
KristaleeJane
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by KristaleeJane
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ARCHIVED Just Ditched The Gfd
KristaleeJane replied to WestyPDX's topic in Coping with Celiac Disease
I am sorry to hear you are having such a hard time with the GFD. I think that not sticking to the diet is the worst thing you can do for yourself. Once I found out I had celiac I did not consider it a choice to go gluten-free but something that I had to do to survive and be healthy. I am grateful that the GFD is available to Celiac sufferers and that you... -
ARCHIVED Post Diagnosis Ttg Iga Test Results - Is This Getting Better?
KristaleeJane replied to rmb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello, So what you are saying is that within four months his blood work went from 100+ to an 86? This is hard to explain considering we don't know the exact reading in Aug, if the reading was 190 or something like that then this could be a good thing. For me I got tested in March and had a 96, I got tested 5 months later and was at 13, with a strict gluten... -
ARCHIVED Finding Restaurants In Nanaimo,b.c
KristaleeJane replied to thinkb4ispeak's topic in Introduce Yourself / Share Stuff
Hello I can help you some........ although there is not a lot of restaurants in Nanaimo that are very gluten free. To date I have tried Montana's where they actually have a gluten free menu, and the staff seems somewhat knowlegable. Moxies also has a gluten free menu but the staff is not as aware of cross contamination, watch out for their nachos, they are... -
ARCHIVED To All The Type One Diabetics Out There
KristaleeJane posted a topic in Related Issues & Disorders
Hello Everyone..... My younger sister who is 20 and a type one diabetic since the the age of 11, decided to get tested for celiac after I convinced her that it can be hereditary (I got dx 6mths ago). Even though she has absolutly NO symptoms (lucky girl) she went ahead and got her doc to do the blood work, her Iga or ttg not sure which one she had done... -
ARCHIVED Celiac & Long Term Nexium Use
KristaleeJane replied to lesleyag's topic in Coping with Celiac Disease
I also was on Nexium for about 2 years for stomach pain after eating, it improved some, and I then starting suffering with bloating, naseau and heartburn, which turned my doc thinking I had acid reflex and/or ulcer, so I was put on prevacid, it only got worse though. Eventually I was dx with Celiac and as soon as I went gluten free I no longer needed any... -
ARCHIVED Sores On Scalp
KristaleeJane replied to Q1821's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello All Here is a response I received from Jason Products. I noticed DinaB you said you used some of these products, thought you might like to read over. I was using one of their products Satin Soap for Hands and Face & Vitamin E Oil 5000 IU,which turned into the biggest breakout all over me as I was using it as a body wash, it took over a month... -
ARCHIVED Shampoo?
KristaleeJane replied to wsieving's topic in Gluten-Free Foods, Products, Shopping & Medications
I also Have been retested and my levels are in the normal range, but I don't feel like dealing with an itchy scalp, and breakouts all over my neck face and hairline from makeup and shampoos. Also the smallest amount of gluten can still do damage to you even though your back in the normal range. But again some of us are more sensitive than others, everyone... -
ARCHIVED Gluten Free 6 Months (but Something Still Wrong)
KristaleeJane replied to KristaleeJane's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello and thanks ToddZ for the response. I will definalty try what you recommend, my stomach is still very sensitive right now,( only gluten free 6mths)even an advil will upset it. So the Candida clense you are referring to will have to wait. I have also heard alot about threelac, it is something to try. Right now I have starting taking virgin coconut... -
ARCHIVED Sores On Scalp
KristaleeJane replied to Q1821's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes I get them on my scalp especially all around my hair line and neck, I have long hair. I have come to the conclusion that it is from my hair care. The more I use the more I break out. So I usually change my shampoo conditioner, and styling products until I find something that works. Sometimes I call the company and even though it doens't say it in the... -
Hello Yes you most absolutly have to be eating gluten for the tests to be accurate. You may not be healed yet so if you were off gluten then it may show up in your biopsy, but for the tests to be most accurate you should be consuming gluten for 6-8 weeks before your biopsy. If you don't need the diagnosis, and you said the diet is working, then that itself...
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ARCHIVED Gluten Free 6 Months (but Something Still Wrong)
KristaleeJane replied to KristaleeJane's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hi Rachel and thanks for the responce Can anyone order this test your talking about, I went to the website and it looks like you need a physicians signature to order Is this right? I don't think my family doc would be in to this, but maybe a natropath. Thanks -
ARCHIVED Gluten Free 6 Months (but Something Still Wrong)
KristaleeJane replied to KristaleeJane's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello Mike M I was wondering would Eosinophilic esophagitis of showed up when I had my endoscopy? K -
ARCHIVED Gluten Free 6 Months (but Something Still Wrong)
KristaleeJane replied to KristaleeJane's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks for the responses I have a question: Carla: I am in Canada, can my doctor check for Lyme disease through bloodwork?? -
ARCHIVED Gluten Free 6 Months (but Something Still Wrong)
KristaleeJane posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello I am looking for some help and information on what I should do, I have been strictly gluten free for six mths, and I feel as though I am actually getting worse. My symptoms vary from day to day but here is a few of them: -Extreme Fatigue (Loss of Energy) -Sick stomach alot of the time. (comparable to when I was being glutend) -Horrible Breath... -
ARCHIVED Upper Gi Endoscopy Negative, Could I Still Be Celiac?
KristaleeJane replied to leethinker's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
WOW I am shocked that your doctor did an upper GI to check for celiac. That is absolutly not the way to go about testing for celiac unfortuanlty. Before I got diagnosed I was extremly sick, no one could figure out what was wrong with me, and my doc that it could be an ulcer, we did the upper gi and she said no all your results came back normal, your fine... -
Just wanted to clarify something for canadians who may be reading this. In canada the lea Perrins Worcestershire sauce isn't gluten free it is made from Barley, So any canadians looking at this email do not go by it. Hopefully this is not the same one that Heinz is refering to for the US, the info is at this website. Open Original Shared Link (canadians...
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ARCHIVED Swiss Chalet (so Mad Right Now)
KristaleeJane replied to KristaleeJane's topic in Gluten-Free Restaurants
Thanks for the responses! I have contacted the canadian food regulations and they did an investigation, looks like the manager was mistaken. The investigator gave me the ingredients of the marinade and the BBq sauce, and it does sound fine. It appears the marinade looks alot like a flour marinade but it is actually a lot of spices and salt. Obviously He... -
Hello all Let me start by saying I was very impressed with the allergy guide at swiss chalet. Now I am in Canada but I am sure it is the same everywhere. I ate out there many times ordering the same thing everytime under the impression that what I was eating was gluten free. If you check out there allergy menu online, the only thing I was a litte concerned...
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ARCHIVED Been Very Sick For 2 Years-changes With gluten-free Diet
KristaleeJane replied to hviola's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hello and Welcome Well I just want to say that I have or should I say had a lot of the same symptoms, I am 28, and had tonsilitis, and strep throat so much growing up also and they eventually took my tonsils out at 23 also. I have been trying to get pregant for the last 9 mths with no luck, and so sorry to hear about your miscarriage. I got diagnosed... -
ARCHIVED Teeccino Coffee
KristaleeJane replied to raen's topic in Gluten-Free Foods, Products, Shopping & Medications
I hope that they will, and I hope all the celiacs out there are smart enough to read the labels even when it says gluten free. That is so so ridiculous!! -
ARCHIVED Could Someone Read This No Help From Doctors Yet.
KristaleeJane replied to Timoteiy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
do I have to go back on Glutten for a few weeks? IF so, I have to take the time off work. I do not want to go through that stress again ANSWER: Yes if you wanted to get a proper diagnosis then you need to be eating gluten, some people say for weeks, but it really could be longer to get an accurated result. This question has a lot of differnt answers,... -
ARCHIVED Symptoms.. Celiac Or Gluten Sensitive?
KristaleeJane replied to wockandwoll's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Restaurants can be very iffy. I rarely go out to eat now because you are taking a huge risk, unless they have gluten free menu and their staff are aware of cross contamination. For example one restaurant that I go to they have their Nachos on the gluten free menu, but they are actually fried in the same oil as all of the other gluten foods. Some things you... -
ARCHIVED Symptoms.. Celiac Or Gluten Sensitive?
KristaleeJane replied to wockandwoll's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wow, your symptoms sound like exactly what I had before getting diagnosed. I actually have lost about 15 pounds and went down 2-3 waist sizes since going gluten free. Although a lot of people are the opposite, they will gain wait after going gluten free, it really depends on how advanced your symptoms are and how deficiant your are with nutrients. Even if... -
Hello I am 28 and was just diagnosed with Degenerative Disc Disease also, I have been gluten free since my diagnosis of celiac in April 2008 so only 3.5 mths. I have had back problems for about 8 years now and my doc did and xray on my back a couple of weeks ago where they found bone spurs, and disc narrowing, she said this is disc degenerative Disease....
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ARCHIVED Shampoos Detergents And Soap
KristaleeJane replied to mona-norton's topic in Dermatitis Herpetiformis
I won't scream at you either but it is a known fact that: "What goes on your skin will be absorbed into the bloodstream" How do you explain the millions of people that get rashes welts and blisters after using lotions, shampoo and conditioners that contain gluten? Why do doctors tell you differently, my doctor was very clear that I stay away from makeup...