfree to be exact! I was already wondering why she had the runs and extremely bad and stinky gas, even though she was glutenfree and dind't get better...
  4. ShayBraMom
    Well, I'm so sorry! There is a good chance that the Celiac is actually the Culprit that caused her Diabetes in the first place! Sadly enough, while damage in the small intenstine due to celiac is fully reversible just with the glutenfree diet, the Diabetes is not! Since you said somethign asobut that she loves Pretzels, go get her the Pretzels from Glutino...
  5. ShayBraMom
    Hi, my name is Susi (just like your dd's) and I'm german like you. Mu dd's samples has been gone to EnteroLab aobut two weeks ago, I"m hoping to latest by the end of the weekend to get the results for my daughter, I had ordered a Malnutrition Stooltest on her! I hope you get the results you need to hel your dd, can't wait to hear more!\ Nig hugs, and you...
  6. ShayBraMom
    Any new treatment, any new way of doing in the medical field is first deemed as uncredible. Many have had very good experiences here and I felt comfortalbe enough to give them a try! We are waiting on results for my daughter of Malnutrition tested through stool. They where very professional (enterolab) and very nice, answered many oft my many questions, prompt...
  7. ShayBraMom
    Hello and welcome to this board! Everybody is great here and very helpful, just by reading the posts of others you'll find som many answers and information! Wow, I would love to have a gluten free store here! Heuy,. in the sotre here they offer a shoppingguide for over 20.000 store brand prdoducts, you save time checking things in the store. Just look up...
  8. ShayBraMom
    I know, even though I see my sons friend who has a dealdy peanutallergy, even tracescan kill him and he has a hard time that he can't just eat the B-day cake he was invited to or eat his Halloweencandy without showing it first ect- I'm not thaaaaat worried! sure it is hard, but opur kids will adapt, and according to the Ped. Gastro- he says that kids come...
  9. ShayBraMom
    I know the food is carzy expensive! but go here, that is her on CVeliac.com- they have a Shoppingguide about more then 20.000 products off the shelf in our supermakrets, that are naturally glutenfree or point them out with out us having to read uip on it. This should help cut your costs down, I'll buy me one too! https://www.celiac.com/catalog/product_info...
  10. ShayBraMom
    Check out the dollar Store or the 99 cent store, ours has a huge selection of things that are cool for kids! Waterballons are loved by kids of all ages. I'm not sure where you are from, but if it is in a colder region of ciurse the idea is not so good, but if you are like me from Arizona, it is still very wamr most fo the days and Waterballons are absdolutely...
  11. ShayBraMom
    Did you know that Celiac desease can trigger Hashimoto? I don't know if you've ever since this Webpage it;s called the Gluten-file! Look on the right hand side and read down, to what Celaic can cause. You'll find Autoimmune thyrouid desease right there, Hashimoto is a autoimmun desease of the Thyroid........ Open Original Shared Link AS to the original...
  12. ShayBraMom
    YES<YES<YES<YES!!!!!!!!! My daughter will turn 1 yr. in 2 weeks she still gets breastmilk. and oh boy, if I eat noddles or bread, 24 hors. later SHE will be in hell! Igt her never to eat Oatmeal, otherwise I wuld have maybe realized that she has issues with that! and if they got issues with wheat, you can bet your butt that they'll more then likely...
  13. ShayBraMom
    My son had one last year when he was just 3 yrs. old, he did great! He did not remember anything, he just really loved the two or three popsickles he got to have afterwards! they knowck them out with gas where they can piock in most cases what they want it to smell like- Banana, Strawberry, Melon or something for example, after that they are done pretty quickly...
  14. ShayBraMom
    MiraLax is heaven sent! My son has had constipation even on Breastmilk since birth! I to nly got worse when he was older, when he was almost 2.5 yrs. old I got so frustrated and aksed for a solution form the Ped. since she diend't even wanted to sent us to a Gastroenterologist! My son had started holding the stolls in and his instestines got really stretched...
  15. ShayBraMom
    Well, my kids Bloodtest for the Celaic Genes came back today, my daughter is pos. for DQ2 and DQ8 my son only for the DQ2. There was no bloodtest for the antibodys done so I'm planning on getting a stooltest from enterolab, which one should I take- the genes are obviously there! I can't afford to buy both at the same time so which one would you guys recommend...
  16. ShayBraMom
    No, they did only test for the Genes, the Gastroenterologist was smiling aobut me not really thinking that something would come up! I'l planning on getting a stooltest from enterolab, which one should I take- the genes are obviously there! I can't afford to buy both at the same time so whichone would you guys recommend? Gluten Sensitivity Stool Test...
  17. ShayBraMom
    If you have Celiac yourself, you should be waiting even longer then just 4-6 month with introducing any grain, breastfeeding or not! Congrats by the way, i'm so jealous, you just had the greatest exerpience ever, sadly we are done alrady with two kids, so I'm not gonna get the chance again!
  18. ShayBraMom
    Ok, my kids finally had their bloodwork done adn I got the results today, since we are not gonna see the Gastroenterologist for another month I need your help! My 11 month old HLA DQ2 positive HLA DQ 8 positive HLA allelic variants associated w. Celiac disease detected. DQ2 hererodimer (HLA DQA1*0201/DQB1*02) and DQ8. my...
  19. ShayBraMom
    Sounds to me toop very much like Glutening! If it was that bad for you I wonder how bad it must be for the kids to be glutened! I hope you feel better soon!!!!
  20. ShayBraMom
    You know, if it comes to that I'm sure every topic has been covered in here at one or another time! But we also socialize here, if somebody doesn't answer because they feel you should read up on it it's their thing, most people here I'm sure do not mind answering your questions even if the where covered at another point! We are here to talk and discuss and...
  21. ShayBraMom
    for the last two adn a half weeks I've been trying to get the Bloodwork for Celiac-Panel with Prometheus done for both my kids! It was a back and forth with calling and so on! first the Lab said it shouldn't make a difference whith whom the Panel is done, I disagreed and insisted that they contact the Gastroenterologist since they had different Panels for...
  22. ShayBraMom
    My son too loves the Very Vanilla in the purple Carton very much as well as whe lowfat chocolate soymilk from Silkmiolk! I too would suggest to avoid cowmilk! One Ped. told me straight out that cowsmilk is made for the calfs and not for humans, as in breastmilk to there is growthhormone in Cowsmilk for the calfs as well, another factor why a lot of kids react...
  23. ShayBraMom
    MedicAlert is a veruy good Idea if you child has a condition or Allergy that could threaten her life! Like my son, he's had a Medicalert Bracelett since he was two for his epilepsy and contraindication to Benedryl, since this yerar it also has on it that he has a Braininjury and Sensitivity to Morphine! Since my son has to have his Meds tyo continue to keep...
  24. ShayBraMom
    As for Fingerfood/snacks you can get those Gerber Graduates mini-fruits! they are tiny pieces of real fruit or corn, they are just freeze dried, nothing added. they have Apple, Apple-strawberry and corn, those are the ones I've seen. Thoses things melt in the mouth/soften realy fast. they are awesome and purely Gluten or something else free, just freezedried...
  25. ShayBraMom
    I'm so sorry to hear about the Diagnosis but I'm also very happy for you that you finally know! Now you guys cabn concentrate on avoiding what feed the "enemy". Years ago I knew something wasn't right with my son but I couldn't put the finger on it!For two years I fought to have an EEG getting done. When it was finallly done it did turn out that I was right...
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