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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by leadmeastray88
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ARCHIVED Celiac Still Possible?
leadmeastray88 replied to symptomax's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
First of all, welcome to the board. I myself have not been here long but have learned more in the past 3 weeks than over the past 4 years. All I keep reading is how blood tests and endoscopies for Celiac are highly inaccurate, because they are both hit and miss. My friend who has Celiac had negative bloodwork and positive endoscopy, and there are... -
ARCHIVED Vent
leadmeastray88 replied to leadmeastray88's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks very much I think I will go in and ask for my test results. You're right, they can't deny me that right. I don't think calling in to my surgeon as an emergency is an option - as my reasoning is not considered an 'emergency' by their standards. That is why my appointment got bumped. He has been a very good surgeon to me - I don't want to... -
ARCHIVED Vent
leadmeastray88 replied to leadmeastray88's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wow, are you serious??? That is crazy...and here I thought I was going to get answers on Monday. I guess I shouldn't be too disappointed. What did you use for your own personal cleanse? -
Sorry about the venting but I have nowhere else to go... My surgeon decided to stool test me for parasites and (something else antibiotic related, can't remember what it's called) starting last Monday, the 9th, and see what the results for that are before sending me for scopes. I had a rough week this week, lots of bad cramping and abdominal pain and...
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ARCHIVED For The "real" Teens
leadmeastray88 replied to Kassie's topic in Introduce Yourself / Share Stuff
I'm from Canada as well...Winnipeg! -
ARCHIVED Canadians?
leadmeastray88 replied to EMSPrincess's topic in Introduce Yourself / Share Stuff
Hi, thanks for your concern! My doctor did an enormous blood panel on me to check my minerals and vitamins, including all of those you mentioned above. Vitamin B12 was the only one I was deficient in. I am taking supplements right now, however I will most likely start shots instead. I know this is not from my diet as I am an extremely healthy eater... -
ARCHIVED Canadians?
leadmeastray88 replied to EMSPrincess's topic in Introduce Yourself / Share Stuff
Hello fellow Canadians I'm from Winnipeg! Any other 'Peggers out there? -
ARCHIVED Parasites
leadmeastray88 replied to leadmeastray88's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So then if I have a gluten allergy (that is poisoning my body because I have to keep eating it) , is that enough for me to be a host? -
ARCHIVED Parasites
leadmeastray88 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So I saw my surgeon yesterday hoping to get a date for an endoscopy. He thinks that we should screen for parasites through stool testing first, before we start talking scopes. Did anyone else get tested for parasites too? I read in an article on the web that parasites can be caused by food allergies - so can having a gluten allergy/intolerance... -
ARCHIVED Scared Of Endoscopy
leadmeastray88 replied to leadmeastray88's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you , much appreciated! I've done web research but every site tells you something different and it's not like getting information straight up from people who have had it done... Anyway, thanks again -
ARCHIVED Gluten Sensitivity/leaky Gut
leadmeastray88 replied to jasonD2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
How come you hope it's not Celiac's? I mean of course nobody wants to have it...I can understand because most of us here are going through the same thing, but in my opinion I would much rather have something that I can fix with my diet than something I have to fix with medication. Just a thought, and a look on the bright side I guess I hope you can... -
ARCHIVED Scared Of Endoscopy
leadmeastray88 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
So I am anxiously waiting to get a date to go in for an endoscopy... and I am absolutely terrified of it!! It's not the needles part, (if there even is any) I have had many surgeries before. I am completely fine with that. It's more the 'tube going down the throat' thing I'm having trouble dealing with. Can anyone who has had one answer some... -
ARCHIVED Where Do I Start To Get Diagnosed?
leadmeastray88 replied to SarahbethBR's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm new here too, and I am also in the process of getting diagnosed (hopefully) My suggestion would be to go to a GP to run some bloodwork and see what that shows. However, these blood tests are not very reliable! So in the meantime, you should also find a GI to do the endoscopy because it can take months to get in. And yes, you have to be actively eating... -
ARCHIVED Airplane Food/taking Food On Airplanes
leadmeastray88 replied to leadmeastray88's topic in Coping with Celiac Disease
Thanks for your replies, this is great help! -
ARCHIVED Airplane Food/taking Food On Airplanes
leadmeastray88 posted a topic in Coping with Celiac Disease
Okay so everyone knows that with the enhanced security at airports now we can't take our own food on. And when flying overseas (9+ hours) every year like I do, I'm bound to get hungry And these days on the planes they only offer sandwiches as their meals (here on Canadian airlines anyway), and even if there were hot meals who knows whats in those. ... -
Hi, Does anyone else have vitamin B12 deficiency caused by malabsorption? I'm not anemic in anything else as far as I know, like iron and such. Thanks!
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ARCHIVED Menstrual-like Cramps
leadmeastray88 replied to leadmeastray88's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wow, I get that too!! I never thought of that... How about vaginal itching? Thank you SO much! -
ARCHIVED Menstrual-like Cramps
leadmeastray88 replied to leadmeastray88's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Great, thanks guys! This is my major symptom so I'm glad that other have had the same one. -
ARCHIVED Menstrual-like Cramps
leadmeastray88 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi everyone, I was just curious to see if anyone else has had this symptom. Throughout the month (not during 'that time') I have cramps in my lower abdomen that are in the same region as menstrual cramps but don't feel like them, much more subdued and they don't throb like menstrual cramps do. Wondering if this could be added to my list of symptoms? -
ARCHIVED Negative Blood Test...should I Be Skeptical?
leadmeastray88 replied to leadmeastray88's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's great advice, I never even considered something like that! So other than the basic dairy products, what kinds of foods contain milk protein/ have milk derivatives? -
ARCHIVED Negative Blood Test...should I Be Skeptical?
leadmeastray88 replied to leadmeastray88's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Wow, that is definitely reassuring I think no matter which way my tests go I am going to try the diet anyway and just see how I feel. Then I'll know. Even if I don't have a proper dx if it makes me feel better I'm willing to do anything at this point. I feel like I'm slowly getting more and more depressed and frustrated because I don't know what's wrong... -
ARCHIVED Negative Blood Test...should I Be Skeptical?
leadmeastray88 replied to leadmeastray88's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks fo the great info It's nice to have some support, because I've had many health issues the past few years and I've been from doctor to doctor telling me that things are in my head when they really aren't...and then they put their foot in their mouth after they've been proven wrong. I just want to know what is wrong with me, that's all. At this... -
ARCHIVED Negative Blood Test...should I Be Skeptical?
leadmeastray88 replied to leadmeastray88's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
No, I have not modified my diet at all. I have been eating as normally as possible, although I find it hard to because I always feels nauseous after I eat. I have also noticed that I have dropped 6 pounds since December. :S -
ARCHIVED Negative Blood Test...should I Be Skeptical?
leadmeastray88 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I've been suspicious that I have Celiac's for a few months now. Here are my symptoms: -lower abdominal cramping -extreme fatigue -nausea (especially after eating, and when I wake up) -bloating -irregular bowels I am also vitamin B deficient, I don't know if that is related or not. I had a blood test a few weeks ago and i got the results...