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SteveW

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by SteveW

  1. SteveW
    After a year of being diag w/Celiac Disease and Crohns, trying different gluten-free diets(Blood type,SCD......) I've come to the conclusion that ALL GRAINS are not working for me. I can eat rice one time without an apparent reaction but if I eat rice say once a day for 4 days straight I will start to have GI issues. Also potatoes, corn , soy, beans and dairy...
  2. SteveW
    Type A. I also did the blood type diet and it didn't work.
  3. SteveW
    Yes it is gluten-free.
  4. SteveW
    I was out like a light during my Colon/Endoscopy(sp?) and can't remember a thing. The prep was a bit painful from the amount of bathroom trips I was a little tender for a few days after but it cleared up after that. I would call my doc if I felt extreme pain afterwards!
  5. SteveW
    WATERMELON! It's now out of season but I was eating a 2 a week in the summer. I'm also craving salt.
  6. SteveW
    My symptoms progressed in a slow sneaky manor. Early 20s-Food intolerances that would come and go. - Driking beer would stuff me up and make my heart race. - Nothing too bad 25 to 28- Same as above along with constant fatigue and colds/flu every other week. 28-32
  7. SteveW
    I called 2 weeks ago. Trying to avoid another go round with the devil drug but...... I was a little shocked that a company doesn't know EXACTLY what is in there product!!!! No generics yet. I wouldn't recommend generic drug for us Celiacs unless it's clearly stated as gluten-free.
  8. SteveW
    Gillian As you stated Entocort cannot guarantee that there product is gluten-free because sometimes there venders use Corn starch and sometimes WHEAT starch. I was told this by the company and so was my GI. I was told to stay off that drug. pturse, I currently taking a 20 day run at 10 mg of prednisone for Crohns( I also have Celiac)- and it does work...
  9. SteveW
    celiac3270, The first 2 brands I took caused me upset stomach and cramping along with urgent needs to go to the bathrooms within 24 hrs of taking them. The one I'm currently taking has no side effects for me. Do they work? -I would say yes. My BM are down from 3-4 a day to 1-2 and they're not as urgent. Very little cramping and if I do get cramps/pain...
  10. SteveW
    I've tried a few enzymes and they really upset my system(GI)-they were all gluten-free. Maybe you could tolerate a different brand. One company I'm having luck with is Enzymatic Threapy Products-I use Mega Zyme digestive enzymes with no problems at all. I also use there Vitamins and Calcium. And as a side note....Most Doc's have NO idea if there...
  11. SteveW
    I've been following the SCD on and off for 6 months. I do feel better when I eliminate ALL grains and sugars. Occasionally I eat potatoes without any symptoms but I try to stay as close to the diet as I can. The biggest issue for me is a lot of the foods that are recommended give me GI problems-Almond flours, Dairy( SCD Yogurts, Farmers Cheese), Red meats...
  12. SteveW
    I have bone, joint and muscular pain along with extreme fatigue. It was worse for 3 months after I went gluten-free. It then went away after 4 months of Prednisone (I have Crohns also) and now its back again. I
  13. SteveW
    Going through the diagnosis process is not fun. It took me around 3 1/2 months of hell before I was confirmed to have Celiac Disease. But I also had a colonoscopy and was told I had some irritation in my colon and that I might have Crohns as well as Celiac. Turns out that I do have a mild case of Crohns. So I guess I'm saying in my case it was worth to get...
  14. SteveW

    ARCHIVED Dentist In Nh Seacoast?

    SteveW replied to SteveW's topic in Doctors

    Thanks Richard. Good info to know. I may go back to them if I don't get any replies so I will keep this info in mind.
  15. SteveW
    I think how your feeling is perfectly normal phase to go through. I was so sick for a while I didn't care about the social impact on my life,I just wanted to get better. But now that I'm venturing out of the house again I'm running into the same issue. I do feel seperate from others in social contexts where food is present but this is still pretty new...
  16. SteveW
    My meals are based around chicken,fish and eggs. I have a veggie or mixed veggies -Squash,green beans,asparagus, small amounts of broccoli,and tomatoes. all veggies are cooked until soft because if I eat them raw bad thing happpen Fruits that don't bother me Watermelon-not only is it delicious it makes me feel full for a while-too bad the...
  17. SteveW

    ARCHIVED Dentist In Nh Seacoast?

    SteveW posted a topic in Doctors

    My pre gluten-free dentist gave me vague answers with confused responses after I informed them that I have Celiac Disease. So I'm not really comfortable going to them again. Anyone know of a Dentist in the NH seacoast that is aware of Celiac Disease. Thanks Steve
  18. SteveW
    Well that depends-I guess for some felling better starts as soon as they stop eating Gluten. For others it may take 3 months,6 months,a year, maybe longer. "I feel terrible like I have the flu and I hurt all over does this sound like others w/ celiac? " Kinda sounds like me I've been gluten-free for 8-9 months with a few accidents and...
  19. SteveW
    HI I was wondering if anyone else has really dry/flakey skin like myself and what do you do to minimize it. I've always had skin on the dry side but since I got really sick last year the dryness has gotten out of hand. Part of my problem was I can't use my fav soap(Avenno-oatmeal) and the only lotion that I know is gluten-free is Lubriderm and it does...
  20. SteveW
    Bummer.... I've stopped taking advice from "experts" unless they're Celiacs themselves. And I would still double check everything I put in my body. I hired a nutritionist that was a celiac specialist and she was good but a few of the supplements she reccomended had gluten in them. Health food stores are the worst. I was told the one in my...
  21. SteveW
    I think the symptoms can be the same or different depending on the person. My reaction to milk/dairy is Severe and sudden. Lots of gut wrenching pain and about an hour in the head. After about 2 hours the pain is done and I feel better. Gluten is more sneaky with me. Prior to being diagnosed I would have never guessed it was gluten that was causing...
  22. SteveW
    Before I was diag. I lost around 35 lbs. Now I've gained back 8-10 lbs but I'm having a hard time keeping it on. I'm not under weight or starving just a lot smaller in stature than before.I've even been lifting weights and my strength in almost where it was before I got really sick but my weight doesn't move.
  23. SteveW
    I've been gluten-free for six months now and feel better(somtimes ). The first 3 months of being gluten-free I had similar symptoms. really bad heartburn, bone and joint pain(flu like ache), headaches(gone for the most part but now a sure sign I have beed glutenized) I still get those symptoms but not very often. The biggest post gluten...
  24. SteveW
    At the moment I'm on a blood type diet but I'm also following the guidlines of the SC diet. The one banned food on the SC diet I eat is brown rice. If I could find a way to sub out the rice for somthing else I would but it's really hard for me to keep on weight without the rice. It's about 50% of my daily cal and I have so many "issues" with fruits, nuts...
  25. SteveW
    I'm in.
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