Welda Johnson
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Latest Celiac Disease News & Research:
Everything posted by Welda Johnson
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ARCHIVED How Do You Deal With The Fatigue?
Welda Johnson replied to loxleynew's topic in Coping with Celiac Disease
Hi, I agree with Jestgar! I watch my 6 year old grandson go endlessly, then he hits the bed at night and is asleep within 3 minutes. He's full-throttle or asleep. I sometimes forget that I am quite a few years older than he is, and that even though I stick to my diet faithfully, exercise almost every day, and have vastly inproved physical, mental, emotional... -
ARCHIVED Scientific Poster Help
Welda Johnson replied to SarahBrock's topic in Coping with Celiac Disease
Hi, I'm so glad to hear that you are doing this! I've read that diagnosis of Celiac often takes an average of 10 years. In many cases it has taken MUCH longer (I've had symptoms since age 8 and now at 64 have been on a strict diet for just a few years). Being aware of the "family connection" is another huge piece of the puzzle. With Celiac being a genetic... -
Hi lasal, I really feel for what you're going through, because, most likely, each of us who has sent you a message has faced these same issues with either our family members, friends, or acquaintances. I'm 64 and have been on the Celiac diet stringently for quite a few years. Prior to that, I would have an asthma attack each time I would get glutened,...
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ARCHIVED Help/guidance From Some Experienced Celiacs! Please!
Welda Johnson replied to LandonL's topic in Coping with Celiac Disease
Hi Mushroom, I'm glad you responded to my post, and I am sitting here laughing, just thinking of eating all those foods I listed on one day. At five feet tall I weigh about 100 pounds, but I was just listing the variety of foods that I have as choices each day, not proclaiming that I actually eat all those foods each day. Please forgive me for the miscommunication... -
ARCHIVED Other Than Wheat, Rye, Or Barley
Welda Johnson replied to skluever's topic in Coping with Celiac Disease
Hi, I have serious problems with all grains, all milk & dairy, egg whites, yeast, casein, whey, maltodextrin, modified food starch, and msg. I avoid all those foods and ingredients, and I've been on the diet for quite a few years, and feel great. I hesitate to suggest any kinds of doctors for further evidence, since I gave most of my income and money... -
ARCHIVED Casein/lactose Intolerance
Welda Johnson replied to darkhorse's topic in Coping with Celiac Disease
Hi, I know how you feel, concerning pizza and cheese! I used to really like them too, especially cheese. For quite a few years now I have been on a stringent diet of fruits, vegetables, legumes, and sometimes meat, though that, too, often gives me problems now. All grains, all milk & dairy, egg whites, yeast, casein, whey, maltodextrin, modified food... -
ARCHIVED Help/guidance From Some Experienced Celiacs! Please!
Welda Johnson replied to LandonL's topic in Coping with Celiac Disease
Hi Landon, Welcome to the site! I am glad that you learned so young that you have Celiac. I am 64, and started having symptoms at age 8 (severe asthma, bronchial infections, pneumonia, whooping cough, etc.). When I was 19 I was diagnosed with food allergies and told that I must take the allergy shots for 3 years or I would most likely be bedridden by... -
ARCHIVED Anyone 20+ Years gluten-free? Many Questions
Welda Johnson replied to Lisa16's topic in Coping with Celiac Disease
Dear Jestgar, Thank you! Welda -
ARCHIVED Other Food Intolerances
Welda Johnson replied to Youdah's topic in Coping with Celiac Disease
Hi, I hope you're feeling better! I've been glutten-free and milk & dairy free for many years, and feel so much better. I also never eat egg whites, yeast, casein, whey, maltodextrin, modified food starch or msg, since when I do, I always end up having an asthma attack, which is one of the symptoms that plague me when I eat any of the items listed... -
ARCHIVED Just Diagnosed- But Untraditionally. Need Validation.
Welda Johnson replied to anniebeth's topic in Coping with Celiac Disease
Hi, I hope that you are adjusting well to your new diet--it sounds as though it has been life-changing for both you and your daughter! Have you heard of Enterolab.com, through whom you can get home testing kits for Celiac and milk intolerances? I ordered a full spectrum test for my newly-born grandson to verify that his diarrhea and vomiting were caused... -
ARCHIVED Celiac/eating Disorder/anxiety
Welda Johnson replied to kakattack's topic in Coping with Celiac Disease
Hi, I hope you're feeling better. It is pretty daunting when you first start this diet, especially because so many of the foods out there contain some form of gluten or dairy. I've learned that all grains, all milk & dairy, egg whites, yeast, casein, whey, maltodextrin, modified food starch and msg upset my system, but what you probably need to do... -
ARCHIVED Anyone 20+ Years gluten-free? Many Questions
Welda Johnson replied to Lisa16's topic in Coping with Celiac Disease
Hi, My name is Welda, I'm 64 years young, and I've had Celiac symptoms since age 8, though at that time doctors didn't identify Celiac, just asthma, then food allergies, bronchitis, and sometimes pneumonia, as well as colitis, ulcer, etc. At age 19 they gave me the dire warning that if I didn't have allergy shots for 3 years I would most likely be bedridden... -
ARCHIVED What Should I Have Said Differently?
Welda Johnson replied to Hummingbird4's topic in Coping with Celiac Disease
Hi, I've had Celiac since the age of 8 and am now 64 (though I didn't know for many years that it was Celiac causing my health problems), so I hope that what I share will help you. At first I used to rely on the kindness and compassion of others when having family gatherings, hoping that eventually "they" would get it right. It usually didn't work out... -
I think all the suggestions are great, and I want to add, as a 64 year old woman who has had Celiac since age 8, though of course I didn't know that's what was going on--eventually you get to the point where you think about what is going to be good for YOU, and what is going to contribute to YOUR health and well-being. I always just simplify when people...
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Thank you CeliacMom2008 for those inspiring words! Reading your post uplifted me, and I was getting ready to tell how much better life is on a gluten free, dairy free diet too. When I read your message, I felt extremely hopeful, because so many of our young family members have Celiac and may not even realize it. Your son is proof that life does get better...
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ARCHIVED Long Road Trips With Celiac
Welda Johnson replied to kaiess's topic in Coping with Celiac Disease
Hi, I hope that you all have a great time on your roadtrip. I'm thinking that your children being so young is a distinct advantage, as well as the fact that you all live so far away from the popular "fast food" restaurants, so that perhaps your kids haven't gotten as enmeshed in that way of eating as some families have. I'm not sure what is allowed on... -
ARCHIVED Well Meaning Stores, Restaurants And Friends - What Do You Do?
Welda Johnson replied to Klauren's topic in Coping with Celiac Disease
Hi, I'm feeling for you and what you're going through. I'm 64 and have had Celiac symptoms since age 8, long before anyone ever thought of Celiac as a reason for my illnesses. Since I was getting help from no one else, I started elimination diets during my thirties, and continued throughout my forties and fifties. Now I know that all grains, all milk... -
ARCHIVED Anybody Who Loves Jesus? :)
Welda Johnson replied to heatherjane's topic in Introduce Yourself / Share Stuff
I love Jesus, and His Father, and The Holy Spirit. Welda -
ARCHIVED I Get Neurotic Every Time I Eat
Welda Johnson replied to Lovey25's topic in Coping with Celiac Disease
Hi, Here at this site, we UNDERSTAND. I can relate to the person who cried over a sandwich in front of 3000 people, since I, too, have sprinkled some of my foods with tears as I sat in a restaurant and realized the frustration of working so hard to find healthy foods. But today, after many years of being on this diet, I realized something important... -
I love the responses to your blog! At age 64 I've had a lot of years to get used to peoples' sometimes rude, sometimes just uninformed comments, but believe me, reading the responses you got has given me a whole new outlook on how to explain to people just why I have brought my own food. I'm with jestgar that you should just put your salesmanship talents...
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ARCHIVED Emergency Preparedness
Welda Johnson replied to heatherjane's topic in Coping with Celiac Disease
Hi, I'm in California, and heard recently that we should be prepared for potential earthquakes, so I am doing a mental checklist right now, as I respond to your query. I order Genisoy protein powder over the internet, and have an extra supply of that, which just takes water and anything you want to add, like vanilla or cinnamon or sweetener. I make... -
ARCHIVED When Were You Diagnosed? As A Child?
Welda Johnson replied to livingglutenfree's topic in Coping with Celiac Disease
I am age 64 and have had symptoms since age 8, though, of course, doctors never mentioned Celiac Disease. My symptoms presented as asthma, bronchial infections, pneumonia, colitis, an ulcer, anxiety, and depression. I began eliminating foods in my 30s, after allergy testing and shots that didn't work. I started with grains, then milk & dairy, and eventually... -
ARCHIVED Feel Like We Are Back To Square One
Welda Johnson replied to theclutterhouse's topic in Coping with Celiac Disease
Hi, I certainly feel for you all, since you are working so hard to find out what is happening. I suffered from Celiac symptoms starting at age 8, and now at 64 I feel pretty good, but only because I drastically changed my lifestyle. Doctors in 1952 didn't seem to have a clue about why I kept wheezing with asthma, getting bronchial infections, later contracting... -
ARCHIVED Fell Off The Wagon And Don't Want Back On...
Welda Johnson replied to Cath724's topic in Coping with Celiac Disease
Hi, I hope you're still checking in with this site. I totally agree with Lori's comments about taking care of yourself while you're still young. I'm 64 and have had symptoms since age 8, but my sister is a year older, and after being tested for Celiac and the results being positive, she still won't change her diet. She has had thyroid cancer and was told... -
ARCHIVED Where Do You Draw The Line?
Welda Johnson replied to jasonD2's topic in Food Intolerance & Leaky Gut
Hi Jason, May I ask if you are young? I am 64 and have dealt with the symptoms of Celiac since age 8. What is great about being young, is that you have a natural ability to "bounce back" when you ingest something to which you are intolerant. As the body ages, it seems to take things more seriously, and, thank God, our bodies are faithful to let us eventually...