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Joe Hoffman

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Joe Hoffman

  1. Joe Hoffman
    As frustrated as you are with having to go through this,,, I guarantee your husband is ten times more frustrated. I wasn’t diagnosed with celiac disease until I was 54, over ten years ago. The first two years were HELL, but after my intestines healed things started getting a whole lot better. Through the entire process my wife was a SAINT f...
  2. Joe Hoffman
    I work at Lowes,,,, HOWEVER,,,,, I have been out of work and sitting in a recliner for months. Back in March of 2008 I was hit in the face/head with a 60lb box that fell from 10 feet. After 11 days in intensive care I found out I needed 3 major surgeries Neck, Shoulder and elbow. The neck surgery was first and went well, but two days after the shoulder surgery...
  3. Joe Hoffman
    ravenwoodglass, I have had these horrible lesions for over two months. I have seen two different dermatologists and they are both clueless. They both did biopsys and they both came back negative for DH. I truly believe it is DH, but I can't get a doctor to listen to the facts. The facts are: 1. I have celiac disease. 2. I was given medicine that...
  4. Joe Hoffman
    I am a 57 year old male from Orlando. I posted on here quite a bit about a year ago when I found out I had Celiac Disease. I had gone through six months of uncontrolable diarrhea, was hospitalized 3 times and had a Dr tell me that it was all in my head and that I needed to see a psychiatrist. By diet I was able to finally return to normal activities...
  5. Joe Hoffman
    Alright guys, two days after posting this thred "Almost There" I came down with a high fever and it appears to be a nasty upper resp. infection. I started taking lots of fluids and started on antibiotics. For the first four days I thought for sure I was going to die. Every breath was a struggle and I am talking absolutely zero strength and energy. I've...
  6. Joe Hoffman
    First, thanks for your help with the salad dressing and teriyaki responses. From your valued imput I take it that I was just lucky with the teriyaki and it is now on the "No Way" list. This all started for me in early August. Several hospital stays/visits and six doctors later I now know for sure I have Celiac. Especially after I stopped the diet after...
  7. Joe Hoffman
    I have been very careful on my new diet, but I am wondering why so many things that are supposedly "foods to avoid" are gluten free. Example: Salad dressing,,,,, Wishbone says their "French Dressing" is gluten free so I have been using it for a month and sure enough I am fine with it. My wife just read me the riot act because I had "teryiaki sauce"...
  8. Joe Hoffman
    This past week I have been experiencing twitching and minor spasms in my legs. This morning I noticed the muscle spasms increasing in both frequency and strength. One hour ago I had this severe twitching in my left leg that felt like live electricity running through my leg. I tried to walk, but I couldn
  9. Joe Hoffman
    What about potato chips. The thing I miss most right now is potato chips. I have tried Cape Cod chips and they are Gluten Free, but they taste like crap. I love just plain old Lays Ridges/Ruffles, but I'm scared to try them. Does anyone have any input on chips that are definitely gluten free? Thanks, Joe
  10. Joe Hoffman
    Thanks so much for all your replys and help. This is one of the hardest things I have ever had to deal with and I am absolutely Celiac ignorant. To answer a few questions,,,,, The peanut butter is not the problem. I have been eating small amounts if Skippy every day. My wife has not purchased new cookie sheets and utensils, but she scrubs the heck...
  11. Joe Hoffman
    OK, yesterday my wife made more xmas cookies only this time no sprinkles or toppings,,,,, just creamy peanut butter, eggs and sugar,,,,, lots of sugar. I was on the toilet for ten straight hours and the cramping and pain was back. So now I know I have to cut out the sugar. This trial and error thing could take months and months,,,,, do any of you guys...
  12. Joe Hoffman
    Hi, and thanks for helping. My dad died from diabetes. They checked my sugar while I was in the hospital in early October and they said it was negative. I believe the number was between 160 and 170. I'm definitely Celiac. I am going bland and cutting down on the amount I eat for ten days and then I will evaluate where I'm at and ask you guys for further...
  13. Joe Hoffman
    Laura, Hi, and thanks for your valued input. I'm a big guy. A year ago I was 308 lbs. At the beginning of August I was 294 lbs and in just my first three weeks of chronic diarrhea I was down to 255. It wasn't that I was losing weight so fast,,,,, it was I was losing muscle mass. My face, arms and legs were getting really skinny but my stomach was bloating...
  14. Joe Hoffman
    You mentioned Ice Cream,,,,, what kind of Ice Cream can we eat? Thanks, Joe
  15. Joe Hoffman
    As you know from my other posts I am newly diagnosed with Celiac. I have found the feedback on this forum phenomenal, so I have some more questions: 1. Does high doses of sugar (Gluten free xmas cookies) increase the diarrhea. I ate about nine big cookies last night and I suffered severely for the next eleven hours. I spent six of the eleven on the...
  16. Joe Hoffman
    My first set of blood work came back negative but I had already started on the diet. My biopsy came back negative and I stopped the diet. My body went into shock after just two days off the diet. Then my second set of blood work came back positive. I'm new to this Celiac thing,,,,, but my opinion is the diet is by far the best test for Celiac Disease...
  17. Joe Hoffman
    I haven't had a good laugh since this all started back in August. Thanks,,,,, you made my day. Joe
  18. Joe Hoffman
    My brother in law was at a football game yesterday and was sitting next to a doctor. He told him I had Celiac Disease and the Dr said
  19. Joe Hoffman
    Becca, I am new to Celiac, but I can tell you it has not been easy. To answer you direct question I would first start by saying
  20. Joe Hoffman
    I was diagnosed in October and was on the diet for six weeks until they did the biopsy and it came back negative. During that time I kept waiting for the diarrhea, nausea and dry heaves, cramping and bloating to stop, but it never stopped. I was convinced the diet was not working and with the Biopsy being negative I called the Dr. that did the Biopsy and...
  21. Joe Hoffman
    Thank you so very much for your input. It has given me a lot to think about. The rice cakes are Publix Brand, 100% Gluten Free. Joe
  22. Joe Hoffman
    "Sure hope you can make it Joe. I didnt eat for 2 days when I had to go to an event last year. The diarrhea for me was not as bad as the dry heaves. My system rejected everything at times and I threw up 2 or 3 times a day for 6 months. Good luck!" Ken, Hey, It was last weekend and I would have had to have not eaten for 5 days. Travel Thurs, at...
  23. Joe Hoffman
    I'm drinking on average around 120 oz of water and 66 oz of pedealyte. Some days a little more, but never less. After four trips to the ER for total dehydration I had no choice but to step up the fluids. To keep my strength up I am eating everything in sight, Gluten free of course. I take rice cakes and crumble them up in a big bowl and add melted butter...
  24. Joe Hoffman
    I just want to thank you guys for taking the time to respond to my questions. Like I said I'm 56 and this has really been a nightmare. Words can't explain what your posts mean to me. In 2004 I was inducted into the American Football Association's Hall of Fame. Each year since I look forward to attending each induction. Here's a message that...
  25. Joe Hoffman
    Do you guys know if there is anything in Orlando?????
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