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Joyous

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Everything posted by Joyous

  1. Joyous
    Yeah. People only hear what they want to hear and believe what they want to believe. I thought of ordering the enterolab tests for all of them, but I shouldn't be spending money on something like that... it would be worth it to me if I knew they'd "see the light" once they go their results, but unfortunately I don't believe such is the case. They'll cheat...
  2. Joyous
    I wonder if the doctor that told her she didn't have it would change his/her mind if (s)he saw her now. Okay, having thought about this situation a little more, it seems unlikey to me that she doesn't know that it's gluten that's making her sick, at least on some level. She's a smart girl and given her experience with this Celiac Disease, she's got...
  3. Joyous
    Or could you just mail some Dapsone with a note that says nothing more than "I love you" and see what happens? Or... If I recall correctly, you mentioned that your gene is recognized as a Celiac gene in another part of the world. Could you talk medicine with her... Ask in a curious tone if the GI mentioned her having that gene? Or talk science/medicine...
  4. Joyous
    Could you (or maybe your son) suggest doing an experiment... going off gluten again for a few weeks and seeing what happens? "I'm not saying that you do or don't have Celiac Disease, but it might be worth at least trying. You can always start eating gluten again at any time if you don't notice an improvement. Just an idea."
  5. Joyous
    Maybe find an article about opioid peptides for her? Gluten can be literally addictive to people who are gluten intolerant. I suppose people generally believe what they want to believe. I considered the possibility of food intolerances for myself and my son a few years ago (I had read a bit about how effective the Feingold diet is for people...
  6. Joyous
    I'm not really concerned about how any of them feel about my dietary choices or whether they'll pressure me to eat something with gluten or anything like that... I'm just trying to find a way to explain to them that they may very well be gluten intolerant in a way that they'll take seriously without boring them with too much science (I've been known to be...
  7. Joyous
    I've not been diagnosed yet so I haven't mentioned it to that many people, but I have found so far that the ones I have mentioned it to have this attitude that they couldn't maintain a gluten free diet.... Like it doesn't matter what the benefits of doing it or the consequences of not doing it would be, it's not worth the effort. Have others run into this...
  8. Joyous
    Oh yeah, and I told her that she'd have to read the ingrediant list on everything she eats (and look up anything that she's not familiar with). She was okay with that. I'll explain cross contamination to her next time I talk to her... I didn't want to throw too much at her at once. She really likes going out to eat, especially with people from her church...
  9. Joyous
    Well, I explained a lot about Celiac Disease to my mom, and she finally asked how it's treated. I told her that you just stop eating gluten entirely, and she got really excited. I guess, like me, she thinks it sounds almost too good to be true!
  10. Joyous
    Cool. How long does it usually take for them to give you results?
  11. Joyous
    I'm finally getting in to see a GI doctor on the 7th. How likely is it that I'll have my blood drawn that day? I would assume that's how they'd do it, but I figured I'd ask.
  12. Joyous
    And as long as I'm asking about skin, what about the purple blotches that are especially noticeable in winter?
  13. Joyous
    I've been getting rashes for a long time, but they've never really bothered me that much. I guess I'm so used to it I don't really think about it. (I think a doctor once suggested infected hair follicles?) It's little red dots that are spread out, never patches (unless I wear jewelry). It sort of comes and goes on my thighs, but it's there more often than...
  14. Joyous
    Excellent, I will definitely share what you've said with my mom. Thank you.
  15. Joyous
    I haven't had any tests yet, I'm waiting to get into to GI doctor. I did an experiment where I cut gluten out of my diet for a week and a half, and I did notice a difference. My digestion was closer to normal than it has been in a long time after a week, and when I reintroduced gluten (I reintroduced it at breakfast and lunch one day and then didn't eat it...
  16. Joyous
    I'm not on a gluten free diet yet. Gonna get tested first. Do you relate to the smelling like vomit thing?
  17. Joyous
    My mom has Rheumatoid Arthritis, and it's pretty bad. She's been doing this "gluten free, dairy free, sugar free" diet on and off for a few years, but when I did my gluten elimination diet (just for a week and a half out of curiosity, but I had to start eating it again so I can be tested), I called her and asked her how she made something and she told me...
  18. Joyous
    any ideas?
  19. Joyous
    my first thought was post nasal drip?
  20. Joyous
    It seems like there are a few exasperated people here, understandably so. Brian, who's in terrible shape and having a difficult time in recovery. Neesee, who has had problems with doctors and who has learned that a patient must be his/her own advocate and understands that it's our responsibility to seek the information we need. And everyone else here, as...
  21. Joyous
    Is there a list somewhere of all of the genes that are recognized as celiac genes in other countries?
  22. Joyous
    Upper left quadrent? Like right below the rib cage?
  23. Joyous
    If there aren't any particles in the air, it may very well be a conditioned response, just like with Pavlov's dogs. Your brain has associated foods that contain gluten with feeling sick. There's certainly nothing wrong with that... It's a good thing, if you ask me. I'd rather think that something I can't eat smells like poison than think it smells delicious...
  24. Joyous
    I've read a little bit about L-Glutamine (an amino acid), and my chiropractor was telling me about how it heals the digestive track for people with Celiac Disease. Has anyone had any experience with taking L-Glutamine? Has it been recommended by a medical professional or in the reading you've done?
  25. Joyous
    I'm sure it depends on the person because some people are much more sensitive to gluten than others, but it seems to me that for people who are just starting out on a gluten free diet, it might be a good idea not to go as far as preventing cross contamination. When I read stories here about having reactions to the most miniscule amounts of gluten, worse reactions...
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