Jump to content

cymrudenver

Advanced Members
 View Profile  See their activity

  • Posts

    37

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cymrudenver

  1. cymrudenver
    I was diagnosed because of anemia. I had 3 months of weekly IV iron infusions along with going gluten-free and now have normal iron, ferratin and hemoglobin counts.
  2. cymrudenver
    After I was was diagnosed we had our three children tested, only our oldest came back positive, her only sign was being short and thin, no GI symptoms at all. Now if she eats gluten accidentally she has severe stomach cramps and vomiting. She's grown 2 inches since going gluten-free in July.
  3. cymrudenver
    So glad to see this thread today, I've had explosive D with one "accident" for 3 days now, totally out of character for my system, I've not been glutened as far as I can tell, but am still pretty new to all this. My hubby (non-celiac) had D for 1 day, so maybe this is just a bug thing.
  4. cymrudenver
    I'm a Brit too, moved to the USA 7 yrs ago. I've never eaten gluten-free in the UK, but I've heard the gluten-free choices are better over there. I'd suggest she brings as many easy to carry snacks as possible - difficult with the strict luggage weight limits I know - Is there an address you could have food mailed to for when you arrive in the USA? Wendys...
  5. cymrudenver
    Welcome, I'm three weeks into this and doing OK, it's not as bad as I imagined.
  6. cymrudenver
    Personally I think the celiac disease came first. I've had a normal appendix removed plus a laparotomy while 30 weeks pregnant for unexplained abdo pain, I'm guessing with hindsight that this was a severe gluten type pain. My hernias did not come until 2 yrs later.
  7. cymrudenver
    I've been advised to take Calcium, have been prescribed Vitamin D and am seeing a hematologist for iron replacment. What do most celiac disease patients take on a routine basis? Are they a lifelong thing? Will diet alone ever be enough?
  8. cymrudenver
    I got a bunch of labs back yesterday and my Vitamin D is low so my PCP has started me on 50,000iu once a week for 12 weeks then re-check. I meet with a hematologist on Thursday for an IV Iron therapy plan and maybe B12 shots too. Am I alone? Anyone been though this and seen huge improvements? I just want to not feel tired 24/7.
  9. cymrudenver
    I've been - hopefully - gluten-free for 2 weeks along with my daughter, neither of us had any GI symptoms before diagnosis, so my question is - Will we know if we got glutened? How do I know if I am doing this right? I don't feel any different neither does my daughter, but since our tests were so bad I really don't want to get this wrong.
  10. cymrudenver
    The nurse at my PCP's office who told me her Mum has celiac disease said I can't have the ground beef or turkey from the store as it will contain filler.....I thought if you bought the fresh, not frozen from the butchery counter it was just ground meat. Anyone know the answer?
  11. cymrudenver
    I saw my PCP today to schedule a bone scan and get labs drawn - Calcium, Ferritin, Iron, Albumin, Vit B12, Vit K, Metabolic Panel and CBC. Based on the celiac disease diagnosis and the crappy looking biopsies she said that if my iron labs have not improved since those done in April then she's sending me to a hemotologist for IV Iron therapy. Anyone had...
  12. cymrudenver
    Thats great news, I love Tokyo Joes. I live in Littleton so not far from you.
  13. cymrudenver
    No the mesh does not bother me at all, it goes from below my ribs to my pubic bone and from one side all the way over to the other side. The mesh is from a gortex fabric type material.
  14. cymrudenver
    I was diagnosed with epilepsy as a child, was on medication for 10 years. I wonder now if I ever really had it. My seizure activity disapeared after I left home and wasn't having bread with every meal.
  15. cymrudenver
    Celiac is not an allergy it's a genetic disease. That's my understanding anyway.
  16. cymrudenver
    I was tested for moderate anemia, my levels were very elevated any my biopsy showed complete villi atrophy. I had my healthy children tested, my daughter who's complained of stomach pains maybe three times in her life and is a active athlete, had blood results worse than mine. Don't go with no symptoms = no celiac. My parents and sister are waiting for their...
  17. cymrudenver
    I'm wondering if my frequent, recurring hernias could be related to the celiac disease. Anyone else with a history of hernias? Here's my hernia history 2001 Incisional hernia - repaired with mesh 2003 Incision hernia (different location) - repaired with mesh 2006 Umbilical hernia - repaired during surgery to remove gallbladder 2006 During laproscopic...
  18. cymrudenver
    Thank you all so very much, I have been to the store and bought my new gluten-free cooler and plenty of goodies to fill it with, I'm excited rather than anxious now, thanks again.
  19. cymrudenver
    Mine were done at qwest also it took 7 days to get full results. I'd call the Dr again.
  20. cymrudenver
    Thank you
  21. cymrudenver
    I'm nervous about buying deli meat, is there a safe way to do it? Do you buy the pre-packaged stuff or ask the store to use a different slicer? Sorry, I'm still learning.
  22. cymrudenver
    Tomorrow I'm taking my three children to the zoo then next week my husband and are are going to a rodeo with them all and will be away from home for over 12 hrs. I've never packed a picnic that did not involve sandwiches and goldfish so am a little nervous that they will get hungry and I'll not be able to find safe food at a rodeo ground. I'm thinking...
  23. cymrudenver
    I think these are really good, plus they are GFCFDF Open Original Shared Link
  24. cymrudenver
    Today is my second day living gluten free, so far it's going well, no where near as scary as I told myself it would be, it's just back to basic 1940's cooking. I was diagnosed after having almost no symptoms - just moderate, persistant anemia - I told my GI I thought he was smoking pot when he wanted to test me for Celiac (I do know him through work, I...
  25. cymrudenver
    Thanks all, I have no idea on the frying as I've never deep fried food - sorry. I wanted the breadcrumbs for a great Turkey & Spinach meatloaf we used to eat, am so excited to be able to have it again, thank you, thank you thank you
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.