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ashlee's mom

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by ashlee's mom

  1. ashlee's mom
    Hi, I homeschool our daughter. We really feel is is the best option for our family, not just because of celiac disease, but it certainly makes that easier too! My suggestion would be to see if there is a homeschool group in your town, talk to other parents and decide if this is something you are interested in. I would be happy to answer any questions for...
  2. ashlee's mom
    Well, I just sent a Thank You e-mail to Chick fil-a. They aren't in our town yet, but I can hope they come to, and I will make sure we stop by when we are out. I figure it is important to make sure they remember how many customers depend on their gluten free menu!
  3. ashlee's mom
    Wow, I just saw all this on Yahoo last night. Thank you SO much for pushing this issue so much. Of course my 6 YO was devestated to learn she couldn't eat there anymore. I will have to make more fries and hashbrowns at home, but that isn't the real issue. That was one "normal" thing she still had! I get so mad knowing that for these past 2 years she...
  4. ashlee's mom
    My daughter had her bone age test done when she was almost 4 and it showed she was just over a year behind I believe. At the time we were taking her to an endocrinologist to check for growth hormone since no one thought it was possible to be celiac disease. She was actually diagnosed about 6 months later though. She has been gluten-free a year now and...
  5. ashlee's mom
    I was VERY impressed with these biscuits! They actually rose! The texture is still a little different from wheat biscuits, but they were the best we have tried so far! I got the recipe from Shari Sanderson's Incredible Edible Gluten Free Food for Kids. We use a lot of things from there! I use a Kitchen-Aid to mix it all. The dough did come out very...
  6. ashlee's mom
    Hi, I just noticed this on the Forbidden list, and was wondering if anyone could help me out? I googled it and I read that it was an individual plant, so I don't see why that would contain gluten. I am actually checking because I am wondering about trying to find a cheap replacement for my pet's foods. I don't let my daughter feed them, but I am wondering...
  7. ashlee's mom
    Gillian, I am SO glad you asked this question! I have been so confused about this for the past year! My daughter was diagnosed in March of 04 and I printed up my lists then. Mine also lists Gum Base as a definate No, and so I haven't been able to figure out how gum could possibly be OK! I have heard that Wrigley's gum is gluten-free, but since it...
  8. ashlee's mom
    How frustrating! Yeah, I think you do have to get medical records and test results from the Dr. who ordered them. Personally, I get tired of all the privacy protection with medical records. Really, I don't care if anyone see's my test results! It just makes it a pain to get your own records! I think adjusting her diet on your own sounds smart. I think...
  9. ashlee's mom
    Merrie' So, how did the appointment go yesterday? Did you find anything out? I hope it helped and Chelsea is at least on the path to an answer. Michelle
  10. ashlee's mom
    Yes, it sounds like the doctors have spoken. That is really good, they seem to believe each other when one says there really is a problem! I'll be waiting to hear what they have to say! Michelle
  11. ashlee's mom
    Well, that is a relief, I was afraid she was hallucinating! I don't know, I would think it is probably Celiac and for some reason she is a hard case to diagnose. If you know it is autoimune, and the symptoms match, it really seems to point to it! Someone on this board was mentioning autoimune disorders running in the family somehow. We don't know of any...
  12. ashlee's mom
    That is funny! My kids saw Dr. Dahlquist, but we just really clicked with Dr. Mandi. I also know Kay Green, we talked about adoption stuff, and she mentioned that she went to church with Dr. Dahlquist too! Our pastor's wife had told me about Kay when we first started looking into adoption. Here I was getting so homesick! We moved to East Texas this past...
  13. ashlee's mom
    Thanks Bridget, I called and they told me they were gluten free. I am wondering though if we need to worry about cross contamination there. What if in the Pharmacy they fill a prescription of a medication that contains gluten, then filled her prescription? I don't know if that is too far fetched or not! I may be grasping at straws! I finally got everything...
  14. ashlee's mom
    AAGH! I feel your frustration! So did they just run the second blood test at the same time as the second biopsy? How confusing! The AHA test that was positive was just for an autoimmune disorder in general, is that right? I have also heard to make sure the lab is done at a recognized lab. Since Ashlee's came back positive before I even read that, I...
  15. ashlee's mom
    Jess, What brand of ketchup was it? Heinz 57 is gluten-free, so I just thought I would mention that. Otherwise, it seems like your little girl could very likely have Celiacs. As for whether or not to deal with the testing, it just depends on a lot of different things. First of all, as far as the testing, I was worried about the biopsy, but Ashlee...
  16. ashlee's mom
    Merrie' I am so sorry for all your frustration! I totally understand not being too excited about going to another Dr. who will blow you off! Have they done blood tests for celiac disease? This is just me, but I think if I had a feeling it could be Celiac and couldn't get through to the Dr.s, I might try the gluten free diet to see if there were any results...
  17. ashlee's mom
    Merrie, We are also new to Texas, weird thing is that my kids' pediatritian was also in Hillsboro, Or before we moved here! (we lived in Forest Grove) Small world! OK, since coming here we took Ashlee for a follow up (she was diagnosed w/celiac disease at Emanual back in OR last year) and went to Children's in Dallas. We saw Dr. Anderson as I was told...
  18. ashlee's mom
    Thanks so much! We homeschool Ashlee, so I don't have to worry about the whole contamination at school issues. (It isn't why we decided to homeschool, but it is nice to eliminate that worry!) I think I am leaning towards the lactose intollerance thing. I am noticing that even though she doesn't have the bad diarrhea now that she isn't eating yogurt, her...
  19. ashlee's mom
    I was just told that yearly checks are now recommended for children as well. It made sense to me since I guess it is the comparisons of the blood tests that really help you interperet what is going on. I am also trying to figure out what is going on with my daughter right now and am leaning towards a food intollerance since doing a food diary, but I am...
  20. ashlee's mom
    Thanks, this is at least giving me some ideas! I called Kroger's again and not only are all their yougurts gluten-free, but the only other things made there are milk and cheese, which are also gluten-free, so I really don't think it is gluten. Although I am wondering if she is getting gluten somewhere else, which is making her have some symptoms constantly...
  21. ashlee's mom
    Well, I will answer for my daughter, since she is the Celiac! 1. Yes 2. No, she has a lot of type 2's in the family, but no type 1's 3. Female
  22. ashlee's mom
    Hi, my daughter is 5 and has been gluten free for almost a year now. She started showing symptoms again and I don't know where any gluten could be coming from. I am in the process of doing blood tests again, but I also started keeping a journal of foods eaten and the GI symptoms. She always seems to have a tummy ache, but I noticed that the real diarrhea...
  23. ashlee's mom
    I just wanted to add that my daughter had it done when she was 4-1/2 and I think she did better with it then she did with the initial blood test! One reason I am glad we went ahead and did it was so that she has proof that indeed she has this disease. I have heard that the symptoms can fade as kids hit the teen years when they are questioning everything...
  24. ashlee's mom
    Well, I will try to add a bit, but I first want to say that I totally agree with these ladies! My 5 year old daughter was diagnosed last March so I am still pretty new to this, but I can tell you how traumatic her being so sick and trying to absorb all this information has been. Realizing all the obsticles that she is facing now and will continue to...
  25. ashlee's mom
    I can relate, but I really agree with everyone here that it is probably that she is still getting gluten somewhere. My daughter has been gluten-free since last March, and just turned 5 in August, so they are close in age and time gluten-free. All they symptoms went away at first, then over the past 6 months or so I think she is getting more sensitive. ...
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