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Green Eyes

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Everything posted by Green Eyes

  1. Green Eyes
    Although I have tested positive for celiac I have continued searching why I have been the only family member affected. I have two 2nd cousins which are on a gluten free diet because of celiac symptoms and have been successful. What I have found is "IgA Deficiency." If you are deficient in this antibody this can alter your celiac test results. Certainly...
  2. Green Eyes
    I sailed on Carnival Destiny in April!!! Best vacation EVER!!! And dare to say the best vacation for someone on a gluten free diet. Had a great time, staff were attentive and if you have a gluten free diet - you become VERY SPECIAL!!! I did eat at the buffet and just watched what I ate. Each area has different foods and plenty of each. I had no issues...
  3. Green Eyes
    Because we do not experience symptoms, this make the entire process more difficult. I suggest working closely with a GI doctor and being re-tested to see if the antibodies are back in the "normal" range. I found this to be comforting information. I have also found that as my system heals I have even less reaction that when I was first diagnosed.
  4. Green Eyes
    I have one additional suggestion. Cleansing the system and then starting a regimen may be recommended. Cleansing the system allows anything you are taking to work better and not playing the "catch up" game. Using an enema to clean out the bowels may be needed before you begin taking something else. You can use something over the counter of simple...
  5. Green Eyes
    Hey, just wanted to put in my two cents worth. It took me months to find doctors that would work with me. When one acted like they didn't have a clue or didn't take me seriously - I found another one. In the end what I did find was a GI doctor that would work with me and a Chiropractor that got me back to where I needed to be. I have had vitamin levels...
  6. Green Eyes
    Hi Anne-Elise, My story is similar to yours, but I didn't even have the GI symptoms. I was having problems but nothing related to the GI track (later found out it was back related not celiac). After a biospy I was diagnosed with celiac. It turned my world upside down. It took me a few months to feel comfortable with my gluten free diet, now I can't...
  7. Green Eyes
    I to had low iron counts and the doctor put me on ferrous sulfate along with a multi-vitamin. The fs is suppose to be better and less upset stomach. I take it daily and have not had any issues!!! Jennifer
  8. Green Eyes
    Over time I have been able to realize the difference. Sad part is, this is trial and error for everyone. You will learn what your body is telling you. My actual lessons came from getting gluten (accidentially) and learning how my system reacts. If I get a larger amount of gluten I have D within 30 minutes for about 30 minutes and then all symptoms are...
  9. Green Eyes
    Hey Jason, I think it is totally your right to choose what level you can live with. Does it really matter if you are gluten intolerant or celiac? If you can tell not having gluten works for you, don't worry about the rest. I'm sure dealing with other sensitivities makes the process even more difficult. I can only encourage you to continue the fight...
  10. Green Eyes
    Now that is Awesome!!!! Jennifer
  11. Green Eyes
    GI doctors usually recommend flushing out with Miralax. That is what I used before a colonoscopy and definitely completed the task!! LOL I believe it is a matter of how much you drink in a short period of time - once things started running clear is when I stopped. Jennifer
  12. Green Eyes
    Since being diagnosed 7 months ago I felt like I was left to fend for myself. My GI doctor refused to monitor me or do periodic testing (which I felt I needed because I don't react to small amounts of gluten). I was sent to a dietitian which didn't have a clue!!! I felt alone and felt like there should be professionials to guide me. This site provided...
  13. Green Eyes
    I experienced nausea in the beginning. I eventually found out it was because of getting gluten. It was the vitamins I was taking in the morning once a day. Once I found the problem I did fine. I also agree that dairy could be irritating your system. You could even be lactose intolerant. Hope you figure it out. Jennifer
  14. Green Eyes
    I haven't figured out if not having outward symptoms is a blessing or a curse. I guess it is all in how you look at it. I do not have a reaction with small amounts of gluten. I do get mild symptoms with larger amounts. I had to find a new GI doctor who would actually run the blood test ever so often. The first GI doctor just told me all I had to...
  15. Green Eyes
    Hey dogle, I think all of us can say we've been there to some degree. You can't change what has already happened, BUT you can change the present and the future. Make peace with the past and know that today is your new beginning. You can start making postive memories right this minute. Don't waste another minute all the bad stuff, focus everything you...
  16. Green Eyes
    Thanks Janet, That does answer some questions. My sister has the gastroparesis and has just found out she has the celiac. Basically found the celiac because I had been diagnosed and pushed her to be tested. I'm hoping once she gets the celiac under control her health will improve. Jennifer
  17. Green Eyes
    Your attorney advise is pretty accurate. The burden of proof would be left up to you and that would be very difficult to prove. Getting a "good" attorney that would actually take the case would be difficult. I'm not sure how the medical field terms it, but the law enforcement world would focus on intent. Was the intent of the doctor to do you harm...
  18. Green Eyes
    So if you have gastroparesis can it actually get better? The diet is very restrictive in the beginning and over the 3 phases can add additional food. Is there any getting past the 3rd phase? Can a person with gastroparesis ever be healed/cured? Jennifer
  19. Green Eyes
    Okay, another question on the subject. For those of us who are less sensitive - do you go to extreme measures to see that you are indeed making progress with your diet? I want to be retested for celiac just to see my numbers are where they should be. Would it be necessary to continue to get tested. That would be one way of seeing we are staying on track...
  20. Green Eyes
    After much harrassment from me, my sister has finally had some test run. She was a classic celiac and I could have told her the results before she had them done. She is in very poor health and obviously not getting much help from her doctors. Her GI doctor told her 2 years ago her small intestine was in very bad shape, but didn't bother to do a biopsy...
  21. Green Eyes
    Eating out is possible but difficult. It just depends on what you are willing to risk. In the beginning I didn't eat out at all, I was afraid too. I started out with the Outback (offer gluten free menu). It worked well so I got a little braver and tried another place. If you can plan ahead and go to some known restaurants (even on an out of town trip...
  22. Green Eyes
    Really it isn't so bad once you get started eating gluten free. I too wasn't having big issues. It was a total fluke (well maybe not totally) that I was even diagnosed. Talk about a blow, it was. You will also find that once you go gluten free you will have a reaction to eating gluten. If it is small amounts over a period of a few days (like taking...
  23. Green Eyes
    A Restaurant!!!!
  24. Green Eyes
    Hey Geoff, You have just wrote out my life!!! I do not have GI symptoms like most celiacs and I do not react to small amounts of gluten. Found that out by accident but the results are the same. I have been to numerous doctors trying to find out why I was having pain down my left leg and groin area. I was told it was all in my head, I was crazy, I was...
  25. Green Eyes
    I tried a new pie recipe for Thanksgiving and it wasn't so bad. I made a million dollar pie and used gluten free ginger snaps mixed with butter for the crust. It was a crumbled into the pie, but I liked it even better that way. For the center of the pie I just mixed together 1 can of crushed pinapples, a bowl of cool whip, 1 can of evap. milk, and 6 tbls...
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