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ohsotired

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ohsotired

  1. ohsotired
    You're doing the camping trip, right? Sounds like a great time! Glad I could help with the map! When are you flying to the US? Just thinking I might have some time in the next few days to make some phone calls for you, so you don't rack up those international charges.
  2. ohsotired
    I haven't been through there in a while (and never for an international flight) but it looks like Terminal D is where most international flights originate. Looking at the interactive map, you might have good luck with Blue Bamboo Xpress (japanese food, sushi), Cool River Cafe (steaks and seafood), or perhaps one of the BBQ places. Of course it would...
  3. ohsotired
    AWESOME! Our Schwan's rep comes this week, I think I'll see if he has any of this!
  4. ohsotired
    hannahp57 - I'm so sorry you were so sick! Glad you got a dx and are on the road to recovery! My first few periods after going gluten-free were a breeze as far as PMS symptoms went (bloating, cramps, moodiness, etc). Then I had the month long ordeal, and since then everything is like it used to be. Cramping in my lower back/lower abdominals, bloating, extremely...
  5. ohsotired
    Di_gfree, Thanks for posting. I went ahead and started on a sublingual B12 (methyl type), but that is more of an effort to see if I can bring down my homocysteine levels with it (taking folic acid too). I'm taking 1500 mcg a day right now of the B12, and hopefully that will help some. How often are you having bloodwork done to check your levels...
  6. ohsotired
    Thanks for replying, kvandorselaer! I still haven't heard from the hospital about the infusions (scheduling, insurance, etc). I'm getting a little antsy about it. I went to the health market yesterday and talked to one of the guys there that is super knowledgeable about all the products, and knows quite a bit about Celiac and all the things that go with...
  7. ohsotired
    Got the paper copy of the latest blood tests. I'm thinking we're missing a few things. What do you think? Iron, Total....................34 L (Ref 40-175 mcg/dL) Iron Binding Capacity......406 (Ref 250-450 mcg/dL) % Sauration..................8 L (Ref 15-50%) Vitamin B12.................601 (Ref 200-1100 pg/mL) Folate, Serum..............12.6 (Ref...
  8. ohsotired
    My guess (and it's only a guess, since I don't have copies of the labwork in hand yet) is that my iron is low enough that he thought the infusions would be a quicker way to get the iron back up. At my appt , he expressed concern that supplements may not absorb properly and that they may cause GI distress. I haven't made my decision yet as to whether...
  9. ohsotired
    Thanks, TrilliumHunter! I had kind of thought that taking someone with me the first time might be a good idea, just in case. I'm actually kind of looking forward to this, because I'm sure it will help me feel better. That really is heartbreaking about the lady next to you. And it certainly would put things in perspective, for sure.
  10. ohsotired
    TrilliumHunter - How often are your treatments? Once a week? Once every few weeks? (Again, I know it will vary from person to person......just curious.) It would be nice not to have cold hands and feet any more! Mine are always ice cold, and have been for as long as I can remember. I can definitely see how having treatments done at a chemo center would...
  11. ohsotired
    Thanks for the responses! Really, I think the possibility of an adverse reaction is my ONLY concern, and as long as I am in a hospital and being monitored for it, I think all will be ok. TrilliumHunter - not thrilled to hear about the yucky taste, but can deal with it, for sure. I realize it probably depends on the severety of the anemia as to how...
  12. ohsotired
    I was just told I have a pretty bad iron deficiency (due to Celiac malabsorption and/or crazy irregular menses) and my GI has suggested I go for iron infusions rather than bother with pills. He just doesn't think those will absorb properly, and that the infusions will get my iron levels up faster. I've been doing some research (as always ) and reading...
  13. ohsotired
    Another update....... My iron is apparently low enough that they're suggesting iron infusions. They say my B12 is fine. Haven't seen actual numbers yet, but they're on the way in the mail. So this could be the reason for the weird dizzy spells, the fatigue, and the recent RLS type symptoms. I have no idea yet how many infusions they will want to...
  14. ohsotired
    I just wanted to report back on our experience at Fogo de Chao. Phe-NOM-inal!!! They seated us as soon as we walked in. We ordered a bottle of Riesling (oh so yummy) and even before the wine arrived, one of the hostesses arrived at our table and said "I understand we have someone here that requires gluten free?" (My husband was floored - I made...
  15. ohsotired
    Yes, I think the one in Addison is the only one here, and that's where we're headed! What you mentioned as far as prices sounds about right. I've never been there, but my hubby has eaten there several times (on his company's dime ) and he said that lunch is a little less expensive but that it's totally worth it whether it's lunch or dinner. I may indulge...
  16. ohsotired
    Jenny, Thank you SO much for your review! I'm taking hubby there this coming weekend to celebrate his birthday, so it's great to hear such a positive review of the place! Glad you had a good time!
  17. ohsotired
    Still waiting on the results from the iron/B12 testing, but got my test results that indicated the MTHFR/homocysteine/ANA issues. And I'm PO'd. There are notes written on these lab results (although not sure who wrote them), and no one ever mentioned ANY of what was written here! Such as.......... Anti-Nuclear Antibodies...............POSITIVE...
  18. ohsotired
    Yep. From what I read (and it was just super quick reading), folic acid and B12 supplements can help bring it down. He didn't say how elevated it was though, just wanted to wait 6 months and test again. My thinking is that I suffered with the digestive issues for so long before figuring out what it was, I'm not real keen on the "wait and see" attitude. I...
  19. ohsotired
    I think that's a big part of what's compelled me to post about all of this, Jestgar. If it could somehow help someone else jump through less hoops, or spark some questions they hadn't thought of to ask their doctor....... I have to admit, though, I'm tired of this. I'm tired of seeing doctor after doctor, and I just want some answers. But I feel guilty...
  20. ohsotired
    Saw the GI yesterday.......love this guy more every time I see him. He's obviously done his research (he knew very little about Celiac when I first saw him, but he was willing to learn, and obviously has). I explained to him some of the things that had been going on (the irregular period, the extreme fatigue, the ice eating - think I forgot to mention...
  21. ohsotired
    Whoops.........one small typo in my last post.......B12 was 634 (not 34). But again, that was last August, so it could be very different now, especially after the whackiness my hormones and total body seem to be going through. I think I will have it checked again, along with the ferritin too. And I think a visit to the endocrigologist may be a good idea...
  22. ohsotired
    Thank you for responding, and for the link, disneyfan. RE: this being the beginnng of menopause, it may well be. My mother went through it very early, and she keeps telling me that alot of what is going on sounds familiar. In response to your questions..... My GP tested my thyroid (along with a bunch of other stuff) this past October. Doc...
  23. ohsotired
    Back from the hematologist, and wanted to update before I forgot anything he said. Homocysteine levels are "elevated, but not enough to be concerned with right now" (I haven't seen actual blood work results on paper yet) and ANA is "on the lower end of high" (haven't seen those results either). He doesn't think either of these are things that require...
  24. ohsotired
    Glad you found the culprit, but I'm sad, as I just bought a bag of buckwheat flour after not being able to find it for the longest time. Know of any other sources to purchase buckwheat flour that isn't contaminated? Hope you get to feeling better!
  25. ohsotired
    I haven't eaten there since well before going gluten free (and only ever at the Dallas Pkwy location) but I've eaten Mexican food out since and been ok. Chicken nachos is what I get at Cristina's. I think I'd be calling them and chatting with a manager if I were you...... Good luck and have fun!
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