
Gwen B
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Everything posted by Gwen B
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ARCHIVED Is Biopsy Always True?
Gwen B replied to MELINE's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think there was a typing error and that an endoscopic biopsy is the gold standard for diagnosis of celiac. If you have exzema like blisters you may have dermititis herpeteformis (not sure I spelt it correctly) which is related to celiac but tested for next to an active blister, and interpereted by an experienced celiac Dr. from what people have said on... -
ARCHIVED Enterolab Testing
Gwen B replied to cdog7's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This is a good to know. I have just received my results back from Enterolab confirming my sensitivity to gluten, the fat malabsorption test also explains my mild anemia. I have been gluten-free, CF, SF, and can't tolerate Tapioca flour either. These things I worked out for myself because my dr didn't think there was much likelyhood of the disease and would... -
ARCHIVED "latent" Celiac Disease...?
Gwen B replied to Lux's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I think everyone else has answered well on the diagnoses issue, and I agree gluten-free is a good decision on your part. But I understand the need for black and white on paper, it does make it easier to explain to others that you are 'diagnosed' celiac rather than just trying a new diet! . As for the raw food, I think it's normal to be sensitive to... -
ARCHIVED Flu And Bladder/kidney Infections After Multiple Cc's
Gwen B replied to YoloGx's topic in Coping with Celiac Disease
Glad you're on the mend. The book sounds like a good idea, I much prefer books with recipes as well as information/advice! I don't know about Tai Chi, I do yoga (Bikram) and I know it's very healing but strenous too. I also tried BodyTalk and took a course on self practice which has a good though difficult to explain healing promotion. My daughter's painful... -
All in all I have switched to Hempmilk, (the plain pink carton not Hemp Bliss- don't like the flavor so much) it's a great creamy flavor but it does have a tendency to sink and look gross in tea/coffee but worth stiring smooth again because it tastes so good, has Omega 3, 6's and is thicker than rice milk, so good for mashed potatoes. Haven't tried it in...
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ARCHIVED Flu And Bladder/kidney Infections After Multiple Cc's
Gwen B replied to YoloGx's topic in Coping with Celiac Disease
Sorry to hear you're so unwell. I can't offer much personal experience but I see your posts regularly and appreciate all your advice. The yogurt might not work so well while you're sick so you might want to take some probiotics to replace those that are desroyed by the antibiotics. If you can get Kombucha it's very soothing but 'Now' also do gluten-free... -
I'm not sure that's so likely, as I heard that it's much more expensive for the manufacturer to process out the gluten fot gluten-free flour. When I was in the UK a few months back it seemed to me that all of the gluten-free bread in the shops (that I saw) was wheat free also and that only prescription gluten-free bread was wheat derived. However since my...
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Actually, I have not ventured past the burger fare and just had the bapless,cheesless burger with guacamole and bacon, salad and fries. I'm just grateful to be able to eat out safely once in a while. I did see seafood on the menu but I cannot recall whether it was not gluten-free or whether I didn't choose it beacuse dairy or soy was involved. Teryaki is...
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I sympathise with you. It is difficult to explain to people and while I agree with others on this thread that you need to take charge of your health and avoid food you cannot be sure about, I managed to not eat anything except what I brought at four parties over the holidays, but was not able to avoid refusing food at some newer friends when invited to join...
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ARCHIVED Ups And Downs. How Do I Figure It All Out?
Gwen B replied to Gwen B's topic in Coping with Celiac Disease
I've mentioned it a couple of times, half jokingly and it was not well recieved. They are all too hooked on gluteny starchy foods but they have been warned that if they continue to be sloppy with their crumbs that will ultimately be their punishment. I doubt they think it's a real threat but my hubby did throw the 'Food for life Bread' at my son who complained... -
ARCHIVED Ups And Downs. How Do I Figure It All Out?
Gwen B replied to Gwen B's topic in Coping with Celiac Disease
Might it not also be the soy? I have also noticed something bugging me recently and have wondered about carigeenan in rice milk or hemp milk which I love. Tapioa flour is not easy for me to digest and I'm avoiding that now. I was alarmed that on a packet of bacon it actually stated on the packet 'casein free'. Does that mean there is casein in some other... -
On the Applebees thread. I also had a dissapointing meal there. I didn't want steak and plain potato so opted for the only other available menu option, grilled shrimp and salad. I told the waiter about the gluten-free, CF, soy free diet, handed a note (from the Celiac Soc website) about diet and was reassured that he knew all about being vegan! I knew from...
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thanks Silk, I would love the recipe. And you're right The RFM probably isn't a great name
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Ravoili . Mmm! I would like to try that. Do you have your own recipe. I used to love lobster ravioli as a treat. I'm not sure it would work without dairy but I'm willing to try. My hubby is a great cook and thankfully doesn't mind making gluten-free food in the main. He is still refusing to try the gluten-free pasta yet but making it at home might tempt...
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ARCHIVED Symptoms... Recovery Time?
Gwen B replied to veggiemama's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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ARCHIVED Symptoms... Recovery Time?
Gwen B replied to veggiemama's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Are you still eating dairy and soy? I got nausea and stomach pain just like I did with gluten a couple of weeks into the gluten-free diet although I had not noticed a problem before. I went lactose free but cassein also gave me a bad feeling in the gut although not as bad nausea. Soy also now has a similar effect on me, gas, nausea. Some people on this... -
ARCHIVED Ups And Downs. How Do I Figure It All Out?
Gwen B replied to Gwen B's topic in Coping with Celiac Disease
thanks everyone, in fact, things have come to a head recently. I got up enough courage to try gluten again to see what would happen and proove I wouldn't seem so crazy to beleive I am gluten intolerant. On Tuesday, I ate two slices of bread, and the action felt quite repellant, maybe it is all in my head! . Fortunately, no hives, but later on I did... -
ARCHIVED Please Help! Confused About My Symptoms!
Gwen B replied to hollz20's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Did you get bloodwork done? That would tell you what your vitamin levels are, maybe anemic? But you should definately get your thyroid checked out. Many celiacs have trouble with over or under active thyroid which also causes puffy eyes, depression, fatigue, wieght loss or gain etc. Look up thyroid and check your symptoms and ask your Dr. A simple bood test... -
ARCHIVED Gluten Challenged And Puzzled!
Gwen B posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Can anyone relate? Am I gluten intolerant or not. I am so puzzled. Here's my story. It's a bit long but if you want the short version, scroll down to the bottom I'm not sure when it all started. A couple of years ago I decided to eat healthier. I was doing more exercise and eating better but I seemed to be putting on weight and instead of feeling... -
ARCHIVED Better Yet Still Feel Worse
Gwen B replied to skinnyasparagus's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
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ARCHIVED Better Yet Still Feel Worse
Gwen B replied to skinnyasparagus's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
If you suspect soy to be a problem, check the almond milk. I couldn't figure out why I was getting a bad belly for a while after going soy free until I realised it was in the almond milk under the guise of vitamin E and /or soy leicithin depending on the brand. Giving that up got rid of the belly troubles. Similarly, I went lactose free but didn't improve... -
ARCHIVED Fell Off The Wagon
Gwen B replied to Muzz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Fatigue is also my big complaint at the moment. Even after being gluten-free for 3 months some days (not just the few after a cc incident) I get up with my kids but am so tired by the time they have gone to school that I feel I just want to sleep. Not sure if this is a symptom and beginning to doubt whether I am gluten intolerant because I have not tested... -
ARCHIVED Ups And Downs. How Do I Figure It All Out?
Gwen B replied to Gwen B's topic in Coping with Celiac Disease
Thanks, I appreciate your kind words and all of the information on this forum is so wonderful. My daughter just told me that perhaps I should see the doctor in case there is something really wrong with me! My Dr says I must be fine because my bloodwork is ok. So I keep taking the vitamins! Sorry about the whinge, I'm working it out with the help of... -
ARCHIVED Ups And Downs. How Do I Figure It All Out?
Gwen B posted a topic in Coping with Celiac Disease
How can you know what's going on? I know that it takes time to heal and that there are bound to be up and down periods but I am so tired again lately. I have been gluten-free since Nov 1 '07 then and began to feel better immediately. No more stomache aches, D and more energy until the dairy intol crept up on me. I adjusted again and things seemed better... -
ARCHIVED What Do Elisa Test Results Mean?
Gwen B replied to star star's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The Elisa test is to indicate how allergic you are to a food. I'm not sure how accurate the test is and I am not an expert but this is what I've picked up from this fantastic site. Intolerance is a different thing to allergy and celiac disease is tested with several different tests plus endoscopic biopsy to show intestinal damage. Gluten and other food...