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LDJofDenver

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Everything posted by LDJofDenver

  1. LDJofDenver

    ARCHIVED Children Tested?

    LDJofDenver replied to CarolinaKip's topic in Doctors

    Sheez, then why are children diagnosed by the age of 2 in Italy? Uninformed doctors can be very frustrating. I'd do what is recommended above and print out information from various Celiac sources and centers and take that to your doc. Some celiacs are asymptomatic but that does not mean damage is not being done.
  2. LDJofDenver
    I do eat some prepared foods and treats. However, I only buy the ones that are certified gluten free (dedicated bakery, etc.). I have been burned too many times by products that say Gluten Free on the front label, but on the back label they say "processed on equipment that also processes wheat...", etc. These days there really are quite a few convenience...
  3. LDJofDenver
    King Soopers / Kroger / City Markets : they've got quite a few gluten free items (baked goods, soups, froz. dinners, etc.) in their freezer section, plus many gluten-free flours and mixes in their baking products aisle. They also have a pretty extensive list of what is gluten free in their store brand products.
  4. LDJofDenver
    Yes, unfortunately, your physician is incorrect. You DO have to have gluten in your system for your body to create the antibodies - the blood test is looking for these antibodies. People wishing a formal diagnosis do have to go back to eating gluten - usually several pieces of bread per day for a month, something like that (a search of this forum will turn...
  5. LDJofDenver
    Don't know if you're from Washington state or DC - here are links to celiac groups in both. Hopefully you'll find some good information and resources to help you: Open Original Shared Link Open Original Shared Link
  6. LDJofDenver
    Ditto. And if you're looking for some good chocolate treats, heck, majority of Godiva chocolates and truffles are gluten free.
  7. LDJofDenver
    How frustrating. I just don't get it. No one questions a peanut allergy. Or would consider sneaking your kids peanut butter in a cookie, etc. I'd definitely take the recommended approach (above) and enlist the assistance of your Bishop. (and if you are in diff. ward than inlaws, have your Bishop talk to their Bishop) Have your husband make a family...
  8. LDJofDenver
    Do you have an area/neighborhood monthly newsletter/newspaper? Perhaps you can call them and reach out through that (either your own ad, or generate enough interest for the paper to do a brief article). Or local vitamin and natural foods stores, for example, may be a good place to post a colorful flyer seeking parents of children with special dietary...
  9. LDJofDenver
    Osteopaenia. I have that, too (in mid 50s). No doubt due to my long undiagnosed celiac disease and resultant inability to absorb calcium. My doc also prescribed Vit D, along with higher dosages of Calcium. Fortunately, 10 months down the road, I saw an endocrinologist at the advice of a friend and the first thing she did was check my Vitamin D levels...
  10. LDJofDenver
    I'm with KARENG, above, I just take stuff in my bag (don't ask in advance). A couple pieces of cheddar cheese, a nut bar or cashews/peanuts in baggie, some rice/corn chips etc. Usually the restaurant doesn't even notice, especially in larger groups. You have to look out for yourself. But, yes, what a ridiculous reply from them! I'd go above their...
  11. LDJofDenver
    I recently read a post somewhere in gluten-free-land that some of their items are gluten free and some are not. Don't hold me to these specific items but it went something like, Ghirardelli chocolate squares were NOT gluten free but their chocolate chips were OK. I'd contact Ghirardelli (go to their home page and click the Contact Us button) and ask...
  12. LDJofDenver
    Not to discount the prospect of a "contact" cause (something you're putting on your skin, or new laundry detergent, etc.), I often get a nasty case of hives from something I've ingested. Cross contamination is a possibility. God help me if I was unknowingly glutened. After you review exterior things that may have changed (lotion, detergent, soap...
  13. LDJofDenver
    My doctor also told me that I did not need the small bowel biopsy. He said all my bloodwork was positive for it, plus I had a first-degree relative with it, so he said it was unnecessary (at least in terms of using it as a diagnostic tool). However, a few months later I referred myself to a GI doc, just for a consultation and the first thing out of their...
  14. LDJofDenver
    Hi Hollie A few months after I was diagnosed I discovered these grocery shopping guides. Made my life much easier when shopping. Gluten-Free Grocery Shopping Guides. Aside from these, our local GIG Celiac Div. has a smaller gluten-free groc. guide that includes a lot of local items, so you may look for a local Celiac Chapter in your area. Open Original...
  15. LDJofDenver
    Any singers out there? Has anyone used SIngers Saving Grace spray for dry, irritated throat? Or, another one I found (for speakers, singers, etc.) is called Entertainers Secret? While both list ingredients, they have "natural" items that are vague. Trying to avoid numbing products like Chloraseptic, which don't really address dry throat anyway (made...
  16. LDJofDenver
    There are also grocery shopping guides out there to make your life WAY easier at the store. They list mainstream products (Kraft, Heinz, Kroger, Hormel, etc.) by category (soups, chips, dressings, spaghetti sauce, etc.) Gluten-Free Grocery Shopping Guides: Open Original Shared Link http://www.triumphdi...CFdVL5QodHR95Bw There
  17. LDJofDenver
    We
  18. LDJofDenver
    I've had quite a few experiences that left me a little wary of blue diamond nuts (almonds, in particular - regular, oven roasted, etc. -- I don't ever buy the seasoned ones). Even though they are supposedly gluten free I swear, every time I would eat them I would end up with an unhappy gut. I don't know if it's a contamination issue or if I just have...
  19. LDJofDenver
    I don't know how long it's been since you were diagnosed but I've seen many of the "elders" (in knowledge) of this forum suggest eliminating all grains for the first 6 mos. or year, until your body has had a chance to heal. Perhaps you can do a search for more information related to this.
  20. LDJofDenver

    ARCHIVED Recommend A Doctor In You State

    LDJofDenver replied to a topic in Doctors

    Dr. Leslie Stark, GI, Kaiser Permanente, Denver CO
  21. LDJofDenver
    You know, Annie's makes a gluten free mac and cheese (in a box) that is really good. Many mainstream hot dogs are gluten free. It seems like gluten is in everything at first, but be assured it isn't. It is a bit of a learning curve at first, but in a couple months you won't be looking everything up and reading labels for a half hour in the grocery aisle...
  22. LDJofDenver
    I had a whole host of neurological problems, which we now know were related to undiagnosed celiac disease. Many have gone away completely (I'm at about 2+ years since diagnosis). Roving pins and needles, muscle pain, numbness, ataxia. As explained to me, these are the result many years (decades, for me) of intestinal damage and not absorbing vitamins and...
  23. LDJofDenver
    I know, I still always scanned the label, even if I thought it was on the OK list. Even though I didn't see anything bad, they have removed Chicken with Wild Rice from their new gluten free list. I stopped buying it. If they took it off the list I felt there must be a reason and I no longer trust it. (PS love your cat!)
  24. LDJofDenver
    Here is a link to a good site that has a lot of information, including which testing to request, etc.: Open Original Shared Link Might also be worthwhile to see if you have a local Celiac chapter that may have some physician recommendations. I went undiagnosed for over a decade AFTER my son was diagnosed with it and I began ASKING to be tested. Instead...
  25. LDJofDenver
    Also PF Chang's (downtown), and Pei Wei have gluten free menus. If you end up outside of town there are, of course, Outback Steakhouse restaurants.
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