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LDJofDenver

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Everything posted by LDJofDenver

  1. LDJofDenver
    Brilliant!
  2. LDJofDenver
    Don't know about the carpal tunnel connection. But, as you suspected, the healing can widely vary, depending on your age, how long you had it before diagnosis, how often you get cross contaminated while trying to eat gluten free, etc. I was diagnosed in my 50s and know I had it possibly a couple decades. I had the whole host of neurological problems...
  3. LDJofDenver
    We save a bunch on just mainstream things like eggs, mayo, soda, meats, frozen chicken breasts and thighs, frozen veggies, Lara bars. olives, progresso new england clam chowder, etc. Last week, they were sampling gluten free tamales, which we bought and froze. But beware of some of their snack things, like Cashew Squares - - says is big letters on...
  4. LDJofDenver
    Certified, definitely. I've been nailed so many times, in my early naivete (first year+ of diagnosis), by products that were labelled "gluten free" right on the front label, but revealed on the back "processed on equipment that also processes wheat..." etc. Or some that had ingredients list that certainly looked fine. But over time I've just gotten...
  5. LDJofDenver
    celiac.com recently posted an updated list of gluten free candy (since Halloween is coming up) here is a link to it: https://www.celiac.com/articles/22323/1/Gluten-friendly-and-Gluten-Free-Candy-and-Treats-for-Halloween-2010/Page1.html
  6. LDJofDenver
    Me, too! (digestive issues, fatigue, and body aches...repeated shingles outbreaks - plus weird rashes, bruising, thin skin, ataxia, on and on). Was not connecting the dots! I'm just thankful that I'm diagnosed and now I know what I have. And we're lucky that what we have is treated by diet.
  7. LDJofDenver
    And aside from all the above excellent advice, try to focus on what she CAN have, as opposed to things she can't have. My first week after diagnosis, my husband and I made dinner and afterwards he said: "You just ate what we normally eat all the time." (I think we grilled a steak, steamed a veggie). You can get online and find grocery and restaurant...
  8. LDJofDenver
    Just curious, were you eating gluten free prior to being tested? That could result in a negative. And I empathize with you on that "just a little" -- I mean, if someone had a person over for dinner that had a peanut allergy they wouldn't even dream of putting "just a little peanut butter" in what they're cooking. Why is this (gluten) hard to perceive...
  9. LDJofDenver
    I've had shingles 4-5 times over past 5 years. I was initially told by Dr. that you only get them once. Then after 2nd and 3rd time was told "well, that was generally speaking." Argh! Majority was pre-celiac-diagnosis, and part of the long familiar story of failing to get diagnosed by my doctor. Very frustrating. When I said something to him about...
  10. LDJofDenver
    No, not a safe cereal! Nor is Rice Krispies. You need to do your due diligence with mainstream products. Just because it says it rice or corn doesn't mean it doesn't have gluten. My son, also a celiac, takes activated charcoal when he gets accidentally glutened. Not each time it happens, just when severe. He swears by it, that it cuts the suffereing...
  11. LDJofDenver
    I was told that it (healing or not) depends on how long you've had the nerve damage. Also told that the neuro problems take the longest to heal. I had some pretty significant neuro issues by the time I was diagnosed (gluten ataxia, roving pins and needles, was even screeened and had MRI to rule out MS), and the good news is they're almost all gone! Some...
  12. LDJofDenver
    Has she been on a gluten free diet all this time? Or is this just something you will be implementing now that her blood work is positive for celiac disease?
  13. LDJofDenver
    Udi's actually has two bakeries, one is a dedicated gluten free facility. It's the first gluten-free bread I've found that I could actually make a meat and cheese sandwich with mayo and mustard, and it held up until lunchtime and was, well, a REAL sandwich! Happy days. By the way, their double chocolate muffins are better than most gluten-free chocolate...
  14. LDJofDenver
    I never liked the Kinnikinnick bread (but the hot dog rolls are OK). I like the Udi's whole grain. How does the Nature's Own compare? Is it less expensive?
  15. LDJofDenver
    Hi Zeb Check out this site: Open Original Shared Link It's "About celiac disease for Doctors." It should give some good info to take along. Good luck to you.
  16. LDJofDenver
    What about your toaster? Did you toss it and get a new one? I had/have occasions when I get nailed by something, even though I try to be ultra careful. Most of mine probably are due to cross contamination, either at someone's house (who is TRYING to be careful) or when eating out. I also, eventually, quit eating things that said they were gluten free...
  17. LDJofDenver
    Have you confirmed the vegetable juice to be gluten free? And, soups. What soups? Many Progresso soups that were gluten free last year are no longer safe. And the Health Valley Organic soups - if any list "natural flavors" the company says celiacs should avoid all those. How about spices? Gluten can often show up in spices as well. Many celiacs...
  18. LDJofDenver
    Agree with the above advice, read labels, call 800 #s, get on websites. You'll be amazed (shocked!) at how many food items contain gluten. And you are newly diagnosed...have you gotten rid of your old toaster, cutting board, etc.? And "wheat free" doesn't mean "gluten free" (it could still have barley, barley malt, rye, etc.). And that gluten is...
  19. LDJofDenver
    Yeah, 8-8-08. Easy to remember! Wow, not even at the 2 year mark yet. Certainly learned a lot since then, some of it the hard way! Never did the genetic marker testing, since both my blood work and biopsy were positive for it. Plus my son has it as well (guess I'm his genetic marker!). I may do it "just for the record" sometime.
  20. LDJofDenver
    It's a relief, isn't it, to finally have a diagnosis - a reason! And as maladies go, at least celiac disease is treated by diet. You'll have a bit of a learning curve at first, but you're on your way to healing. Aside from the obvious, not eating gluten, there are things you need to watch out for. Be aware that
  21. LDJofDenver
    "So I saw the gastroenterologist for the results of my blood tests, barium followthrough and ultrasound this morning." ? Good grief! I don't believe you can detect celiac disease via barium and ultrasound. Did you have an endoscopy with a small intestine biopsy? Perhaps find another GI doc. Try to find a local celiac group/chapter and see if...
  22. LDJofDenver
    It took me awhile for levels to come down. I thought I was being so careful but I was getting a lot of cross contamination, and eating a couple things that I thought were safe and turned out not to be. Sigh. It's a process! From what I've read children can often have false negatives on their blood work, so I wouldn't totally rely on that. Sounds like...
  23. LDJofDenver
    Thanks for the post!
  24. LDJofDenver
    Most of us diagnosed as adults have similar (and frustrating) stories. I don
  25. LDJofDenver

    has not set their status

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