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Cath4k

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Cath4k

  1. Cath4k
    Does she want to transfer to Florida?? LOL. Cathy
  2. Cath4k
    Thanks everyone! I didn't want my first post to be too long, so I will clarify a few things now. She absolutely will NOT be eating on the mandatory food plan. She has already been told she can exempt out of it with a letter from her doctor. Consequently she WILL be in an apartment with a kitchen. It is just a matter of whether or not she...
  3. Cath4k
    Hi all, I don't really know where to put this, so I hope it is okay that I am crossposting it. This may be a weird message, but my celiac daughter will be heading off to college next fall. She is already accepted at USF (Tampa) and UCF (Orlando). UCF has told her that they can give her a single room with a kitchen, while USF says they do not have...
  4. Cath4k

    ARCHIVED Soy!?!?!

    Cath4k replied to Twila Marie's topic in Coping with Celiac Disease

    You may not like my answer, but here it goes... I do not trust processed food anymore. We kept getting glutened by everything that wasn't supposed to have gluten in it. We are sensitive enough that we cannot tolerate any level of cross contamination - even just from sharing lines. We kept cutting out more and more processed items until we finally...
  5. Cath4k
    The sneakiest and worst offenders for us have been: 1. Products that are labeled gluten-free, but are not either because of the PPM they allow or because of cross contamination. 2. Any freakin' item that has been run on the same line as a gluten product for processing or packaging. One organic juice company I was talking to was explaining that they...
  6. Cath4k
    Are you eating many foods with food additives like artificial colorings, artificial flavorings, BHT, BHA, TBHQ, aspartame, MSG, etc? These chemicals are very bad for everyone, but they are especially bad for people with damaged intestines/immune systems. All of us in my family react to these chemicals, but two of my dc REALLY react. It was actually what...
  7. Cath4k
    I second Ursa's suggestions for Enterolab and going gluten free right away! You could just go gluten free, but the test results will help you know for sure. While you could theoretically get a false negative and still try going gluten free, a positive result will really help you stick with the diet - especially if your dc is super sensitive to cross contamination...
  8. Cath4k
    My 16 yo dd has not been diagnosed with PCOS because the gyn. didn't want to run all the tests for it quite yet because my dd is so young and the doctor said the tests are expensive. I had already suspected PCOS because of her symptoms, but then I figured out that she was gluten intolerant because the symptoms matched even more so (many are the same.) ...
  9. Cath4k
    I am not an expert - so I can only repeat to you what I have read after a lot of research. From everything I have read, yes, multiple food sensitivities can indicate leaky gut - particularly if you cut out the foods that bother you and then develop new sensitivities to the foods you are consuming most. The idea is that the permeable membrane of leaky gut...
  10. Cath4k
    I have not been confirmed gluten intolerant yet, although I finally ordered the test and will be taking it soon. Here's my crazy story: I have never suffered from depression. I had some depressive type of episodes in my teens and very early twenties, but nothing for a long, long, long time. By nature of all four of my dc going gluten free a few...
  11. Cath4k
    My 16 yo dd only had one period and then never had another. It was one of the symptoms that drove me to figure out what was going on with all my kids. After two years without a period, she took a generic form of Provera for 10 days. She got her period before she even finished the progesterone and then stopped taking it. She has had two periods since then...
  12. Cath4k
    I just wanted to add here that my oldest dd's gastroenterologist supports the Enterolab results. He did do bloodwork on her which came back negative, but he said that was probably because she was doing well staying gluten free. He also did a gastroscopy (he was taking biopsies for celiac and for eosinophilic esophagitis - if it had just been for celiac...
  13. Cath4k
    I agree with everyone else about checking EVERYTHING, but you might also want to consider those "gluten free" foods. Horrible thought, I know. We have found that we cannot trust them. In our house, we are very reactive to even small amounts of gluten - I am talking "shared production line" amounts. It is really frustrating. In the last 3 months, we have...
  14. Cath4k
    Yes, my 4 yo and sometimes my 2 yo get a low grade fever when glutened. It is a low enough fever to be considered "normal" (usually under 101), but he/they definitely run hot for two days. This is in addition to behavior changes, symmetrical skin rashes, and changes in BMs. Cathy
  15. Cath4k
    I am not an expert, but it is my understanding that the biopsy has to be done properly. It has to be taken from the skin right next to an active blister. You say your doctor took the biopsy from your back where there were no spots. Would he be willing to test again when you have an active outbreak? Or better yet - maybe you should find a new dermatologist...
  16. Cath4k
    We went with Enterolab and all four of our dc came back gluten intolerant. Three of them are also casein intolerant. I can guarantee that their positive results are accurate, as evidenced by their improvement on the diet and their symptoms when they accidentally get glutened. I felt panicky about getting them gluten free as quickly as possible due to...
  17. Cath4k
    I am not from the UK, so I can't help you there, but I can tell you that the Salt & Pepper ones glutened us, big time! It was a nasty glutening. The ingredients read clean, so it must have been a "shared line" type of contamination or something. We are very, very sensitive to even the tiniest amounts. Cathy
  18. Cath4k
    My 16 yo dd has had these all her life and they have cleared up since she has gone gluten/casein free. She is just left with some scars which I think will eventually fade. My 4 yo ds also has them and they are almost cleared, too. When either of them get glutened in any amount, the bumps come right back. It is annoying because I have had both the pediatrician...
  19. Cath4k

    ARCHIVED Our Gi Experience

    Cath4k replied to Cath4k's topic in Doctors

    I PMed you. Cathy
  20. Cath4k

    ARCHIVED Our Gi Experience

    Cath4k posted a topic in Doctors

    I know this isn't a religious board, but I have to start this post by saying that God answers prayers! I was really praying for the right GI and it seems we found him! My 16 yo dd went to see him for an initial consult last Monday. The first good thing - he schedules an hour for an initial appointment, so he really has time to talk to the patient. I...
  21. Cath4k
    My 16 yo dd was never short. Actually as a baby she was always at the top of the chart. But she kind of stopped growing around 14 yo when she hit almost 5'7". This is a normal height and a normal age to stop growing, but I always thought it was odd that she didn't grow taller, as that was what we had expected her to do. This is the same age when we really...
  22. Cath4k
    This was our first Thanksgiving gluten-free. My mom always does Thanksgiving and she worked SO hard to get it right for us!! Mind you, we have to be gluten free, casein free, Feingold (which means no aspartame, artificial colors, artificial flavors, BHT, BHA, or TBHQ). We also cannot do corn syrup, high fructose corn syrup, or MSG. WHEW! She made two...
  23. Cath4k
    Gloves in a Bottle. It should be subtitled "Miracle in a Bottle." Open Original Shared Link HTH, Cathy
  24. Cath4k
    Thanks for your reply. We have replaced everything we can think of! We haven't switched our plastic storage containers for leftovers, but they don't seem to be causing a problem. I threw away all my flour containers. I didn't trust that I could get them clean enough - nevermind the fact that I didn't even want to open them and risk spreading the flour...
  25. Cath4k
    Our latest cross contamination seems to be Pacific Almond milk. It is the only thing that seems to be common to all of us and the newest symptoms we are having. Sigh. The cross contamination issue is the hardest one for us. Will we always be this sensitive??? My question is - Is there a list somewhere of safe products that are made in dedicated facilities...
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