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GlutenGuy36

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    Ice hockey, music, rollerblading, being outdoors and hanging out with friends and family.
  • Location
    Clawson, Michigan

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About Me

I am 36 years old from Clawson, Michigan. I was recently diagnosed with Celiac Disease on July 14, 2008 after 9 months of pain and agony. It was confirmed by blood tests. Endoscopy and Colonoscopy showed inflammation all throught my digestional tract.

I have been gluten free since the day I was diagnosed. I'm pretty sure in the beginning that I still was getting some somewhere. I live back at home because there was no way that I could work feeling this miserable. Fatigue, pain all over, muscle spasms, sever brain fog are just to name a few.

I am doing my best to stay the course and give my body a chance to heal. It is very frustrating to feel like you are being robbed of your life. I know this isn't the worse thing I could be diagnosed with but I have never felt like this before. My mind would say get up and there were days where I just couldn't move and if I did I would be completely exhausted.

Hopefully now change will come and is welcomed.

  1. GlutenGuy36
    Has anyone eaten Nature's Path Gluten Free waffles or Aldis Turkey roast ? If you did, were you ok or were you having symptoms of being glutened. I bought some Natures Path Gluten Free waffles and some other brand of gluten free corn dogs and later had the nasty kind of D that comes with being glutened. I tried to look up online about Natures path...
  2. GlutenGuy36
    It's bad enough that you have to scrutinize every ingredient in the things you eat but when you buy things that are SUPPOSED to be gluten free and you get glutened by them, it just makes me very irate. I have only been eating glutino gluten free bagels, and hormels natural choice turkey lunch meat which clearly states no gluten and ditto for the bagels...
  3. GlutenGuy36
    Ok I have been on the Gluten Free diet since I was diagnosed July 14th of 2008. I am still sick not feeling right at all. Most of the abdominal issues have resloved except for painful belching after I eat. My main issue is I am in alot of random pain. I have removed nightshades, casein from my diet and I am now working on Soy. I went out to rake the...
  4. GlutenGuy36 started following Lisa
  5. GlutenGuy36
    Thanks Bea, You are amazing with all of your knowledge. You give me hope when I feel like there is none and I really appreciate it.
  6. GlutenGuy36 started following SGWhiskers
  7. GlutenGuy36
    Hey SG, Sorry you are dealing with this as well and I hope you feel better soon. I also have Hypothyroidism and a herniated disc in my back in addition to the Celiac Disease. What seems to make me feel the worst is just aches and body pains all over. I feel like I am 80 and I turned 37 this past Januuary. My luekemia test came back good so I guess...
  8. GlutenGuy36
    I haven't been re-tested for antibodies. He doesn't seem to think I need it. He just said remain gluten free. I am pretty sure that I am not consuming gluten. I use my own pans ( bought new ones ), I don't eat out at all anymore. Even at places where the food they serve maybe gluten free because they also serve food that isnt. Can dairy make you feel...
  9. GlutenGuy36
    Hi was diagnosed with Celiac Disease July 14th 2008. I have been gluten free with a few accidents along the way. I am still feeling pretty bad even though the abdominal issues have abated for the most part. Some symptoms have gotten better but many still remain such as, radom body pains, feeling fatiged, tinnitus and just an overall not feeling well....
  10. GlutenGuy36
    I agree with the poster that said Europeans are far ahead of us in their knowledge of people with Celiac Disease and having lots of places to accomodate folks like us. What about peanuts butter for protein? If you can tolerate the nuts. I eat all natural peanut butter with no added sugars. I hope you find things that work for you Jason. I know how...
  11. GlutenGuy36
    Does anyone out there know if Levothyroxine ( synthroid ) made by Mylan is gluten free. I went to glutenfreedrugs.com and it says that sythroid cannot garuntee wether or not there is gluten in it. Thanks in advance, Ted.
  12. GlutenGuy36
    I am so frustrated with my family members when it comes to my cross contamination concerns. I had to move back home because I got so sick I had to leave my job and its been a slow, slow healing process. Today, My my mother grabs a bag and hands what I thought was sugar to me. I set it on the table and when I set it down I could see the label on the...
  13. GlutenGuy36
    It mostly happens on my forearms and knees. They feel really warm and get red. I always thought I might have Candida because I have so many symptoms still. Swollen glands under my jaw, joint pain all kinds of weird things.
  14. GlutenGuy36
    Hi, I haven't posted on here in a couple of months. I am still not feeling all that great at 12 and a half months of the gluten free diet. I guess compared to where I was, I am better. For nearly four months I could not even get off the couch I was so exhausted and I wasn't even doing anything to make me tired. My question is this: Has anyone...
  15. GlutenGuy36 started following mushroom
  16. GlutenGuy36
    Hi Jocelyn, I understand totally what you are going through. It is a different experience for everyone. I unfortunately, still do not feel anywhere like I use to even after being gluten free for a year now. I am experiencing some of the same symptoms as you are such as: Random body pains, hurts when I sit, lower back pain, ringing in my ears and...
  17. GlutenGuy36
    Ok I found my pathology report. They did five bi-opsies. They were of: 1. Termial Ileum (small bowel mucosal with mild specific colonic inflammation), 2. Right Colon ( Colonic mucosa with lymphoid aggregate and mild nonspecific inflammation), 3. Transverse Colon (Colonic mucosa with lymphoid aggregate and mild non specific inflammation), 4. Left Colon...
  18. GlutenGuy36
    Yes, I will find it and post it on here later. I have to dig through some files.
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