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Canadian Karen

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Canadian Karen

  1. Canadian Karen
    I tried Lomotil last month to try to get the diarrhea under control. I tried it for a couple of weeks with no luck. But then again, I was taking milk products at the same time. Should I try it again without milk? The doctor today also said to cut out all sugar. I am so scared now about the dr. mentioning refractory celiac disease that I am desperate...
  2. Canadian Karen
    Just came back from an appt with my gastro specialist. He is sending me to a celiac specialist on August 18/04. Basically, I have permanent diarrhea which will not respond to the gluten-free diet. He is now discussing refractory celiac disease. From everything that I have read, it does not sound good. I am now scared....... Has anyone's dr. discussed...
  3. Canadian Karen
    I am in Toronto, Ontario, Canada. Karen
  4. Canadian Karen
    I did have problems, but since have found out why..... See, I love my beloved Canadian Bloody Caesar, which consists of Clamato Juice, vodka, worsteshire sauce and celery salt. I have just recently discovered that Clamato Juice is not gluten free - so all this time, I have been feeding my body unknowingly with gluten..... I almost cried when I found...
  5. Canadian Karen
    Thanks Carrie! Maybe I will try just maybe 10 chips or so, if I have a reaction, then I know I can't feast on a whole bag!!! Cross-contamination sucks, eh? Karen
  6. Canadian Karen
    That is quite interesting, celiac3270, thank you for that! I too have continued to have symptoms (permanent diarrhea, bloating, cramps, etc. etc.) even though I have been on the diet for 1 1/2 years. I go back to my gastro this Wednesday, and he has already set up an appt with the "Celiac guru" the ultimate Celiac expert and St. Michael's Hospital here...
  7. Canadian Karen
    I found a gluten free snack at a bargain shop here in Canada. They are Snakatas from Australia, marked gluten free right on the box. They come in Supreme Cheddar, Sour Cream & Chives, Sea Salt and Vinegar, Smoked Barbecue. THEY ARE DELICIOUS!!!!!!! They have the most amazing taste! All flavours!!! Just thought I would share, it is so rare to...
  8. Canadian Karen
    Hi Glen, I know exactly how you feel. I too feel blessed that I have found this site as I now know that there are others out there who are dealing with exactly what I am dealing with and I am not alone. I have read so many posts here that I could swear I was reading about my own life!!!! I have had flare ups that I swear I would not be alive six months...
  9. Canadian Karen
    Humpty Dumpty website does not give any information. Is Humpty Dumpty Ketchup Chips gluten-free? I had a craving for them so I bought them but before I munch, I wanted to make sure...... Thanks! Karen
  10. Canadian Karen
    Hi. I know exactly how you are feeling..... There have been about 3 or 4 times where my flare ups have been so intense and painful, that I literally thought I was going to die, that this is it, cancer has set in from years of this disease going undiagnosed..... I can remember one particularly bad one, where I had just had my second daughter, she was...
  11. Canadian Karen
    Thanks Terri-Anne! I have a "Bulk Barn" close to me that I can go to. I looked in my health food store but didn't see it. The hardest thing for me is finding the time for the baking - when I get home from work, with four kids, there is basically no "spare time" until they go to bed and then I just flop from exhaustion. You know though, I notice you...
  12. Canadian Karen
    I am attempting to go dairy free again, and was wondering is Coffeemate dairy free? I just can't stand drinking tea with no milk - Coffeemate I can handle and I know it is gluten free, but is it dairy free? Thanks! Karen
  13. Canadian Karen
    Hi celiac3270, I am a newbie here. My name is Karen and I am in Canada. I am 41 yrs old and have four children, 10 yr daughter, 5 yr daughter, and three year old twin boys. I have been married for 12 years. I was first diagnosed with Celiac in my early 20's, but after 2 years on the gluten-free diet with no improvement, the gastro specialist changed...
  14. Canadian Karen
    Hi Burdee, Sounds like you are really on the right track!! The last time I went to my gastro specialist, he did suggest I cut out dairy for 10 days to see if there was a difference. I noticed no change at all, so I went back on the milk (which I absolutely adore, I drink a ton of the stuff, always have, my Mom used to joke that she needed to buy a...
  15. Canadian Karen
    Kraft has a gluten free, kosher free, and dairy free products. Have a great day! Karen
  16. Canadian Karen
    Hi Burdee, I have found comprehensive lists of gluten free products on both this site and also www.delphiforums.com and go into "Health and Wellness" and the celiac site is the second one down. They have a very comprehensive list of gluten free brands broken down in convenient categories..... Have a great day! Karen
  17. Canadian Karen
    What is casien? I have read it here quite often but have never heard of it. Is it an ingredient in something? Thanks! Karen
  18. Canadian Karen
    One of the most prevalent symptoms I have is excessive gas, belching. There are some days where I am belching almost constantly. It even makes my throat and esophagas sore. I even get a pain in my back between my shoulder blades where it feels like the gas gets caught, and it can be quite painful. Also, when I am at work, after lunch, I have to sneak...
  19. Canadian Karen
    I noticed in some of the recipes posted call for xanthan gum.... I have never hear of it. What is it and where can it get it from? Thanks! Karen
  20. Canadian Karen
    Hi. I can only think that it had to be something you ate. Do you remember eating or drinking anything that was orange. The reason I ask this is that whenever I have the blue KoolAid or drink any kind of grape drink, the next day, my stools are blue. Weird, eh? Also, mine are quite often mucousy. With celiac, that is quite common. Hope this helps...
  21. Canadian Karen
    Hi! Thought I would share this. I found some gluten free snacks at "The Bargain Shop" in Scarborough at Kennedy and Lawrence. They are Snakatas. They are from Australia. They come in four different flavours: Sea Salt & Vinegar Supreme Cheese Smoked Barbecue Sour Cream & Chives I have tried all four (along with my kids) and we all love...
  22. Canadian Karen
    Hi. I thought I would share my experience of what happened during my last pregnancy. I have celiac disease, I also have hypothyroidism and anemia. During my last pregnancy (twin pregnancy), my thyroid levels and iron levels kept going all over the dial. My family dr. didn't know what was happening and we couldn't control them. Finally, after going...
  23. Canadian Karen
    I find that my celiac disease symptoms really worsen during the time of the month that I have my period..... As soon as my diarrhea worsens, I know that I am getting my period the next day. Does anyone else experience this? Thanks! Karen
  24. Canadian Karen
    Hi, I am looking on my list of drugs that are gluten free that was posted here on this website and ibuprofen is listed as gluten free on there as "Ibuprofen (Pharm. Formulations)." Hope this helps. Karen
  25. Canadian Karen
    Are margarines and butters gluten free? Are there specific brands I should be looking for if there is gluten in them? Thanks! Karen
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