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ShayFL

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Everything posted by ShayFL

  1. ShayFL
    It all means your doctor is incompetent and you should ask for a referral to a GI doctor and get an endoscopy. Keep eating GLUTEN and wheat until you get the scope!! Or if a positive blood test is enough for you, go 100% gluten free. The inflamation is likely in your intestines!!! Dont get me started on doctors......
  2. ShayFL
    Please make sure it is GLUTEN free and not just WHEAT free. Just wanted to clarify this since you are new and might, from this post, think it is just wheat that is the problem. Barley, Rye and most Oats too.
  3. ShayFL
    I am sleuthing and I think I might be on to something. I tried baking with xylitol a few months ago with disasterous effects (bloating, gas and explosive D). Needless to say, I only tried it one time..... Anyway, I had bought some gluten free gum and would chew it now and again. And have noticed that every time I chew some, I get bloat and D. Even...
  4. ShayFL
    That is a tough one for sure. But I am going to assume your daughter is very good about reading labels, so she could ask to see the boxes/cans/etc. before meals to make sure. And packing safe things for her is, of course, very smart. I know it is very difficult not to worry, but the time comes when we have to let our children start living their own...
  5. ShayFL
    You have mixed symptoms. Get this...you can have Grave's (hyper) and Hashimotos (Hypo) at the same time!! So ask for a full thyroid panel: TSH, FREE T4, FREE T3, Antibodies for both Graves and Hashi's. And have the doc test your cortisol levels (adrenal glands).
  6. ShayFL
    Im kinda in the same boat Ellen. And I have not eatin DAIRY in years, so that is NOT my problem. But it could be yours. Are you eating dairy? You may have to cut it out for awhile and try to re-introduce later. I had loose BM's prior to gluten-free, but not a lot of bloating. Now I am having bloating. But it might not be related to gluten free...
  7. ShayFL
    I felt worse for the first 6 weeks....tired...hungry....irritable. It got better....much better!! Hang in there!! Soy is a problem for many. You could try eliminating it and see if that helps. Dairy is also one to give up for a little while too.
  8. ShayFL

    ARCHIVED Glutenease

    ShayFL replied to Sugarfunk's topic in Coping with Celiac Disease

    I dont know if peeps are shilling or not. But what should be VERY CLEAR to anyone visiting these forums who is curious about Glutenease is that it is not intended for Celiac's to use so they can "eat whatever they want". Enough members have come into this thread and others like it to make sure that no one thinks this is a "cure" or "free pass". You would...
  9. ShayFL
    You could be intolerant to grains in general. This is not uncommon. But you would need to be tested to find out if you have Celiac since the dietary response is unclear. Blood and biopsy.
  10. ShayFL
    It tastes like real food. Mashed potatoes and gravy with pot roast and green beans. No gluten there.
  11. ShayFL
    Have you tried a Gluten Free diet?? To see if you feel better. If you do, you have your answer. I dont think Lab Corp is any better than Quest. Accuracy mainly depends on the technician who analysis your blood at the time.
  12. ShayFL
    I am high risk for perforation because I had abdominal surgery in my teens which has left me with a lot of scar tissue which makes my intestines not "lay right" in my body. Just not a good idea for me.
  13. ShayFL
    I was "normal" a few years ago, but tested severely intolerant on last test. If I were you, which I am not, I would try gluten-free diet and see how I feel. If you feel better on the diet, you have your answer.
  14. ShayFL
    Welcome you have come to a great place!! Let us know if you have any questions.
  15. ShayFL
    It does make you a better cook. My Hubby keeps saying how much better I am now. I was good before....but even better!! And I am not afraid to experiment. Today I made a delicious chicken curry for lunch. It was yummy and my daughter liked it too!! She likes the Amy's frozen. I have not tried to make it myself because it is not something I personally...
  16. ShayFL
    And you find things....as it goes along. I just found this: Open Original Shared Link It is about an hour from where I live in Tampa, but we like going down south. So we are going tomorrow. Will try a variety of things. I called. They have samples. And whatever we like, we can order and it will be delivered to our door the next day. Im off...
  17. ShayFL
    I will help....others will chime in too: Yes....new toothbrushes!! (This is one of the cheap things to do) Your dishwasher should be fine. Check for any food/gunk in the strainers/filters. If there is any, don gloves and clean it out. Then run it again empty to get rid of any bits. Dishwasher can get gluten off of glass/ceramic....but not...
  18. ShayFL
    I have had the stiffness in my hands in the a.m......it is going away....3 1/2 months gluten-free!!! Are you gluten-free now???
  19. ShayFL
    My household is 100% gluten free. My daughter eat's Mac and Cheese all of the time....just gluten-free variety. There are many to choose from....dry boxes to frozen. Tons of gluten-free cereals. If those two items are your biggest concern, you can relax......you can order online, at local stores in your area, etc. And after she has been 100% gluten...
  20. ShayFL
    My family is going nuts over these. They are not low fat. Just to let you know. But...oh....so....yummy and super easy to make. Blueberry Muffins (Grain Free) 4 Tlb melted butter (or coconut oil or margarine) This morning I made them with only 1 Tlb. They turned out fine but with a bumpier texture. Same taste. 1/3 cup of yogurt (or almond...
  21. ShayFL
    Or almond flour. I have been baking some yummy muffins that are grain free using almond meal, eggs and coconut butter. Recipe from SCD.
  22. ShayFL
    Im only about 3.5 months in. But not a single migraine since I stopped the gluten. Not one. And I used to get at least 2 a month. So it is like I have gained 14 days of my life that I would have lost to misery. And BM's are down from 5/6 a day to 2/3 and I am still improving. I find that my neuropathy waxes and wanes and does some strange things which...
  23. ShayFL

    ARCHIVED Glutenease

    ShayFL replied to Sugarfunk's topic in Coping with Celiac Disease

    I have a bottle. I plan on using it just in case for CC when I finally try to eat out again. But I will still be uber careful like always.
  24. ShayFL
    Tests help....but there are some general guidelines you can follow. Depending on your age.....It is safe to be taking 1000-1200 mg calcium and you can take magnesium in a ratio of either 2:1 or 1:1 calcium. So you could take 500 - 600 mg magesium. Vitamin D is safe up to 2000 IU daily and some say more. If you live in the tropics and get A LOT of sun...
  25. ShayFL
    Are you gluten free? How long? Do you take calcium/magnesium/boron/Vit D to rebuild your bone/teeth???
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