
jeanbean
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by jeanbean
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ARCHIVED New Diagnostic Screening Tool (homekit)
jeanbean posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I just happened to come across this website where for $50 you order your own test. Sounds like it might be something new for those who are thinking about getting tested. If this has already been posted, then I apologize (i did a search but nothing came up.) Open Original Shared Link -
ARCHIVED Supplements
jeanbean replied to glutenfreewithease's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I get my vitamins from Whole Foods and I use AOR brand, says gluten free right on the package. I use the Multi Basic 3 ( I take 2 daily) and also the Bone Basics (4 a day), because my gastro told me I need 1200 g of calcium every day. We celiacs are at risk of osteoperosis and I don't eat any dairy. The magnesium also helps me sleep better at night.... -
ARCHIVED 1 Week Gluten. Enough For Positive Biopsy?
jeanbean replied to MELINE's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was one month off gluten and then had my biopsy, and it still came back positive for celiac. My villi were "blunted", which the enterologist said were not as bad as flat villi. I asked her if it could have been due to my starting the diet before my biopsy and she indicated it was possible. My blood test results showed very high antibodies, so I was expecting... -
ARCHIVED I Have A Question About Eating Yogurt, Etc...
jeanbean replied to nikki2008's topic in Coping with Celiac Disease
I have been gluten free for 3 1/2 months - I react rarely now. I do limit my dairy because anything more than a few cubes of cheese or some milk in gluten-free cereal, I will not feel right. I also limit carbs because I was finding that rice cakes, GFcrackers or gluten-free chips also bother me if I eat too much of it. So I just have a bit and I'm ok.... -
ARCHIVED How Long To Notice A Change?
jeanbean replied to blahh's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm on my second month of gluten free eating and I'm now starting to feel better. I also had bad constipation, bloating, carb cravings, hunger, insomnia. Try taking magnesium with calcium (gluten-free kind) to help you sleep. For me I can't eat too much or my tummy can't handle it. If I eat moderate portions with 2-3 hours between, then I feel ok. take... -
ARCHIVED Who Else Can't Eat Any Grains At All (even Gluten Free)?
jeanbean replied to Yenni's topic in Food Intolerance & Leaky Gut
I am very interested as to why some of us cannot tolerate carbohydrates - is it because our guts are so damaged? (I say this as I eat my bowl of rice for supper).... I have been gluten-free for 2 months now but have noticed something is not right after I eat grains, not rice so much, but more the gluten-free bread and stuff. I always thought I was... -
ARCHIVED What Kind Of Celiac Episodes Do You Have?
jeanbean replied to little00blondie's topic in Coping with Celiac Disease
I'm actually having an attack right now, it's my 4th day of pain and I can't figure out what I have accidently ingested. That's the worse part for me - overanalysing and getting depressed feeling like I've just taken 4 steps back from the wonderful 2 steps forward I was so happy about earlier in the week. Terrible gas, constipation, irritability and insomnia... -
ARCHIVED What's The Best Celiac Test For Kids?
jeanbean replied to Alternative mama's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I don't know of any alternative test but for kids they have "butterfly" needles which are painless and so thin that you literally don't feel anything. (My friend has to use them since her veins are horrible). They are for very small veins (like kids) and veins that are hard to find. You have to ask for it though. I am going through the same thing -... -
ARCHIVED Do We Really Need To Make Our House gluten-free?
jeanbean replied to katifer's topic in Coping with Celiac Disease
On the topic of kitchens and disinfecting, I've wanted to ask this question. In a gluten household with a dishwasher, we still wash some dishes by hand. However I wondered about the dishcloth (J cloths) - gluten can stick to it. Is rinsing it good enough? We clean counters with it as well as dishes. I change mine often - every few weeks. I hope this... -
ARCHIVED Toaster Vs. Toaster Oven
jeanbean replied to DeerGirl's topic in Coping with Celiac Disease
Another vote for toaster ovens. It's the first thing I bought - it's on the other side of the kitchen just under my cupboard with all my gluten-free food. I love bread too much to not have one. Mine is a combination toaster and oven. It has the slits on top for toast, or I cook my meat, pizza, or whatever in the oven, seperate from my family's meal, so... -
ARCHIVED Better Yet Still Feel Worse
jeanbean replied to skinnyasparagus's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It really makes sense now that it's all about rethinking the food that is the hardest part, as gfpaperdoll said. The suggestions about changing a meal like lasagna to replace the cheese with something else is excellent, but when I have 3 gluten eating people in my family who will likely refuse to eat anything with fried onions on it may be a challenge. ... -
ARCHIVED Better Yet Still Feel Worse
jeanbean replied to skinnyasparagus's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I've been reading your responses about avoiding dairy. I'm trying to avoid as well but wondered does mozzarella cheese count as a hard cheese? What do you use for lasagnas. I can't imagine a lasagna without cheese... I feel like I'm cutting out all the pleasures of food.... even though I've found the alternatives sometimes taste better than the gluten... -
ARCHIVED Toronto/burlington/hamilton Area Doctors Or Dieticians?
jeanbean replied to LilyCeliac's topic in Doctors
LilyCeliac, I just sent you a personal message, I recommended someone to you. -
ARCHIVED Does Everyone Have Testing Before Trying Diet?
jeanbean replied to elmuyloco5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks Ravenwoodglass. Turns out that once my gastro specialist found out I was already on gluten-free diet she moved up my scope to this Friday! (cancellation I guess). I'll go this one time because I may still show signs of damage. If there's one thing I've learned so far is that doctors from old school way of learning like mine really think Celiac... -
You are probably very sensitive right now - I have been gluten-free for about a month and I'm having many more good days than bad days. I think there is an adjustment period - and I find I feel better when I eat real simple foods for the first month. Like plain brown rice, hard boiled eggs, lots of fruit and veggies just steamed or raw. Avoid dairy and...
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ARCHIVED Constipation...
jeanbean replied to jewi0008's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Don't forget to drink tons of water - take it from someone who knows about constipation. Also hot water with lemon squeezed in it is good for digestion as well! I have a two cups a day. Someone mentionned brown rice - are you sure about that? I always thought rice plugs you up, or is that just white rice? -
ARCHIVED Does Everyone Have Testing Before Trying Diet?
jeanbean replied to elmuyloco5's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I tested postive for celiac on the blood test in December, and immediately began a gluten-free diet. I'm having a huge problem with ingesting gluten for the sole purpose of proving to a gastroenterologist that I have this, when it's already been proven. My GP says it's to test for anything else that could be wrong and it's the golden standard for confirmation... -
I drive a Santa Fe, I love it, my only regret is that I got a 4 cylinder manual - no power whatsoever. Not that I was looking for a fast ride, I mostly use it for local in-town driving, but automatic would be way better. Luckily my lease is up in February 2009 so I may consider another one with a 6 cylinder automatic. I don't find them that great for traction...
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ARCHIVED Are Chronic Headaches A Symptom Of Celiac?
jeanbean replied to Shwem's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Since I've been gluten free, I have no headaches at all. Previously I was the poster child for migraines -weekly and very nauseous. Mind you I have only been gluten free for one month, after having been misdiagnosed with IBS for several years. On advice from my doctor I was told to have more fibre - little did I know it was making me more sick. I guess... -
ARCHIVED Migraines
jeanbean replied to jeanbean's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for your replies. I guess it's just an added perk not to have headaches. And I'll try P.Bismol instead of some pricey medication I've never heard of. I guess having Celiac physically affects people in different ways. Well I'm still in the learning stages and it's clear that we have to educate others - in my case, my husband thinks I'm going overboard... -
ARCHIVED Migraines
jeanbean posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi there I am 40 and was just diagnosed with Celiac about 4 weeks ago (positive blood test) and am awaiting my biopsy scheduled in May. I used to get severe migraines weekly for years and now that I'm adjusting to my new diet, I haven't had one single episode. I wonder if there is any connection? Also, my doctor recommended I take Bentylol (prescription...