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Crimson

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Crimson

  1. Crimson
    Honestly, I don't know how I can really add much to this amazing topic. I am self diagnosed. I have no insurance. Doctors are expensive. Experienced doctors are hard to find. Specialists are even more expensive. When you have skin issues related to gluten, you go to a dermatologist. When you're having GI symptoms, you go to a GI specialist. When you're having...
  2. Crimson
    First I have to say that I am not diagnosed by a doctor. They did skin biopsy and found nothing. But they did it wrong. I have no insurance and cannot afford to continuously go to doctors that can't do anything for me.... *you can view pics of some lesions I've had and my home iodine patch test in a previous post of mine* That being said. I find that...
  3. Crimson
    I've read something before about parasite therapy for people with immune disorders. The science behind it is pretty solid. We live in an antibacterial world... and our immune systems are not challenged because of it. Our bodies are wired to combat all forms of invaders that it DOES have to fight. Take that away and you get more confused immune systems. ...
  4. Crimson
    I am so happy for you! It is wonderful to know that there are doctors out there that are willing to investigate a person's issues! I've been thinking about this a great deal lately... trying to find a doc to go to that will look into any possible answer for my issues. I'm glad you found a team of them! Congrats. I really hope they can get you where you should...
  5. Crimson

    ARCHIVED Need A Gi In Wv/md Area!

    Crimson posted a topic in Doctors

    I need to get to a GI. Not sure who to go to. I'm near Cumberland, MD on the WV boarder. Any one have any suggestions for a good GI??? Much appreciated!!!
  6. Crimson
    First off: If you're having suicidal thoughts, you need to talk to someone around you. Find some support. I know that sometimes when you're in that mind frame, you feel no one will understand or be supportive, but it's better than sitting around and listening to those types of thoughts going on and on. Sometimes writing in a journal helps me sort it out...
  7. Crimson
    I am allergic to NOTHING. So, on to the GI, I suppose. sheesh
  8. Crimson
    I had the same thought that RollingAlong had. Most cheese sauces can contain some kind of wheat or wheat derivative. Before eating gluten again for three weeks last month, I could eat yogurt without issue. Now when I eat yogurt, I get immediate headache, dizziness and brain fog that lasts for a number of hours. So, I'd say you can react in many different...
  9. Crimson
    Thank you both! I will be checking that book out at the library. Already found it. Elimination diet can't be much harder than what I'm doing now... that which I call the meat and banana diet. I'm up for this. Something has to help.
  10. Crimson
    He totally dismissed the iodine patch test. They did biopsy a lesion that did not show IgA. They had no answer directly for it. Just that it would have shown up on the pathology report if they had found it. I currently have a new blister on the patch test area. It's been breaking out ever since I did my little experiment! But I figure that I would have...
  11. Crimson
    My peanut and now dairy reaction is getting more noticeable. So, it will probably be a good thing to have those diagnosed. Especially because the peanut allergy has a tendency to get pretty bad for most people. I feel for you having so many positives! I'm pretty much prepared to be tested for anything that fits my symptoms. Though I don't see me going...
  12. Crimson
    There are several posts about iodine patch tests. If you use the search box you can see all the threads that have mention of it. You may have to go from the form that they show to standard form when you click on the links. It's in the right hand side of the thread, a drop box. Hit switch to standard. I posted the picks of my iodine patch test. I also did...
  13. Crimson
    I was posting under one of my original posts as to keep everything together... but I figured, I should ask some questions. I was wheat free for four years, gluten free for 16 months. *felt better lots of issues cleared up except for the D* Started eating gluten, did so for three weeks to get tested. Got my tests. Doctor doesn't know much about celiac...
  14. Crimson
    Ok, Blood tests: Finally got a copy... sheesh IgA <1.2 Range : 0.0-10.0 IgG <1.2 Range : 0.0-10.0 She didn't run the total IgA My LYMPH are low WBC high MCH high *not sure what the hay this one is supposed to be for* If I'm not mistaken, IgA and IgG ARE lymphocytes the LMPH that are low. I'm guessing this would indicate and IgA...
  15. Crimson
    The patch test is what made me get the appointment for the dermatologist. Unfortunately, he called it a chemical burn. oi... just oi.... It's all good. I have a few articles printed off just in case I do get an opportunity to try try again. Not sure if I'd do it. But it's nice to know they're there. Thank you very much for yet another link. I've...
  16. Crimson
    Thank you for that link! I appreciate it. The biopsy that they did was ON the lesion and not beside it. I don't know of any other dermatologists in the area though. This one is a 45 min drive. Anyway, iodine patch test done and the pics are in my other post. You can see them and the patch test that I did on my husband as well. Same amount of time, TOTALLY...
  17. Crimson
    You obviously have quite an issue with gluten. Given that your reaction is so immediate, it's probably something that would show up on an allergy test. Maybe a good allergist. If you're going for some kind of diagnosis. I'm coming to the conclusion that gluten intolerance is the same no matter what the diagnostic is. As for the dietary concerns that you...
  18. Crimson
    Ok. So, here's the update... Frustrating. haha Biopsy was inconclusive. I suppose I will wait and see if I get anything that can't be misconstrued as anything but DH. I certainly had that with the original blisters. But, they were already opened by the time I got to the derm. So, I paid out a ton of money for them to tell me that I have dermatitis. I...
  19. Crimson
    That is a damn fine article! I like the way this was written to show how our bodies are having a HEALTHY response to an UNHEALTHY food! Grand!
  20. Crimson
    I'm off ALL grains right now. I used to be able to tolerate rice. But that's not working out for me these days. So, no grains for me either.
  21. Crimson
    I believe that muscle gain is entirely possible after going gluten free. I've been lifting weights and doing yoga/pilates for about eight years. And much like you, I started eating healthier by adding whole grain wheats and such to my diet. I lost about sixty pounds. * I was getting rid of post pregnancy weight* at 5' 5" ish, I was 104 lbs. *Underweight*...
  22. Crimson
    Apples have always made me feel extremely hungry. I never thought of it being a symptom of anything. I have had issues with digesting most fruits for a couple of years. The biggest issues come with apples, pineapple, mango, grapes and citrus fruits *the worst*. Of course, I find that since my three weeks of gluten, I cannot tolerate rice anymore. So, my food...
  23. Crimson
    So. I'm back on the gluten-free diet since Friday. I feel SO much better! I still have some blisters popping up here and there, random joint pain and my belly is still giving me hell for what I've done to it the past three weeks. But, I am certainly feeling better! Headaches have lessened too. I'm still napping here and there. BUT I've managed to clean...
  24. Crimson
    My doctor accepted the gene and stool test, along with positive response to gluten-free diet. I just gave her the printed pages and told her that these were the tests that I had done with an independent lab. She may have been more accepting of this due to my lack of insurance and knowing that I'm paying for everything out of pocket. Not sure. But she did...
  25. Crimson
    Will do! I'm relieved and ecstatic again today. I made an appointment with a family doctor and they listened to me and requested all the tests. She even gave me a price cut for "doing her job" and coming in with all the info that she needed! *I have no insurance, so I pay out of pocket* She wants me to get the blood tests and given my reaction to...
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